Anyone with a type 1 diabetic child / teen.

[Foodtheif]

We’ve been diagnosed around two months now and I’m still so upset about it. Normally could cry at any point within seconds. So worried for her future and how she will cope in her teens. Even though she seems ok with it at the moment and has accepted it, I feel I’m doing worse than she is. I’m also petrified that my older daughter will get it too.

Sounds like carb ratio then. Hope you get some good advice from your team. You'll be aware that even protein can cause a rise in glucose levels?

Protein? I thought she could eat protein without it affecting blood sugars? I hate this disease.

I wonder if it would help to speak to a dietician?

Bloody everything affects blood sugar as far as I can make out! Always learning. Protein acts far more slowly than carbs but does still have an effect.

If you are normally in range you are doing far better than us!!! If DD is in 50% of the time over the day I am pretty happy (and also frustrated that I still don't know enough to get her in range more of the time).

How's your daughter coping? Have you come across the Adventures of the Insulin Gang of Travelling Bears?? Facebook group . A woman in the UK has a load of teddies that stay with a T1 child for a month, during which time the child keeps a diary of activities, then goes on to another child. The idea (I think) is that kids realise that there are many others who are just like them.

The majority of things have some carbs in. It might only be a small amount (negligible on it's on perhaps) but if you have a few things that have a small amount in it is possible to cause a raise. For me, cheese causes a rise, but most meat and fish don't unless they're very fatty in which case I do occasionally have a rise later. Some sweeter veg are also higher in carbs than others so that's worth bearing in mind too (sweetcorn, grilled tomatoes and peas all require insulin for me for example). Second the possibility of seeing a dietician too, might be very helpful

Sympathy OP.
Diabetes is a truely shitty disease. No days off, dominates your thoughts 24/7.
I've been T1 since aged 1.5, so for 45 years.

A 10 year old dd is in ds2's class. She is on a pump. Has plenty of play dates. You will too!

It's just a steep learning curve. But your'll get there.

We will get there eventually. Doesn’t help when your child hears of a play date and asks if she’s going when I knew nothing about it. All of her close friends are going and I think she would have been invited pre diabetes. Thing is she could have gone to this one as they only live on the next road down from us and I could have pooped in a few times. I know the mum too and I know she doesn’t want to deal with it. So sad for my daughter though as she’s being excluded and everyone else is going.

I’ve had Type 1 for over 30 years and can happily say I haven’t missed out on anything! Uni, travelling, getting married and having kids :)

I got the pump about 2 years and for me that was life changing - I can def recommend it!

Thanks @paddyclampitt. That is reassuring to know. She’s so positive most of the time. It’s me and her elder sister that are always worried. She’s not keen on the idea of a pump and to be honest I’m not sure if it would be a good idea or not. Something else attached to her wouldn’t be nice for her. She hates the libre being out on so I don’t think she’d want a pump being on too. Maybe in the future.

Tbh I resisted the pump for ages. Now, I wouldn’t go back to injections for a million pound! I don’t like the look of the libre so I put rock tape over it. I hide the pump in my bra!

Well, we’ve made it through our first year with a diabetic child. (If anyone’s still reading!) She’s starting to get fed up with it all now. She won’t have injections for snacks but still wants to eat carbs for snacks so we are having a bit of a battle with that. I can’t believe it’s been a whole year. Where’s the cure 😂

Oh food, my son is newly diagnosed. I nearly killed the poor thing - thought he had flu or a nasty bug - I won’t bore you with the details but he was really unwell for a few days in hospital and it took over a week to get him out. I can barely sleep with the worry of it but on the while, I would say he is coping really well. I am a bloody wreck!

I go through phases of being a wreck. Some days I’m fine and think we will manage and others I can just cry with the worry and all
The what ifs.

Does anyone have coeliac disease along with the type 1. How common is this? I’m hoping it’s not too common. I don’t have any concerns really. She does have tummy aches sometimes but I think that’s common with type 1 and the odd occasion she gets constipated but again I can account for that with not enough fruit and veg. Just another thing to worry about really.

I don't know but have been wondering. Our 'team' have said they will test at some point in the next 6 months, when things have settled down.

The what if, possibly, maybe, perhaps....are horrendous. So tired of it all.

I know how you feel @Sotiredofthislife. I feel like your username too. How long has your child been diagnosed? How are they handling it?

Just a few months. He is doing great generally. I have found it very hard, not least because he was so dreadfully ill I thought for a short time I might lose him. His sister had been very unwell with a sickness bug and unfortunately I put it down to that. He was properly in DKA and his body was beginning to shut down by the time it was diagnosed - 2 doctors missed it so it wasn’t just me. The whole experience has changed me.

It’s bloody awful isn’t. I don’t feel as though we will ever be truly happy again. Just too much worry and stress in our lives now. How old is your son?

DS1 is 29 and has had cystic fibrosis related diabetes since he was 10. It's very similar to type 1. He manages very well. It's mostly about jiggling the amount of insulin.

Sorry to resurrect an old thread.

DN has been diagnosed this weekend and is in Hospital.

Just wondering if someone has an idea of a gift we can send him until we can visit him later in the week?

Hi I guess it depends how old he/she is? (Not sure if neice or nephew?) maybe something to keep them busy in hospital such as a little Lego, magazine etc if they are going to be in a while.

As a parent of a type 1 I would say really the biggest support you could give is to your sibling/the parent, learning about it and offering childcare once they are ready for them to have a break as I only had one or two people I would of left my type 1 with and that makes it really hard. It's very overwhelming in the first few weeks