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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if anyone has any miraculous intensive care stories

27 replies

Kintan · 03/01/2019 12:37

Sorry posting here for traffic.
Just as the title says really. My relative has been in intensive care for a couple of weeks with an unknown infection. He has been off sedation for a couple of days but hasn’t regained consciousness although a brain scan looks normal so doesn’t look like there is any brain damage. Has anyone had anyone in this position and had a happy ending? We are preparing ourselves for the worst :(

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CripsSandwiches · 03/01/2019 12:39

A friend was in intensive care with sepsis. He had multiple organ failure, and a successive stream of antibiotics didn't work, also various other complications. In the end he came through and went back to work about 6 months later. No complications since. All organs recovered too.

Good luck op.

Whdidjbehs71 · 03/01/2019 12:40

My DD cousin was in intensive care after he drove his car into a wall at 120mph... with no seat belt...and deactivated air bags Hmm

He was stable for a few days and then all close family was told to come to the hospital ASAP as they thought he was going to pass away... he’s now fine but still suffers from the broken bones he got

CripsSandwiches · 03/01/2019 12:41

It did take a long time to come round after he was off sedation (can't remember exactly how long). It was a horrible time.

AndNoneForGretchenWieners · 03/01/2019 12:43

DH was in intensive care after he had a lung removed as part of his cancer treatment. He was in there for a week, but steadily improved and then moved to the step down ward, which is a kind of halfway house between ITU and a normal ward. He was discharged altogether after another week and is still with us a year later (the cancer has become dormant at present).

Surelyoneisenough · 03/01/2019 12:57

Such a difficult time, you do have to prepare yourself but there is always a little bit of hope.

A couple of years ago my husband was sedated for a long time after a massive stroke. I was told his chances of survival were very slim and that he would have significant brain damage if he did live.

When they lifted his sedation, he was unresponsive and didn't really gain consciousness. I was distraught as I had naively imagined that if he survived, he would wake up and we'd start rehab!

I didn't understand how much the drugs they use alongside the huge trauma affects the body. It took days before he started to properly wake up after they stopped the sedation and a lot longer than that to fully leave his system.

Anyway, he did survive and after a long rehab he is considered a medical miracle. He has recovered way beyond even the best case hope.

I hope you have as happy an outcome as we did.

JohnCRaven · 03/01/2019 12:59

A boy at my secondary school was in a coma for months after an infection. Came round as if nothing had happened. Back at school the next term.

indecisivepigeon · 03/01/2019 13:01

My dad was in ICU with pneumonia. Prognosis was very bleak.

He pulled through! He’s weakened by the pneumonia but he survived

Nonky · 03/01/2019 13:04

My father went in for a routine triple bypass in November but ended up having quintuple and two other operations. We were called in and told He had gone into septic shock and was unlikely to live. We took each day an hour at a time. After a week in an induced coma he came round very slowly. All major organs were working (albeit kidneys still a concern) and we were told it was a miracle. He has just come home after 9 weeks in hospital. I cannot even begin to thank the instensive care team enough. They were so kind to all of us. I met some incredible families in intensive care and we all supported each other through this utterly bizarre and frightening time. I really had given up hope but my father proved us all wrong. Lots of love xxx

Magicstar1 · 03/01/2019 14:17

My friend's father was in a coma last year and they were asked about switching off life support. They asked to leave it until the next day...when they came in he was sitting up having a cup of tea!
He's flying about now on his mobility scooter as if nothing ever happened.

JagerPlease · 03/01/2019 14:23

My mum was in ICU years ago, sharing a room with a teenage boy in a coma. Just before my mum was moved to a normal ward, the boys family were arriving to say their final goodbyes as they were told there was nothing more that could be done. A few weeks later we saw him in the national papers, apparently his twin brother had sat in with him watching cartoons and he'd just randomly woken up and started watching with him. I will always take from this that you can fear and prepare for the worst, but not to give up hope

Greyhound22 · 03/01/2019 14:32

My Mum was in for 6 weeks in 2010. On one Sunday they told me that if there was anyone that would like to see her then now was the time to call them. They said if her organs didn't pick up by the Wednesday they would turn the support off. Her kidneys started working on the Tuesday and she started to slowly get better. It took a while but she is now fine - she has a couple of things to cope with (had to have bowel removed in her situation) but she's very independent and well fine really.

I know we were lucky and her consultant still calls her the luckiest lady he ever saw but it can happen. Keep hoping.

Kintan · 03/01/2019 16:53

Thank you all for sharing all of your uplifting stories ❤️ We are trying to hold onto a glimmer of hope, and it’s been really helpful to read all your replies x

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WendyCope · 03/01/2019 17:01

I got Guillain Barre syndrome, which brings on paralysis which rises up your body. It reached my lungs and I went into a coma on life support. Doctors said I would die. Call the family etc...

I would say to others that you HEAR EVERYTHING when in a coma, you just can't reply.

Nurses cut all my long hair off, laughing.

It was horrific.

I recovered, against all te odds. After a long stretch later in a rehab
hospital. 6 weeks in bed, you have no muscles left though, it is a long haul to recovery. You can't walk.

Please talk to your relative as they will hear you.

LakieLady · 03/01/2019 17:30

My friend's husband had a cytokine reaction following a stem cell transplant for cancer.

He was resuscitated twice, at least, and my friend was told he wouldn't make it and that they would not try and resuscitate him a 3rd time. He was kept sedated for what seemed like weeks and once he'd stabilised the sedation was gradually withdrawn. He took a long time to come round, but eventually he woke up.

The treatment was successful and he lived, well and happy, for several more years before the cancer returned.

MygirlKeith · 03/01/2019 17:35

@Wendycope
That’s horrific, I’m so sorry you went through that. I hope you had the strength after your recovery to make some serious complaints about what happened to you

Walkingthroughawall · 03/01/2019 17:48

Depending on exactly what organ systems have been involved in his illness (eg if his kidneys/liver are working properly) and what drugs he's been given it can take ages to wake up. There are other things that also contribute to people being drowsy for a while after sedation is stopped. The doctors and nurses looking after him are in a far better position than anyone here to advise you about what's going on/whether they're concerned yet. The fact he's still dopey after a few days off sedation wouldn't necessarily be too surprising on it's own. (from an ICU doctor).

Kintan · 03/01/2019 20:27

Walkingthroughawall thank you for your insights. Sadly the prognosis is still uncertain, he has had so many tests and scans but the problem hasn’t been pinpointed. Hence me asking for miracle stories as he is in a pretty poorly way.
Wendycope I’m so sorry you had such an awful time. I hope you have made a full recovery and are not too traumatised by the experience. We have been talking to him lots and are currently half way through reading him his favourite book, The Hobbit x

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BetsyBigNose · 03/01/2019 20:59

A 13 year old boy was walking home from school on a dark November afternoon, when he crossed a busy 4 lane A road without looking properly and was hit by a car going at 40mph. He was thrown 20 feet, had massive head injuries, his right foot was turned back on itself, he had teeth knocked out as well as cuts and 'road rash' to his legs and a huge flap of skin lifted on his back, where his school clothes had ridden up and he'd been sliced by something in the accident. There was blood everywhere.

Someone at the scene applied pressure to stem the bleeding on his back and tried to give basic first aid, but he was unconscious, with no reaction to stimuli.

Another child from his school knew who he was, so the Police were able to identify him and rush to his DM, who was at work 15 minutes drive from the hospital.

DM was obviously terrified, even more so when the Police Officer asked for an update on his condition via the Police radio whilst they were speeding to the hospital and the reply came "It's not looking good I'm afraid". DM says that the scariest moment was when the Officer driving the Police car reacted to this news by flipping on the blue light and sirens and racing through traffic and red lights to get her to the hospital, hopefully in time to see her DS before he died.

At the hospital, medics removed part of his skull to relieve the pressure on his brain and he was eventually taken to ICU. The Consultants said that his head injuries were so severe, that he was very unlikely to wake from his coma and that even if he did, he would very likely have severe deficits and would be unable to lead a 'normal' life.

During the days that followed, surgeons operated again to insert a metal plate in his skull, his teeth back into place and various screws and pins into his ankle. His face was unrecognisable as his eyes swelled shut and the tubes squeezed through his swollen lips and up his broken nose. His DM, DF, DS and DBs all came to sit with him, to talk to him and eventually, to say their goodbyes.

He was in a coma for 6 very long days.

Then, one Monday, at about 3 o'clock in the afternoon, he opened his eyes - he could only squint as they were still swollen, but the Nurses bustled around him, fetched his DM and later that day, he came off the ventilator, was able to take small sips of water and respond to simple questions!

The medics warned his DM again that her DS may not be the same boy he was before he had the accident; that he might not be able to walk, to talk, to care for himself - or even on the less dramatic end of the scale, he might suffer from changes to his personality, such as violent outbursts.

Within a day or two, it became clear that he had been incredibly lucky and had escaped with all his faculties in tact! He had several further operations on his damaged ankle and had to use a crutch for a while, but after less than 3 months off school, he was back just after February half term and was an awful lot more careful when crossing roads from then on!

30 years on and the only lasting effects are the need to wear an ankle support when he plays football, some pretty impressive scars and an ability to make metal detectors beep!

That very, very ill little boy, who came so very close to death, is now my wonderful DH, Daddy to our 2 DDs - I think that's pretty miraculous!

I truly hope your family have a miraculous, happy outcome too OP.

Ymamiss · 03/01/2019 21:02

I was on life support after contracting an infection abroad which caused multiple organ failure and double pneumonia. They tried bringing me off the ventilator twice but failed, but here I am 8 years later fully healthy again. Also, my very elderly grandparent suffered from a perforated bowel and was in IC for a few weeks. She is back home now with no lasting effects.

Best of luck to you, it’s an awful time, like you’re in a bubble. Xx

OddBoots · 03/01/2019 21:09

My mum had open heart surgery last year, she was in ITU under sedation overnight and they then couldn't wake her the next day, they couldn't for a few days and called us in to warn us that it is likely she had brain damage and may not recover. Another anesthetist took over her care and adjusted her meds and she came around - it turns out she was having an unusual reaction to one of the drugs so that was keeping her asleep.

minisoksmakehardwork · 03/01/2019 21:13

My grandad was in hospital, in a coma and on life support following a operation to remove an aneurysm. (Can't remember if heart or brain as it was a very long time ago).

The hospital said there was no evidence to show he was going to recover consciousness or maintain his life independent of the machines and made plans to turn life support off. The first date they scheduled my grandma refused as it was my sister's birthday so they made it the following day instead.

On my sister's birthday he finally showed signs of recovery so they kept him on it a little while longer. He went on to recover fully and eventually died of an unrelated cancer over a decade later.

canteatcustard · 03/01/2019 21:33

my niece aged 9 got a cold, then a chest infection, then pneumonia , then as she has epilepsy, had a hour long seizure. Which then lead to a 6 min heart attack. then sepsis.

We were told to come and say goodbye. we came. we waited. 2 days later a exhausted but smiling doctor said, ' i think i can go home for some sleep now '

it took a long time, another year of many health set backs and fits and starts of rehab.

But she is now 11 and at home. severely brain damaged and with only a small amount of arm control. But can say 4 words clearly, can smile, giggle and laugh, with exactly same sense of humour she had before.
She tries very hard during her physical therapy, and is always trying to move her hands and arms.
i think its taken this long for her to recover and wake up from the coma and it will take longer , with therapy to gain more control.
But, even if she doesnt, she has a good life, goes to school, and is at home with her family and siblings.
We all feel very very lucky to still have her, she wanted to stay!

All praise to St Mary's hospital Paddington pead intensive care.

WendyCope · 03/01/2019 22:34

Kintan Mygirlkeith Thank you those very kind words. I can never wear heels again but am fine now! Just used to love walking and now dread it, as I just don't feel 'quite right'

But lucky to be alive! Grin

Pandamodium · 03/01/2019 23:08

Me. Massive overdose. Heart stopped and resuscitated, 9 day coma, priest summoned to my bedside the works.

Walked away without a scratch. I was in my early twenties, I "died" and was brought round during unrelated surgery (caesarean) two years later too.

I hope your relative pulls round Thanks

Kintan · 03/01/2019 23:12

BetsyBigNose that is such a lovely story, actually brought a tear to my eye!
Ymamiss sounds like you and your grandparent are made of strong stuff! Must’ve been very scary at the time.
OddBoots Thank goodness for the second anaesthetist.
minisocksmakehardwork This is the kind of miracle we are hoping for, I’m so glad you got to have that extra decade!
canteatcustard Your niece sounds like an extraordinary soul ❤️

Thank you again everyone for sharing your stories x

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