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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Autism and everybody being an expert

53 replies

BerriTerri · 03/12/2018 09:54

I can’t say I was warm to the diagnostic process, I certainly didn’t ask for one but we wound up with a diagnosis but and we’ve muddled through.

Three years on there’s still a few people who are obsessed by the are they/ aren’t they!

One woman apparently works with children, I presume young and severe, and watches like she’s doing a professional observation and interrupts other topics with comment like ‘look, eye contact to thank someone!’. I’ve spent time teaching dd skills and she’s learnt some. Yes. I end up wanting to slap her after half an hour. I’ve asked her to stop a few times and I avoid her now but occasionally at something like a party we’ll end up near each other. Dd has no LD and can learn skills and is getting bigger so isn’t non verbal or hiding under tables anymore...

Another likes to tell people that dd doesn’t have it for xxx reason. As in new mutual friends I wouldn’t have told at all.

It does my nut in. There’s nothing else that people get so damn nosey over. I haven’t even told people in the last few years as it bugs me that much

OP posts:
Ceecee18 · 04/12/2018 09:48

This is exactly what my mom does! My dad works in a care home and has quite a few autistic residents, who are all quite low-functioning and non-verbal or very limited speech, which is why the require care. However, this seems to have led my mom to believe any one who is higher functioning isn't 'properly autistic' and is just a 'naughty child whose parents can't discipline them'. She says the same about someone we know Downs Syndrome who (through a massive amount of support and intervention over the years) is able to be quite independent. It infuriates me.

I've spent the last 10 years studying SEN and working with kids with SEN, I think she says it just to annoy me.

SylviaAndSidney · 04/12/2018 10:01

Another one I’ve thought of, my son is the first person my family have known to have autism, so what they know of the condition is mainly through observing my son, or what I’ve told them about it.

There have been at least 3 other small children known to the family who my mum actually says to me “I think they have autism”, due to the fact they may do one of the things some children with autism do.

It gets tiring.

ellnina · 14/12/2018 22:28

Wow a lot of these comments have made me so emotional. My 19month old son hasn't properly been diagnosed yet but seeing as he doesn't say any words, not much eye contact, flapping hands (think baby shark) and not responsive to his name, I think he is on the spectrum. My mil who was a nurse in India hadn't even heard the word 'autism' 3 days ago and now because she has watched a few YouTube videos and read about it online she think she's an expert and is constantly blaming me, either for not taking him out as much as I did my 4yo daughter, or for feeding him with the tv on (I did the same with my daughter and it's the only way to get him to eat although I do feel guilty of it) I have cut down tv time and only still use it to feed him (which I know I shouldn't but is it really that bad?) but of course my mil is all about blaming me (but she didn't have a problem when she used it to feed him) sorry this is a bit of a rant but so annoying when people don't want to wait for expert advice and just think they know better

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