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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think my doctor should take my mirena out when asked???

244 replies

ScienceIsTruth · 26/11/2018 16:13

Just that really.

Went to see consultant today as still bleeding constantly 2 years after having mirena fitted for heavy periods, although not as heavily.

Asked them to remove it as it's not really helping and the side effects (no libido, etc) are really getting me down, and they've basically refused.

They want to try me on another hormonal medication for 6 months first, whilst keeping the mirena in (because I had trouble when it was put in!).
But there's a waiting list for this medication as it's an injection they have to do, and I'm looking at least an 8 week wait.

OP posts:
JudasPrudy · 27/11/2018 10:51

My GP was very good about removing the coil after only a few months but I wouldn't have it, or any LARC again. I hated having something in my body that caused effects I couldn't control and the bleeding was horrendous. I will maybe wait until I am in my 40s and have my tubes tied.

pumpastrotter · 27/11/2018 10:55

@Lougle that's exactly how mine was, but the strings were always quite long and accessible.

CharltonLido73 · 27/11/2018 10:58

I had mine put in under GA, and was lucky in that it did the job and transformed my life.
I left it in well past its expiry date and eventually had it taken out by my GP, but she is trained in this.
Please don't try this yourself, OP. Mine came out quickly and easily, but you don't know that this will be the case for yourself.
I'm sorry you are in this position!

Jefferis3 · 27/11/2018 11:03

This reply has been deleted

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SoaringSwallow · 27/11/2018 11:45

Pump has a good comparison "..When men can have plastic contraceptive implants inserted up their arses that makes their mental health and PMS so bad you're suicidal more than half the month, bleed irregularly, migraines, makes your skin break out, your hair fall out and all whilst you can feel it poking your insides when you move..."

I had had Implanon (contraceptive implant in the arm). I asked family planning dr for it to be removed because of constant bleeding. She refused. I told them I'd cut it out myself. She removed it. it's obscene that I had to threaten that.

ScienceIsTruth · 27/11/2018 12:18

Thank you all for the replies. It's just such a shame that so many others have had similar experiences.
I asked about 3 times for them to remove it, but each time she said it wasn't possible.

The drug that they want me to take is to stop the bleeding; as the mirena isn't really working. They've said this drug is the next step, and should completely stop the bleeding. It acts directly on the ovaries, and will override the mirena, which is why I can't understand why they won't then remove it, as it ceases to do anything.

Actually, I've been really down over the last year or so, and it's been getting worse this year. I often can't see the point in carrying on.
I've put that down to the stress of my other health issues (fibro & rheumatoid arthritis, and some other stuff), and my non existent B12 (64), iron(3.2), ferritin(3.8), haemoglobin(97) and vitD levels(18).

I did try last night to take it out, but no luck as I couldn't reach the strings.
I know that they're there as she did an internal exam to check.
She did this because no one had checked it's position after the surgery to insert it (2yrs 10 months ago), despite being told they'd check placement after 6-8 weeks.

OP posts:
DunkandEggAgain · 27/11/2018 12:20

Complain, complain, complain!!
This is horrendous.

Stand firm OP, I am so sorry you are being treated like this, but stand firm, kick up a stink, be 'difficult', refuse to leave and threaten to remove it yourself and come what may and it be on their heads.
You should never have to resort to acting as such but their treatment towards you is unethical and needs must.
And still complain. This is heartbreaking.
Do go to a GUM clinic for removal though, I am worried for you thinking of you removing it yourself.
I will never have the implant or a coil now.

DunkandEggAgain · 27/11/2018 12:22

Take a bolshy friend with you to back up your demands. I think they are taking advantage of you and when you are alone in their surgery room, it is so easily to feel defeated and deflated.
You need back up and support.

RoboticSealpup · 27/11/2018 12:25

This is why I'm never having an IUD.

Hogtini · 27/11/2018 12:26

Go to your local GUM clinic. I had mine put in and taken out there - both years apart but got an apt very quickly. Job done.

ScienceIsTruth · 27/11/2018 12:26

The fact that my low moods, severe pms, and no libido are all probably linked to the mirena, makes it even worse that they won't take it out.

It's awful that many of your experiences are even worse than mine.

I was so gobsmacked that they wouldn't take it out when I asked that I forgot to ask any questions. I think I was too shocked to argue or question anything too much, especially because I'd asked several times and it really threw me off balance.

OP posts:
ScienceIsTruth · 27/11/2018 12:28

Thanks for the suggestions about GUM clinics. I will call my local one and see if it's something that they do. If it is, I'll make an appt for removal, and forget to mention what the gynaecologist said.

OP posts:
bookswinebookswine · 27/11/2018 12:30

I read that it's really difficult to have it taken out as it's expensive. I just asked my dr though said it was really getting me down which it was I was very depressed and quite a physco with it. I'd go back and ask again

SkaTastic · 27/11/2018 12:31

Just to add that my GP tried to convince me to keep mine too even though I fucking hated the thing. I hope you get something sorted soon I really do. How awful for you and every one else who have had their respects ignored by health care professionals

noeyedeer · 27/11/2018 12:48

Mine started to fall out and was lodged in my cervix. Went to GP only to be told I would have to wait 3 weeks for an appointment. I was in pain, but that didn't matter.

I went home, did some googling and rang around every local sexual health clinic. A lovely nurse took pity on me and removed it the next morning, in her management time, outside of clinic hours.

Surprisingly my tummy has shrunk, libido returned and I feel much better mentally in the few weeks it's been out. Good luck finding a clinic.

theredjellybean · 27/11/2018 12:55

OP.. could it be that you need new drug and mire a to stop the bleeding?
Did you ask why they weren't keen to take it out?
I would ring the secretary of the consultant and say you were very unhappy and the consultant did not explain things and while you don't want to complain straight away you do want a call back or another urge appointment so you can get the answers

dontalltalkatonce · 27/11/2018 13:04

Just tell them it's destroyed your libido. That would be plenty enough for them to take it out. Can't image their ever expecting a man to put up with 2 years of no libido. Fucking misogynists.

ArchbishopOfBanterbury · 27/11/2018 13:04

I removed my mirena myself, with a stanley knife. Risky, and messy, but after 9 months of constant bleeding, and 3 appointments begging for removal with no luck, I felt I had no option.

I would never get a coil because a) I don't trust the NHS to respect my withdrawn consent, b) 'm not confident in my own self-surgery skills "down there" - much higher risks than a dermal implant.

dontalltalkatonce · 27/11/2018 13:15

I removed my mirena myself, with a stanley knife.

HOLY SHIT! OMG! Care to detail more?

I'm not surprised women are forced to endure medical treatment they don't consent to.

I had a Mirena years ago after DC2 and it was a disaster. I went in with my husband and voila, they took it out.

pumpastrotter · 27/11/2018 13:25

I removed my mirena myself, with a stanley knife

Not very often, I'm lost for words, but here I am. How the actual hell?! I have so many questions....Shock

But in regards to how quickly the side effects stopped after removal - literally within a week, my hair started growing back, my mood was instantly lifted and the next month or two DH was lucky I didn't break him Blush

SoaringSwallow · 27/11/2018 13:33

I think Archbischop means the Mirena implant, not coil. She did what I threatened to do to remove Implanon. It's implanted on the inside of your upper arm.

Serin · 27/11/2018 13:39

With a Stanley knife

WHAT?
Why on earth would you need a Stanley knife to do that?
I have sympathy with every single person suffering as a result of having a Mirena fitted (I am one of them!)
BUT this is the most stupid thing I have ever read on MN.

Lougle · 27/11/2018 13:41

Why a Stanley Knife????? They come out by a tug of a string. If you need a Stanley Knife, then you need professional help!!!!

halcyondays · 27/11/2018 13:48

yanbu op.
This is what puts me off getting a Mirena. I'm sure lots more of us would have them if you could be sure you'd have it quickly removed if you didn't get on with it.

FrowningFlamingo · 27/11/2018 13:53

I assume (hope!) Stanley knife poster means nexplanon implant rather than mirena coil...