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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder where to seek help re SN sibling and housing

3 replies

Goostacean · 25/11/2018 12:40

Hi all, AIBU to ask for some advice on where to turn?? At my wits' end regarding supported living provision for SN sibling (I appreciate the topic is rather niche, and it's a bit of a long one!)

My sibling moved to a supported living provision, into a house rented by the care provider for 3 tenants. This was supposed to be a long term placement although the tenancy agreement was only for 2 years initially. After 21 months they moved as the house owner would not extended the tenancy.

In the new house - the one sibling is in currently - there was a different set up. The care provider is responsible just for care, the property is owned by a large company, and a management company is to be employed to look after the property (at the insistence of the owner, and a 25 year lease was promised). It's a nice house and all tenants are settled and happy. However, the care provider, property owner and property management co cannot agree the terms and so the tenants have to vacate again - after only 8 months in the property.

The care provider is suggesting a move to a much worse property, and again only with a 12 month lease. Now the county council is involved, and the families of all the tenants are putting pressure on them to change to a different care provider so the tenants can stay in the current house.

What more can we do? Aside from writing to the council, and eventually involving the regulators? Any idea what legal advice may be available, or where we can find out more about the rights of the tenants? Moving every year is bad enough when you DON'T have special needs.... No idea how to find a long term solution.

OP posts:
DeloresJaneUmbridge · 25/11/2018 12:50

What a nightmare, it can be crap when private companies get involved,

My advice would be to see if there are any local housing associations offering supportive tenancies because at least the tenancy itself is then secure,.

Some care providers are appalling,

Goostacean · 25/11/2018 13:04

Thanks Delores, that's a good idea. It's actually got to the point where I'm seriously considering setting up my own care provider because at least then I have some control over the situation...

OP posts:
PawneeParksDept · 25/11/2018 13:58

So OP

The system you find yourself in is complicated, you haven't specified which SN your sibling has but availability of supported housing in your locality will vary according to category.

Further complicating matters is funding.

If your sibling is paid for wholly or in part to receive a care package from a care company by your local authority, or CCG then they may have more say than you in what happens next.

It sounds unpleasant but the reality is, that a person with such needs becomes a contract for tender, with an accompanying figure.

Services with availability will then put forward a "bid" illustrating what they are offering and what they are charging. This then goes to a panel to decide.

You and your sibling will have a "say" but not the deciding vote.

It is worth contacting their care co-ordinator and asking what the long term plan is for your sibling and influencing that way

I hope that helps x

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