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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

18 yr old daughter too scared to go outside

57 replies

gemlourose · 10/11/2018 21:21

her gp believes that she is suffering with fibromyalgia. at the moment she is on crutches for arthritis in her left hip and struggles severely with constant pain and fatigue. she is now dizzy/lightheaded pretty much every time she stands up or if she is stood up too long, she has also become very clumsy and dropped a boiling mug of tea earlier and burnt herself. the problem we are facing is that she has completely isolated herself from the world because of this, she lost her job which she loved, she didn't have many friends to begin but they are now slowly slipping away as she distances herself from them because she hates people seeing how ill she really is. because of all this she has become too scared to leave the house, sometime I can manage to get her out to go food shopping but that is a very rare occurrence as whenever she stands up for more than a few minutes she gets dizzy again. I work full time so she is alone pretty much constantly so she feels even more lonely, and now she is scared of going outside ever due to her fear of fainting or collapsing in public, I just don't know what to do?? I don't really know what I’m asking here but any advice would be so appreciated

OP posts:
IamtheDevilsAvocado · 11/11/2018 09:33

It doesn't necessarily have to be a cardiac type issue... More people have dizziness that goes hand in hand with:

  1. with deconditioning
  2. CFS/ME
  3. Drug side effects
  4. Anxiety...

Often the most common explanation is the most likely one... Although obviously you need to be reassured by a medic that there are not underlying pathologies

Shambu · 11/11/2018 15:15

POTS is not necessarily a cardiology remit. I saw a professor of neurovascular medicine. It's caused by autonomic dysfunction (i.e. of the nervous system) rather than problems with the heart itself.

TeeTee12 · 25/11/2021 10:34

Try Kooth for support, she can get help and support from her phone at home

HomeSliceKnowsBest · 25/11/2021 10:38

I found acceptance of my disability very tough and was in my 30 so feel for your DD. Practically, apply for PIP and ESA and a blue badge.
If you DM me your address I will send a card, could a lot of us do that to make her Birthday a bit special?
Flowers for you both.

vivainsomnia · 25/11/2021 11:14

Has low vitamin B12 been investigated?

Londontown12 · 25/11/2021 11:21

She needs a referral to rhumatology what type of arthritis does she have ? She should be on dmards of some sort to slow it down without it her joints will be permanently damaged !!! Also having arthritis myself can have the knock on affect of depression it’s dealing with pain all the time ! Big hugs please get her referred xxx

CustardySergeant · 25/11/2021 11:28

@TeeTee12

Try Kooth for support, she can get help and support from her phone at home
Why on earth have you bumped a thread from 2018?
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