It feels like I’ve been at the short end of this stick for a long time but it’s now affecting my children and that feels very different.
I won’t go on about the specifics as it’s a long story but sufficed to say my son (2) has complex health needs and investigations and waiting lists for treatment are just ridiculously long. From raising concerns early this year, it will be almost 12 months by the time we even start out the treatment he needs, if we are lucky.
The whole point of early intervention is that the earlier you get to the something, the more effective the intervention will be. I am constantly beating myself up that I can afford private therapy (he is a twin, and his twin also has no speech whatsoever so I would need to pay for them both to have SALT and OT for the one who needs it). Meanwhile they ordered some important blood tests in August and we aren’t going back to see the consultant until February for the results. He’s been diagnosed with a visual impairment but they can’t tell us how bad until he can talk, and he can’t even say one word yet - we were supposed to see the ophthalmologist again around now to talk about other options, but I’ve just realised we’ve never had an appointment through while I’ve been preoccupied with trying to sort out everything else.
This is just so infuriating. I’m on the verge of taking out a load of debt just to get him seen now - we can’t afford it but what am I supposed to do?
The whole system is shooting itself in the foot.