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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To let my daughter have surgery?

79 replies

Celestia26 · 03/11/2018 18:45

A bit of background first.......

My daughter is 3 years old and was born with a genetic congenital condition affecting the growth of her facial bones.
I suffer from the same condition and both of us have had many previous surgeries to correct it.

At a routine appointment last week, a new surgeon recommended that my daughter have surgery on her mouth as her speech is very poor despite intensive speech therapy.

A previous (equally qualified) surgeon a few months ago said that the issue with her speech can be corrected with therapy, but it may take years. Also, there is a chance the therapy may not work and she will need surgery in the future.

No one can agree! I usually go with whatever the surgeon recommends, but because two of them are disagreeing, they are asking us (husband and I) to make the decision.

My husband is deferring to me with regards to what we do. Given that I suffer from the same condition as my daughter, he thinks I am the best one to decide!

What do I decide? Both of these surgeons are specialists. There is no option for a second opinion.

The surgeon who has advised the surgery has said she will repair another part of my daughters face at the same time, so that it isn't considered a 'waste of time if it doesn't work'.

The only downside to the surgery is that it may not work. So my daughter may just end up no worse than she was before, but with the added bonus of having another part of her face repaired.

The surgery will take about 6 hours, but will increase to 8 hours to do the additional surgery.

They want us to make the final decision, and my husbands reluctance to decide means it is my decision.

Please tell me what you would do if it was your child??

OP posts:
Mymomsbetterthanyomom · 05/11/2018 02:35

I don't have any wisdom re the cleft etc,but I do with delayed speech. I know this surgery isn't a miracle surgery that she will wake up from speaking perfectly,but it will be a positive start.Yes,or outside appearance is important,more so while kids are in school,but speaking properly will last a lifetime!!
My daughter was dx with JRA at 3,which accounted for so many of her delays.She just turned 14💜
You do what you feel is best.As a mama you know it's a roller coaster never just smooth sailing. And that's for the healthy ones,lol.
Ask a million questions,even the tough ones.You will make the right choice💝💖

Sciurus83 · 05/11/2018 08:26

I think you should get her the surgery, she is young and it will be less disruptive now. There's the chance that it will help speech, and the cosmetic side will help her with her confidence. Sorry that you are facing such a tough decision, it is so hard to know what is right Flowers

Cherries101 · 05/11/2018 08:33

Do it. Plenty of medical treatments available now wouldn’t have been available when you were a kid OP. You need to move with the times and think of the best thing for her long term. If that’s 8 hours of surgery now then so be it.

MrBirlingsAwfulWife · 05/11/2018 08:44

@Cherries101 It isn't a case of the OP not moving with the times.

She has had 2 different opinions from 2 different surgeons. Even the SaLT who works closely with the family has said she doesn't know what she would do in the OP's situation.

So it is very clear that surgery is not simply the obvious choice.

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