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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask Mumsnet to diagnose me?

59 replies

Woeme · 23/10/2018 19:49

Because I give up and feel I'm banging my head on a wall.

I know you can't actually diagnose but if this sounds familiar to anyone I would be grateful for help!

I've not felt 'well' for over a year but the last few months I have felt really really poorly. All the time. Some days it's a fight to get up for work.Utterly exhausted.

A few weeks ago I started to have occassional hand tremors both lifting things which I know isn't much to worry about but resting also.
I also have weakness in that arm. There are three stacked pans on the stove. I can lift them easy with my right but not my left.
Doctor said my left hand is weaker because I don't write with it ..

Dizziness so bad I have to lie down, stiff joins, intermittent blurred vision, pins and needles, poor balance, migranes, forgetfulness and much much more.

I'm on B12 jabs already but tested negative for pernicious anemia. Doctor says I can't still be B12 deficient as you can't be deficient on jabs...

Help!

OP posts:
Woeme · 23/10/2018 23:37

Sorry I'm missing posts.
I'm 40.
MS has been mentioned before by my old doctor before we moved years ago. I had a brain MRI and I think they ruled it out but there was some weakness then. I was not anywhere near as poorly then but that's when the B12 was first tested as poor.

OP posts:
Woeme · 23/10/2018 23:38

I've had full blood tests and blood count several times. Not sure if that's how they test thyroid. Usually something comesback dodgy on my tests.

OP posts:
starfishmummy · 23/10/2018 23:43

It's Leporosy.
If you ask Dr Google it's Always Leporosy or MS and the OP says MS has been ruled out so...

SynchroSwimmer · 23/10/2018 23:45

There’s a good Facebook page on B12 deficiency offering support....

Labradoodliedoodoo · 24/10/2018 00:29

Celiac? Or gluten intolerant? Can cause iron and b12 deficiency.

Labradoodliedoodoo · 24/10/2018 08:02

Ask for a b12 retest. 80 something is troublingly low. I was 160 and could hardly function

Labradoodliedoodoo · 24/10/2018 08:04

You can pay for blue syke labs ( ? Or similar name) to test. They do nhs tests but do Home testing kits

Fretfulparent · 24/10/2018 15:23

Have you taken omeprazole or similar previously? Taking any PPI long term puts you at risk of low B12 and magnesium as the drugs can affect the absorption.

See link. Scroll down to monitoring

bnf.nice.org.uk/drug/omeprazole.html

Woeme · 25/10/2018 08:16

Yes the doctor gave me omeprazole as I had Naproxen for joint pain. This was after my B12 had been discovered. Luckily I discovered myself it wasn't a combination.

OP posts:
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