Hospital wants to send me home after PPROM. I don’t want to go. Help.

[CatsEye99]

Posting for traffic. My waters broke at home and were bright red, and I was 26 weeks with DCDA twins. I called an ambulance and was rushed to hospital where I had a huge gush of red fluid. I was counselled about preterm birth and given steroid injections. I saw a neonatal doctor who stated the most important thing was to deliver at a hospital with NICU cots.

Despite severe agonising pain, a week has passed and I haven’t given birth. Twins aren’t distressed and my observations are fine.

However I feel incredibly unwell. I keep burning hot and turning red but my temp is not raised. I feel like I have the flu or another illness. I have no energy and can barely move due to pain. Codeine won’t touch it. A midwife told me to have a hot bath which I am sure is contraindicated.

The staff want to send me home. I have stated I do not want to go home due to me living an hour from the hospital and the risk of infection, cord compression, preterm delivery and stillbirth. I do not want to lose my babies. I want to remain in the unit with NICU like the doctor advised.

Can anyone give me any advice? I can’t find any info on this anywhere and feel like the staff are fobbing me off.

I’m so sorry you’re experiencing this. If you feel able and woukd like to I could look into PALs for the hospital you are in and look into whether any other hospitals within 40 miles have better neonatal units? I really feel for you, it doesn’t sound like you are being looked after. How is your relationship with your partner/mum, are they able to be assertive if you don’t feel up to it? X

So glad your DP is on his way. You need someone to stand firm with you. Ask to be put on a monitor. Tell the staff exactly what you’ve just said here - that you need reassurance your babies are ok, you want to know why you are in so much pain, you need to be taken seriously and you want to know that your babies matter. Because all of these needs are entirely reasonable and should be attended to. I agree with ThanksHunkyJesus . Don’t be worried about being labelled a troublemaker. Sometimes it’s what gets things done unfortunately.

I would be inclined to refuse to leave until you have spoken to someone who can reassure you and come up with a plan

They keep telling me the pains are Braxton hicks.

But they've been almost constant for 24 hours and have me doubled over unable to move.

They've also said I can't go on the monitor yet as I am too early

(Sorry meant to add if you’d like me to you can pm me with hospital name, I won’t ask your name or anything but could look into their policies and other local hospital with scbu/neonatal care. My dd has tetralogy if fallots. It wasn’t found out until after birth and I had to really fight to be taken seriously, I was only 15 at the time. I’m not suggesting there is anything wrong with your babies but just that I know a lot about having to fight your corned and into looking into policies and procedures)

I wouldn't be happy to leave OP. Good luck.

No, I’m sorry but BH shouldn’t have you doubled over and at 26 weeks you are far along enough to have a monitor on to trace contractions.

I didn't think BH should be like this either. I've also told them my babies movement patterns have changed but they listened in and said they were fine and aren't concerned.

I really want the Dr to come. It takes an age for anything to happen here. Took 2 hours to get paracetamol earlier.

How horrible for you ☹️

Please call PALS now. You may find that they are only there during office hours.
I’ve worked on a ward and this sounds like VERY poor practice at best, and negligence at worst.

Don't just refused to go, it will look bad and you are likely to be labeled troublesome

I don't think I'd mind being labelled troublesome myself. Nothing like the OP, but when I'd been having strong, frequent contractions for a week (like a maximum of 20 minutes sleep in one go - I was in pieces), but wasn't dilated, I just refused to leave the hospital - I told them I wasn't coping, and something needed to be done. I stayed. I had an EMCS.

The care you're receiving sounds quite frankly terrible and they're doing nothing to help to reassure you that everything is ok. Keep making a fuss.i hope your dp is there. If he is feeling overwhelmed and not very confident then do you have a very strident friend who will come in and make a fuss on your behalf?

OP, listen to your body and stay put. Ask to be reviewed by the consultant(s).

Op this does sound bad. I don’t understand why they aren’t monitoring your contractions ? I also wonder if going to a different hospital might be a good idea.

Have you ever had a premature birth at 27 weeks??

The op is doing exactly the right thing by stating she is not happy to be discharged I would be unhappy too in her position.

A midwife found me crying and beeped the doctor. She then came back and said

"How bad is it though? Is it still REALLY that bad? Because the drs Are about to do an emergency cesarean. So they need to decide whether to come to you first."

I didn't realise emotional blackmail was a part of maternity care.

Just holding your hand

I’ve had pprom more than once and I wouldn’t be happy to go home in your position. The monitors didn’t even pick up my contractions with ds3 but he was born an hour after putting me on the monitor. It was a very good thing I was still in the hospital 💐

Well they are lying to you. If they were about to do an emergency c section they wouldn’t give you the option of coming to you first

You need to complain about this care, it's shockingly insensitive at best :-( and negligent at worst.

My waters broke at 31 weeks with my twins. They told me I had to stay in hospital until the twins arrived as risk of infection so high and I needed to be near nicu. So I definitely wouldn’t be happy with being discharged. Stand your ground. My twins came a few days later after a night of contractions and then a c section.

Jesus. She said that to you?

Please say you’re on the phone to pals right now. This is awful. If you want to pm me the hospital I’d happily do some research into trusts and complaints procedures - and maybe find an alternative hospital

The midwife should not have spoken to you in that way. She should have said that the doctors were involved in an emergency c-section at the moment, but would be with you as soon as possible afterwards.

Complain about this treatment. It absolutely isn't good enough. Hell, they don't seem to have even assessed you properly, so how do they know that your case isn't also CV an emergency.

OP I know people on here mean well, but I think they are makin you panic and feel worse.
Although of course every case is different, your consultanys are dealing with this sort of thing day in , day out they have access to your notes and test results and have examined you, and have access to more specialised advice if they need it.
They have years of experience and training and they know what the most likely scenario in our case is.Mners are a collection of randomers with little if any training ,a few anecdotes and lots of opinions.
Please try to put you faith in those who know your case and have the knowledge and experience