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Hospital wants to send me home after PPROM. I don’t want to go. Help.

780 replies

CatsEye99 · 15/10/2018 12:20

Posting for traffic. My waters broke at home and were bright red, and I was 26 weeks with DCDA twins. I called an ambulance and was rushed to hospital where I had a huge gush of red fluid. I was counselled about preterm birth and given steroid injections. I saw a neonatal doctor who stated the most important thing was to deliver at a hospital with NICU cots.

Despite severe agonising pain, a week has passed and I haven’t given birth. Twins aren’t distressed and my observations are fine.

However I feel incredibly unwell. I keep burning hot and turning red but my temp is not raised. I feel like I have the flu or another illness. I have no energy and can barely move due to pain. Codeine won’t touch it. A midwife told me to have a hot bath which I am sure is contraindicated.

The staff want to send me home. I have stated I do not want to go home due to me living an hour from the hospital and the risk of infection, cord compression, preterm delivery and stillbirth. I do not want to lose my babies. I want to remain in the unit with NICU like the doctor advised.

Can anyone give me any advice? I can’t find any info on this anywhere and feel like the staff are fobbing me off.

OP posts:
sausagerollssss · 21/10/2018 08:09

Thinking of you and your babies xx

Haggisfish · 21/10/2018 08:14

Good luck and lots of tea. Brew

DaisyStarburst · 21/10/2018 08:16

I have no experience of this but have been following your posts and praying for you and your babies

MyNewBearTotoro · 21/10/2018 08:16

Good luck to you and your babies Flowers

ihatethecold · 21/10/2018 08:16
Flowers Thinking of you op x
ButtMuncher · 21/10/2018 08:17

Thinking of you OP - you've been amazing so far xxx

LakieLady · 21/10/2018 08:23

All my best thoughts and hope, OP. Flowers

AwolFlower · 21/10/2018 08:29

I hope you're all doing ok @CatsEye99
You'll be an amazing mum to your precious twins, you've fought so hard for them already Thanks
Wishing you a comfortable recovery and lots of strength to your babies x

KoshaMangsho · 21/10/2018 08:31

Good luck and love from my family to yours. As the mum of a 26 weeker please ask me any questions you may have once the babies are here. It is v v overwhelming at first. I hope their NICU journey is as smooth as it can possibly be.

ohfourfoxache · 21/10/2018 08:33

Thinking of you and wishing you luck xx

ineedwine99 · 21/10/2018 08:33

Thinking of you OP 

askmenothing · 21/10/2018 08:33

Good luck!! My 26 weeker is snuggling me and showing me games on her tablet as I type. NICU can be scary. Feel free to PM me with any questions. More than happy to meet for a brew if you are NW.

Zoflorabore · 21/10/2018 08:37

Good luck op :) hope everything has gone smoothly for the 3 of you. Your gut instinct
was right all along.

Sending you love Flowers

HashTagLil · 21/10/2018 08:39

Thinking of you all OP. Flowers

PoshPenny · 21/10/2018 08:45

Wishing you and your babies all the best, you've had a very rough ride and I've everything crossed for you! Looking forward to the update when things have settled down a bit. I really really hope all three of you are Ok 

peachsquish · 21/10/2018 08:52

Thinking of you all x

Kangaroo1 · 21/10/2018 08:54

Good Luck Op. Thinking of you Flowers

NoSquirrels · 21/10/2018 08:55

Sending love Flowers

TamiTayorismyparentingguru · 21/10/2018 08:58

Thinking of you OP - as a parent of twins I know hoe scary it can be. Mine were born a bit later (34 wks) but still spent a few weeks in the NICU / SCBU. It’s scary, it feels like you have no control over anything and it’s stressful. BUT - it is the best place for your babies and everyone is working to get them home and healthy.

I agree with PPs that you should complain about how things have gone this past few weeks - not to blame or cause trouble, but so that staff/departments can learn how to care better for other patients and ensure your treatment is never repeated.

But that’s all for another day - your priority now is on you and your babies getting healthy and strong as soon as you can. Focus on that - the rest can wait

LuubyLuu · 21/10/2018 08:59

Thinking of you from the other side of the world. What an incredibly difficult and painful and frustrating week you’ve had.

I do hope everything is ok X

ThrowThoseCurtainsWide · 21/10/2018 09:00

I hope you're all doing okay OP.

CatsEye99 · 21/10/2018 09:03

Had antepartum haemorrhage. Twin 2 had placental abruption. Twin 1 was fine but twin 2 very poorly and we don't know prognosis. Thanks for the support you have all been friends to me tonight.

OP posts:
ohfourfoxache · 21/10/2018 09:07

Oh Cats, thank god they went in when they did and didn’t leave you any longer Thanks

You are strong and brave, and you should be proud of yourself for insisting on the care you so obviously needed

How are you feeling?

CatkinToadflax · 21/10/2018 09:11

I'm overwhelmed by how brave you've been in constantly advocating for your babies over the past couple of weeks. You've been amazing and have given both of your babies the very best start possible.

My 24 weeker, who had a very shaky start and was extremely ill for a long time, is now 13 years old and is currently stomping round the house shouting at us all. Dreams can come true. Hang on in there Flowers

everythingthelighttouches · 21/10/2018 09:12

Congratulations on your beautiful twins cats!

I've just come back to the thread this morning and have been reading of last night's events in horror.

Try to forget about it for now because you have a long old road ahead of you.

You will find NICU a world away from the care you have previously received. They are amazing. You are in a level 3 unit, one of the best in the country. You and your babies have already proved how strong you are.

What are their birthweights? Are they ventilated?

How are you feeling? When you are ready, i think the nurses will be taking you down to NICU in a wheelchair to see them.

Sending lots of love and strength. From a mum of 28 week, very poorly and growth restricted boy, who is now charging around my living room dressed as a cat with a crown on Smile xxx

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