Re milk times, we leave for school at 12 so he gets fed before we leave then milk on, normally finishing mid route.
I pick up at 3.15 and he's normally hungry so he gets a snack and then milk once we're home (4 is) and family dinner is 6.30 ish so try and give him time to eat before turning milk on but he goes bed at 7 so it's pretty tight.
The alt is getting a feed in overnight and that's crappy for us all.
If any milk fed gets missed or dropped it tends to be that 4 pm one (didn't have it today as we got home late and he'd had a big snack)
He is in half days atm abd will go full time Sept 2020. Impossible to predict what his eating will be like by then as a year ago he didn't even drink water. Ideally if he's still tube fed (could be totally off by then) he'd have milk before and after and not at all during school hours so he'd need to eat enough orally at break times and lunch time and then we'd top him up with milk. I'd love him to be tube free or down to one feed in a years time!
Slightly worried of writing what he had today.
Bfast: Two tablespoons of chocolate cereal, dry. Special milk
Lunch: Two small circles of ham. Special milk
Snack: packet of Tyrells crisps (whole packet!) and 2/3 of my small vegan chocolate cake (seemingly ravenous but no where for proper food and he LOVES strong flavoured crisps)
Dinner: 2/3 slice of cheese on toast, but he pulled the cheese and soft bread off the toasted side and left the hard bit. Special milk
He has a poorly throat and tonsils so I'm even more lenient that usual.
He does have plenty of water and a multivitamin