To ask if anyone has had blood clots in the lung treated (hand hold)

[zigzagbetty]

Have just been told I have multiple blood clots in my lungs and am getting moved to a respiratory ward. Bricking it a bit and need a serious hand hold and some positive stories

Not sure yet what the cause is yet, Dr said thats the next step. I would ask the Dr but i have moved wards 3 times and spent most of today in a bed placed in the middle of a bay as there was no room when i got there missing the rounds as a result.
Thankyou all so much for telling me your stories. I've stopped panicing now and am trying to relax (managed to bag a side room by some myrical tonight!)

Miracle!

@zig. When I was on warafln if I ate too much brocolli then when I had my blood tests - weekly - it would show a untrue reading and send it sky high

It said in booklet what to avoid /eat less of

Though as I said this was 10yrs ago so maybe things would have changed medically

This has certainly given me lots of questions for tomorrow when I do see the doctor

DH has this. They did the op where they pump/inject the site (as it was between the lungs) with anticoagulant (instead of putting lots in you to go all over)
He was fine after. for you

Dh did 3 weeks before our wedding he had pneumonia and pleurisy as well. He was on blood thinners for a while after but still made our wedding although he was shattered. He ran a marathon 13 months later.
Was only actually in hospital for a few days was sent home with half the pharmacy.

I have. Massive bilateral PEs, unprovoked. I was in hospital for a fortnight and had to have surgery. It was a horrendously painful experience and the day I was admitted they told me I might not last the night. I was on warfarin for months along with fragmin injections at various points.

It was several years ago now but the effects have been long lasting. I have persistent chest pains and breathlessness and am nowhere near as fit and able as I used to be, and it took an immense toll on my mental health too.

Plus if you get preg I then Needed daily fragmin injections through whole preg and 12w after

A bruised preg belly isn’t the most sexy sight

I then changed to legs

And this was 10yrs later and was surprised still needed

Warfarin is quite old now, the newer drugs like Apixaban and Dabigatran arent affected by what you eat and youre more likely to get one of those.

Have been discharged and am on warfarin tablets and the daily injections. The likely cause is the hormone tablets my gyno started me on last month.
Feeling a bit better in myself but still so tired and weepy. All your stories and advice really helped my and my DH, thankyou all so much!

I also had them due to taking the pill! But although it does take FAR longer than the NHS website will tell you to truly recover, you will. And shouldn't need to be on the thinners for life either if it's your first incidence.

Look for a FB group about PE if you're on there. I found the one I joined a great help in the early days!

Hormone tablets can cause blood clots.

The good news is that if they catch PEs early enough patients can do very well. I had a patient once who had a PE. He was a bed-bound older gentleman who was frail. He recovered fully. I think he did die some time later but it was unrelated to that incident.

Agree with being careful with leafy greens and broccoli. Note that this is specific to Coumadin because vitamin K is an antidote to Coumadin. (If someone is taking an injected anticoagulant or one of the new direct oral ones you don't usually need to worry about it; they work on a different part of the clotting cascade.)

You will want to watch carefully for signs of bleeding - easy bruising, bleeding gums, blood in your urine. If you notice black stools that resemble tar you need to let your provider know IMMEDIATELY because that could mean you're bleeding into your GI tract.

Also, make sure you're going for your scheduled blood tests. Coumadin dosing is highly individualized and it's based on your blood test results. (I have actually had patients who took one dose of Coumadin on certain days of the week and a different dose on the other days. That's how individualized it is.)