To be fed up of feeling ill

[Hippopotas]

Background I’m on immunosuppressant medication.

I get ill a lot now I’m on this and it’s draining. I’m just fed up of feeling so rubbish most of the time.

I really feel for you.

I feel exactly the same. I'm in bed by 8pm every night and I'm finding work a huge struggle. I feel like I've retired from life. I don't enjoy anything now because I just feel unwell all of the time.

I'm sorry that I can't offer any ideas but you aren't alone in feeling like this.

I put the best face on it over the weekend after having vomiting and diarrhoea last week. Last night I was vomiting again so this morning calling the doctors to go and see them. DH is unhappy because I will be having another day of work and thinks I’m faking.

Why is your DH cross that you are having a day off of work?

Cause I’ve been off recently for surgery so was off for a long time. I think he’s worried they will sack me for absence reasons.

Being concerned is one thing but thinking you are faking?? How does he think you are faking it - does he think you are sticking your fingers down your throat to make yourself sick or something??

His lack of support and accusations of faking illness when you are on a medication that suppresses your immune system so clearly must have other medical issues, in order to need them, is a big issue here and is probably massively contributing to how fed up and unhappy you feel!

I'm in the same boat. I know it's easy to say but try and not let it stop you.

I always use to feel that because I didn't 'look sick' therefore I was just being lazy when fatigue or pain came on. I now just try and listen to it - keeping levels of activity at roughly the same level each day, making plans for quiet evenings in when I know that work will require more physically/mentally, having energy drinks around for the 2pm fatigue slump.

It's shit. Good luck - I hope your OH becomes more understanding and you feel better xx

Been to doctors turns out I have gastroenteritis. I’m not allowed to go back to work according to doctor until at least 24 hours after last episode of diarrhoea and vomiting. He thinks it’ll settle itself but it taking longer due to immune system. I have a temperature of 38 and I need to get some special stuff from pharmacy to go in my water to keep me hydrated.

I know just how you feel. I have been hugely unwell for the last 4 years (hospitalisation for a week every 3 months, months at a time off work, lost 10 stone in weight - looked anorexic, vomiting 6-10 times a day, horrific abdominal pain) and then I got a new Consultant, back in April. He admitted me for 10 days and started from scratch. Took me off all my meds, ordered scans, biopsies and investigations and lo and behold, found out exactly what was wrong with me! He started me on new meds and I'm a different person!

I felt like I was a shadow moving through my life, I couldn't join in with my DCs, couldn't enjoy anything, just wanted to be in bed with a hot water bottle - and now it's like I've been reborn.

Can you ask your GP or Consultant to have a review of your treatment plan? Sometimes we are so fixed at going along with what the Doctors tell us, we aren't aware that there might be other options which can make a huge difference.

With regards to your DH thinking you're faking, why not take him along to your next appointment and ask the Consultant, in front of your DH, what your DH could be doing to support you - it might make him buck up his ideas. Really good luck on feeling much better very soon xx