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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Upset about MASSIVE mistake on medical record.

38 replies

Humptyfelldown · 19/07/2018 12:25

Firstly I know this will out me to my previous username if anyone remembers me (unlikely), and secondly I know this will seem extremely small to everyone else, but this is a huge fucking error to me.

I've been referred (again) as I can no longer cope with the pain from my ankle osteoarthritis, which has never really been diagnosed properly (i.e. never had a standing x-ray, extreme pain in other foot that they refuse to x-ray), it was caused by my ex breaking my leg 28 yrs ago apparently, but has got worse in the last few months to the point I can no longer walk at times.

Anyway that's not the problem. In the referral letter the GP has listed my entire medical history. Including one normal delivery and one emergency caesarean.

It then states I had an intrauterine death of a full-term baby and was going to be induced on the date of the death and the birth recorded that day . That was all they have on the file. I remember my GP at the time thought I had been induced, and was confused when I phoned her before I'd been induced!

What actually happened - My daughter was due to be delivered by caesearean, ironically the day was booked for the day after she died. Then when we discovered she'd died, the consultant decided it was better for me, to deliver vaginally, despite the fact I'd had a caesarean 16 months before, and the fact that she was transverse (her head was under my ribs and feet by one of my hips). The contractions would 'squeeze' her into position, I was assured, although I wanted a caesarean.

I was induced, and endured 35 hours of labour. It went on over a weekend and the consultants weren't there. The shitty midwife argued with the registrar about increasing the oxytocin; he wasn't happy, due to the increased risk of rupture (previous caesarean), but she did it anyway (baby was still transverse). I was vomiting by then.

I then felt something between my legs - the umbilical cord was out - baby still had its feet by hips, head under ribs. Registrar came in. Other doctors came in, I was rushed to theatre, my uterus had ruptured.

I wasn't put to sleep. It took ages to get the baby out. They had to do a T section, I started to feel ill, alarms went off, they declared a code red. They called the consultant in from home. My blood pressure was so low almost not registering, I was so thirsty.

Eventually I went to recovery. Lots of doctors with me, still having blood transfusions. They put a special blanket which they blew up with a hair dryer attachment thing, shitty midwife complained I didn't need it. She then made me sit up. I started bleeding so had to stitched up again.

I lost 3.5 litres of blood. Had damage to my ureter. At 6 week check -up consultant thought I'd been to sleep, and said I must have been as it was 'protocol'.

I cannot believe this is missing from my medical record. I've been diagnosed with PTSD after this, but only due to my daughter being stillborn, not the whole trauma of the surgery. The fear I was never going to see my other children again.

I'm being ridiculous really?

OP posts:
UpstartCrow · 19/07/2018 13:57

Can PALS help you get your records put straight?

emoji · 19/07/2018 14:00

Fucking hell. Not BU at all and I'm so sorry this happened to you. I know it's not entirely comparable but I lost my son at 20 weeks due to a midwife not registering me as high-risk at my booking in appointment (even after I told her of my long history of complications and surgery on cervix and IVF). I contracted an infection and went in to natural labour. Son born alive for 3 minutes and we have a BC and DC for him (that was a fun day at the Council! (not)).

2 days after I gave birth I discovered I had retained placenta and had to be rushed back to hospital for surgery.

The whole thing was a farce and we are still in the process of suing the Trust (many years on).

I hope you get your situation resolved x

ConkerGame · 19/07/2018 15:00

OP I’m so sorry you’ve gone through this. Data laws have recently been greatly strengthened in favour of individuals so you do have rights here.

The first thing is that as this is just a referral letter, it might just be a summary if the thing you’re being referred for has nothing to do with birth. You need to write separately to the hospital and your GP and say you want to make a request for your full medical records under the GDPR (General Data Protection Regulations) and Data Protection Act 2018. If you check on their website they might have a specific form for doing this. They have to comply within 30 days and cannot charge you for providing them.

Once you have the records you can check if anything is wrong or missing and if it is, you can write to them saying you want to exercise your right to rectification and set out what needs amending. Again they have to comply within 30 days and can’t charge you for making the change.

Really hope you get it all sorted Flowers

itchyknees · 19/07/2018 22:09

As a previous poster said, every mother reading this will be heartbroken and outraged on your behalf. I hope you find a way through this that gives you comfort. I’m so very sorry.

bertielab · 19/07/2018 22:20

I am heart broken for you. I'm crying reading your story.
Yes, I think you need to write and access your GP and hospital record and read what is recorded for yourself.
Did you ever have a meeting with the hospital about what happened?
That's absolutely hearbreaking and I had PTSD after my c section -and mine was NOTHING compared to yours.

Can you make an appointment with your GP practice manager and talk through your notes?

A massive hug for you.

RelocationRelocation · 19/07/2018 22:34

So sorry for your loss OP Flowers

PersisFord · 19/07/2018 22:39

I’m so sorry about your little girl Flowers

OlennasWimple · 19/07/2018 22:40
Flowers

Of course it is important to you that the records are correct. Of course. That shouldn't need any further consideration really

A bit tangential, but are you sure that your PTSD is not connected to the experience itself, as well as the tragic loss of your baby?

scarletbee · 19/07/2018 22:43

I'm so sorry about your DD and everything you went through.

I think I would make an appointment to see the practice manager so you can discuss with them exactly what information is being held on your file. It could well be that it was just a summary on the referral letter, although I know it must feel so cold of them to not have the details laid out.

Thanks
WibblyWobblyWho · 19/07/2018 22:49

I'm so sorry OP

Llanali · 19/07/2018 22:57

I’m very sorry for your pain and loss.

One thing, the bonnet. For your info, and you may or may not be aware, but midwives are specifically advised by still birth charities etc. to use bonnets that tie under the chin to help keep the shape of a still born baby’s head. I’m not defending her actions, just explaining this element.

Mollywobbles82 · 21/07/2018 17:29

I'm so sorry to read this OP. It is indescribably horrific and you are absolutely not being unreasonable. Those involved in your care should be hanging their heads in shame. I wish I had something better to say.

nellly · 21/07/2018 18:11

Oh lovely, that's awful.

But in terms of the record. There is no 'medical record' I've worked a lot of years in legal services for social care and we often get full transcripts of medical
Records for cases. You have to approach each dept individually. So we often have a go record, a hospital record, a health visitor record, an ophthalmology record, x Ray library record, mental health records.. you get the picture.

It's actually a terrible system because lots of important information gets lost along the way that should be passed on and I'm certain some neglect/abuse cases would be picked up quicker with a central system, but that's a different post!!

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