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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to be upset I now have hypothyroidism

54 replies

Sotiredallthetime · 18/07/2018 11:48

Namechanger as I want to moan.

I am so sick of being ill.

A few years back I had lost loads of weight, good diet, running regularly.

Then it started. Gall bladder problems lead to its removal and then onto Bile Acid Malabsorbtion aka bowel disease. Life long condition which keeps me house bound at times and I take 49 pills a week just to allow me to leave the house.

Followed with years of tiredness whilst I put on six stone in weight. I was falling asleep every time I sat down.

Diagnosed with sleep Apnoea and now I have a bipap machine and a horrible alien face mask. I have wear nightly. The clinic have told me even if I lose the weight, I am likely to stay on this machine, as I have always snored and struggled to breath overnight when I was slim.

Then my bowels played up even more than usual. I was diagnosed with IBS and put on the low fodmap diet. Which I have lost a lot of weight on but I have to stay on for life.

But I was still exhausted and falling asleep during the day whenever I sat down.

Now the thyroid levels which have been borderline for the last 10 years, have changed and I am now diagnosed as hypothyroidism :( My TSH level is now 10.

So I need to start taking another set of thyroid meds. Plus I need to take Vit D and folate, as my iron and Vit D are boardline too.

So now I am still fat (through losing with difficulty), often housebound and restricted by access to bathrooms when I leave the house, on a very restrictive diet, so I can't eat out or enjoy my food, have so many pills to take that I rattle and I am STILL TIRED.

AIBU to be be upset about another health issue, I an only in my 40's and I am so sick of feeling ill all the time. I forget things, I feel like I am in a fog, not on the ball.

Tell me to stop being pathetic and to get on with things. I know it could be worse, other people have more to deal with than I do. I am lucky to have a lovely husband and children.

But today I just feel so down and sad and 'Why me' :(

OP posts:
Sotiredallthetime · 01/10/2018 12:09

Interestingly, I got my figures from Dr Tift book and they are lower/higher than I thought !

Online people have said TSH between 1 and 2 and a Free between 15 and 20 should give good results for the patient.

The Toft book suggests TSH of around 0.2 and a Free between 20 to 30 ! (As some patients benefit from a higher Free level)

Where as I am at TSH 3.6 and Free of 13.1 and that is fine !

AIBU to be upset I now have hypothyroidism
AIBU to be upset I now have hypothyroidism
OP posts:
Severide08 · 01/10/2018 12:43

I also need my tsh to be suppressed to actually feel something normal. One of the gp's at the practice didn't like this ,told me it was dangerous etc until I provided evidence to the contrary and I complained and they had to apologise to me and now they let me stay suppressed Grin

Sotiredallthetime · 01/10/2018 15:09

What level TSH and Free T do you aim to get to ?

OP posts:
Namebot · 01/10/2018 19:32

Honestly, even with a low tsh and upper quartile of t4 I felt rubbish so I persuaded my endocrinologist to let me have a trial of t3. It made a significant difference but I had to spend 18 months failing to get significantly better on t4 alone.

I have not checked my blood results for a while - I know my bloods are “fine” based on my annual check and I feel mostly well.

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