To asking probing questions if you were diagnosed with coeliac disease as an adult

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Just that really.

What symptoms did you have? Did it happen completely out the blue?

I’ve been having lots of health issues due to an existing condition suddenly worsening despite medication (that previously helped) and a healthy lifestyle. My gp made me run through all the random extra symptoms I’ve been having and thought a blood test for coeliac disease would be a good idea

I don’t have the classic symptoms so was wondering if adults tend to present differently to children?

Hi

I had none of the classic symptoms at all, but ended up in hospital 12 years ago with stroke/brain tumour symptoms - paralysis down one side of my body, inability to speak and huge mental confusion. I was 37 and it was terrifying. The hospital kept me in and I had a CT and MRI brain scans which showed nothing, as well as tons of blood tests which showed nothing wrong with my heart but diagnosed me as coeliac.

I'd always been anaemic since trying to give blood when I was 18, but it had been put down to having heavy periods - we now know this was due to being coeliac.

I think I was always coeliac but undiagnosed and my body had finally had enough!

I've been gluten free since then and had no similar symptoms since .

These days though, if I ever eat anything with gluten in by mistake, I get very poorly- D&V within the hour- so am obviously very very careful with what I eat. I have osteopenia and folate deficiency but my anaemia is pretty much sorted- all in all my health is pretty good and I just have an annual check and blood tests.

I was diagnosed 14 years ago, aged 20. The only symptoms that flagged my GP were weight loss and anemia. Looking back, my mum said I always had tummy aches and constipation as a child, so I could have had it all along. When I compare how I am now to my late teens up to diagnosis, it’s quite a big difference. I remember constant exhaustion, headaches and generally not feeling right. I never knew that I was probably ill until I realise how much more energetic and clear headed I feel now!

I was diagnosed 7 years ago at 42 by that stage I was in a wheelchair

I have hidden coeliac disease due to immunodeficiency, I had developed M.E fibromyalgia, balance issues, severe reflux, chronic headaches and massive vitamin deficiencies

In turn I had pernicious anaemia, stocking and glove nerve damage due to this

7 years on I can walk without a stick but have to be careful as the damage due to loss of vitamins has left permanent damage, I’m still grateful every day it was found in time