Fed up need to vent.

[jmh740]

My oh has MS he was diagnosed 2 years ago still new to us. He was also diagnosed with a heart condition at the same time.This weekend I booked a weekend away for his birthday. He didn't feel well we were away about 200miles from home. I'd booked an activity on Monday and I spent a lot of time doing it by myself while oh sat on a bench and rested. I'm sick of this stupid disease I'm trying to be strong for him and the children but who is being strong for me.its heart breaking to see the man I married cry because he can't do the things he used to be able too he sold his golf clubs last year, hasn't renewed his football season ticket, he can't enjoy the things he used to love he can't have a kick around in the garden with ds. I've no one to talk to he's been to the doctors today and now they want to run tests for cancer how much more do we have to go through?

Nothing useful to say but you sound like you need some TLC. Do you have a good support network? Could you get away for a spa day or weekend at some point? Sounds like you deserve it (x1000)!

It is a devastating disease and most bring daily misery.
I hope you find support for both of you as he can't help it.
It is hard to be the strong one but right now you don't have many choices.

OP contact your local branch of the ms society and find some support for all of you please.
In terms of life changing conditions you are still in the very early stages of coming to terms with it, things will feel very different as time passes even if your DH's health deteriorates.

He sounds depressed, there is no reason why he can't enjoy activities like football and maybe even golf but it will be in a different way.

I have severe disabilities myself and have a son who was diagnosed with MS seven years ago, thanks to the MS society he changed consultant, started a brand new medication and it has significantly slowed the progress of the disease. He had a few dark years but is now a very happy fulfilled person, yes he's ill but life is good. There are huge advances being made in this area. Please get some support in rl and make sure schools know so that they can support your DC's.

Thanks. I contacted the local ms society when he was first diagnosed they were not very helpful they have meetings but they are held during the day in an old people's home the chair person said all the members were elderly, we are in our 40s with young children he even said he didn't think they could offer us much. He's been to see the gp today he was there for over an hour he didn't want me to go with him. When he was first diagnosed the consultant was really good but he left to work in Liverpool which is about 50miles away. The new consultant was not very good the gp today has suggested he is referred to Liverpool so he can see the original consultant. He's rrally happy about this idea. I work in the children's school they all know about oh but there isn't much support for the children.
I know he can't help it at all I'm very frustrated after this weekend when I'd spent a long time organising a night away arranging surprises for oh and the stupid MS got in the way of him being able to enjoy it fully. We've not had an easy time of it since we met and finally it felt like life was failing into place and getting better and then we were hit with this.

I just feel very isolated at the minute I don't have a lot of friends and feel I have no one to talk to about everything

Hi my husband has a medical condition not ms but he has flare ups and bad/good days and other associated illnesses. He was diagnosed shortly after we got together 10 years ago and we have 2 young children. In all seriousness it's hard as beep at times to have to hold everything together and to do everything and worry about how the kids are (or if they will get it) and really it's not fair and you can't really tell anyone how hard it is on you cause your partner is worse. I ended up going for therapy last year just for someone to talk to about everything and to be honest it helped but then it's back to the usual. You just have to try to enjoy the good days and hope the bad days don't come at the wrong time!.... dont think anything that I just wrote will help really but just trying to say keep your chin up!

I’m so sorry. We lost my father to MS complications. Unfortunately you need to take each day as it comes, some days will be great and normal, others not so much. My father was diagnosed in his 40’s too, is it progressive or benign?