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AIBU?

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Original poster

DLA after remission

15 replies

user1478197457 · 28/05/2018 01:25

My child was diagnosed with Leukemia in Jan 2016. She was awarded DLA for 3 years which expire on April 2018. Last week she finished her 28 months treatment. Now she will have to go to hospital every month for review. Should I tell them to stop DLA or carry on until it expires. I have just came out of big test in my life and dont want to get any thing I am not entitled for. Plz advice.

OP posts:
frasier · 28/05/2018 01:28

It is expired isn’t it?

steff13 · 28/05/2018 01:39

I assumed 2018 is a typo and OP means 2019. I'm not familiar with the benefit, but if she's entitled to it for another year, I guess I'd take it.

Littlebluebird123 · 28/05/2018 01:40

I don't know much about this so maybe someone more knowledgeable will come along.
But if it was awarded until April 2019 (I'm assuming typo) then it's presumably because of the 28 month treatment and the fact of the regular checks as dd will still need time to recover. She's not going to be 100% for a while so this gives you a little leeway to continue care.
That would be my assumption.
But congrats on getting through the treatment! Brutal time. And I hope dd is fully on the mend now. Xxx

Birdsgottafly · 28/05/2018 01:46

"I have just came out of big test in my life and dont want to get any thing I am not entitled for"

Your not entitled to it, your DD is. It isn't a usual part of childhood to go to hospital monthly, or go through what she has done. She still has medical needs.

You would be very wrong to tell them to stop it.

SusanneLinder · 28/05/2018 02:57

Your DD will still suffer the after effects for some time, such as fatigue etc.Its not the condition, its how it affects her

Original poster
user1478197457 · 28/05/2018 04:24

Thanks for advice. type mistake. expire on april 19.

OP posts:
AllyMcBeagle · 28/05/2018 05:15

It's a significant change to the medical condition which needs to be reported:
www.gov.uk/report-benefits-change-circumstances

Whether it should be stopped/reduced/continue will depend on your daughter's care needs going forward. If she is likely to still suffer from eg fatigue then she might still be entitled, but you do need to report the change so that DWP can determine if they need to reassess.

Birdsgottafly · 28/05/2018 05:23

The change should be about how your DD's health is day to day and her care needs etc, if there is any. That is why Cancer patients still get it, after they are considered not to have it. Their body isn't yet fully healed and there can be relapses, if any infection is picked up. That is as well as the physical effects, often yet to appear, of the treatment.

It is more cost effective for people to hang on, than have to reclaim it. You haven't been awarded it because of the medical treatments, you get awarded it on Care Needs.

jaseyraex · 28/05/2018 07:07

My little sister had been in remission for four years and was still receiving dla. It depends on the care needed, not the treatment itself. All you need to do is notify them of any changes and they'll reassess but likelihood is she'll still be entitled to it for a while.

TestingTestingWonTooFree · 28/05/2018 07:11

It’s based on her increased care needs. Report the change in diagnosis but be clear about whether there’s been any change in her needs or not.

Shednik · 28/05/2018 07:33

Don't report it. Dla is so hard to get, they will use any excuse to take it away.
Wait until you have to renew.

woodwaj · 28/05/2018 07:51

You can resubmit before it runs out and you should with current information. If you are no longer entitled you won't continue to receive it. However don't presume you are no longer entitled without trying! DLA is for the additional things you do day to day compared to 'normal' circumstances. You may just receive a lower rate rather than it stop

SusanneLinder · 28/05/2018 08:03

As someone who deals with benefits daily, again unless there is a significant change in care needs-and I doubt that one week post treatment- you don't need to report it.
I know its a different benefit, but ESA still award for a year post chemo as it is likely that vast majority of people will still suffer effects.
Wait till review.

chocnvino · 28/05/2018 08:20

DLA is not based on diagnoses but on care needs. If she gets DLA, she must require daily help/care/support over and above that of a child without additional needs.

if she still needs the same level of care as during active treatment, then just let it run and renew when it is due. but if she doesn't need extra care, you must tell them (and it will probably stop). I think the DLA award letter explains it too what to do if there is a significant chance in care needs.

Spacegirl21 · 21/07/2021 20:01

Did you renew your child’s DLA?

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