I've posted about my DD and her upcoming spinal surgery for her scoliosis. Obviously, I forgot my log in but I will still fill in you if you hadn't seen which probably is everyone! 
So my daughter has severe kyphoscoliosis, last time it was checked it was 100 degrees and 75 degrees in the thoracic part of her spine. She hasn't had an x-ray in over 2 years so we hope it hasn't increased too much.
She was meant to have her op in June 2016 but they found subglottic stenosis (windpipe narrowing) and they couldn't get the breathing tube down her throat so had to postpone it. She was referred to ENT and was told she'd get an appointment in "2-4 weeks". Obviously, my daughter knows that would more likely translate into 2-3 months at worst so she got on with her AS exams and had a lovely summer.
We didn't get to see ENT until 10 months later after badgering ENT and getting her neurologist involved. Here's the plot twist, she got an appointment but it was in the wrong clinic. Twice. We were told to go to ENT thinking it would be a paediatric ENT when really, it was the ENT cancer clinic. First time, we were turned away, apologised to and told we'd get a proper appointment.
The next time, that ENT doctor called us in and told us that we've been booked into the wrong clinic. DD, bless her, bursted out crying because she'd been waiting so long only for this to happen. The doctor told reception to book an appointment for the next week in the right clinic with the right doctor. That time it worked and we were seen for 10 minutes. DD was slightly annoyed but relieved that she'd finally been seen.
Now, we've seen ENT again and she's signed the consent forms for tracheotomy whilst she has her spinal surgery and for the recovery after it. She was given a date and she'd been preparing herself mentally because it'd be a long road to recovery - think 4-6 weeks in hospital and possibly another 4 recovering at home.
The next day, she was seen by her spinal surgeons and told that it would not happen on that date as it was too soon and instead she'd need to wait for the new strategy now that she will have a tracheotomy as well. She understood that but was still gutted.
DD has been having nightmares and dreams about surgery being cancelled, going wrong, going well and having a straighter spine. It's been all sorts but I'm worried about her. She googles what's going to happen but strangely, she's not fazed by it.
She's very nervous in comparison to her great confidence the first time round. She's not worried about the risks as such because she's been informed about it since she was 5 when it was first discovered but she doesn't want to get her hopes up until she actually wakes up in ICU and knows the surgery has happened.
Normally, I'd say she'd need some sort of holiday abroad to relax and forget about it but she has appointments in the summer, one being with the spinal surgeons. So, I'm pretty much stuck and it's not nice to see dd like this.
Sorry it's so long!