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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Aibu - worrying hugely about taking antidepressants 4 days in

15 replies

SpicedPearTree · 04/05/2018 03:52

NEVER thought I’d ever need AD’s!

However I’ve fibromyalgia and Palindromic Rheumatoid Arthritis diagnosed 3 years ago and have been in huge amounts of pain on and off ever since.

Last month the doctor prescribed AD duloxetine 30mg but I was scared to start.

After huge amounts of pain I started this week to see if it could help. It’s recommended for pain as well as anxiety.

Now I’m terrified of ever having to come off it. The weaning off horror stories I’ve read online are making me feel sick.

Should I just stop? I’m terrified that a week in, I’m already addicted.
Help please ☹️

OP posts:
LuluMarie · 04/05/2018 04:10

Hello

After four days you are not addicted, don’t worry about that.

I’ve withdrawn from some seriously strong stuff, way worse than AD meds, it’s tough but not that bad. You do it when you are ready, slowly slowly, your body adjusts. It’s only the sudden stop that can cause withdrawal symptoms. Even then it’s usually around a week then done.

I went for complete stop rather than reducing over time and I had very addictive benzodiazepines that I’d taken for a few years, so a very long time for those meds. I was ready to stop so I went for it, I had seven uncomfortable days then like magic completely normal. That’s the most difficult way to do it and it was quick enough that with the desire to stop, it’s doable.

Also if you do come off something, doctors will often give you something like valium in a low dose for a week or two, that masks withdrawals and helps with sleep or anxiety problems that you might have as your body adjusts. If you do that (and you’re ready to stop), you won’t even notice.

So don’t worry. Weigh up taking them vs not taking them. If they are right for you now, go with it. That’s the priority. You can reassess as time goes on. I don’t regret what I had at all, I needed it, it helped massively and I stopped in a week once I was ready. That’s the hard way too and I could do it again! So try not to worry:)

FindoGask · 04/05/2018 04:17

I don't think you ever get 'addicted' to antidepressants (at least not SSRIs, I'm not sure what category duloxetine is) but when you decide to stop them, you do need to do it in a staged, gradual fashion. But the actual process if you do it right is totally fine - you might get a couple of minor symptoms but that's it.

PatchworkWomble · 04/05/2018 04:20

Living with pain is horrible.

Have you expressed your concerns to the doctor? If you're on something known to be addictive then your prescription should be reviewed relatively regularly. Same goes with coming off of it, when the time comes discussing this with your doctor and setting up a sort of weaning schedule where you can report any issues and adjust doses accordingly.. I mean, this is something that they should take seriously and not just leave you to it if you see what I mean.

If you look up just about any medication online you will see a lot of negative experiences as people don't tend to go online to report a good experience. Everyone responds to things differently. You might be one of the people to have a positive experience. These are the risks we take when managing illnesses and it sucks, I totally get why you feel anxious about the whole thing.

Is it one of those medications that can initially make your anxiety worse? If you're going to commit to taking it then try and stop reading horror stories. Be aware and informed of side effects of course but try not to spend too much time reading about it. Easier said than done I know!

I hope you feel better soon

EmmaGrundyForPM · 04/05/2018 04:23

I started taking ADs last year for depression and anxiety. I really didn't want to, but had become seriously depressed with thoughts of self harm so I knew I needed help. I was extremely worried about side effects and withdrawal.

It took about 6 weeks (and an increased dose) before I felt the effects but I am so glad I am taking them. I feel so much better. I don't feel ready to stop them yet but am due for a review this month as it's been 6 months since I started. So I'll be guided by the professionals.

I hope you start feeling better soon OP.

LorelaiVictoriaGilmore · 04/05/2018 05:31

My mum and sister are both on duloxetine. Sister is coming off it slowly under doctor supervision - no problem at all. Mum accidentally stopped taking it when she came to visit me and forgot her pills and she got very lightheaded and headachey until we got her an emergency supply. So I think you just need to remember to come off them properly and you'll be fine.

LEMtheoriginal · 04/05/2018 05:45

I've been on/off ads for ten years. Never had issues with withdrawal. You just do it slowly - reduced dose then every other day for a bit then stop. It takes a couple of months.

Pain is so depressing not only because it hurts and that is miserable but it causes release of stress hormones Tec and buggers the levels so really your ads are part of your pain medication. There is no stigma about pain meds neither should there be with ads.

SpicedPearTree · 04/05/2018 09:03

Thanks for the replies.

I’m also concerned about the fact that I’m not sleeping well since I started taking them. Don’t know if it’s coincidence or not.

OP posts:
vampirethriller · 04/05/2018 09:36

It can take up to two weeks for your brain and body to adjust which could be why you're not sleeping. If they're going to make you feel better, and help your pain, take them. If you broke your leg you'd take painkillers, for example. Coming off anti ds is no problem at all done properly- I've taken citalopram, trazedone and had no trouble. I've also withdrawn from heroin and I know which I'd prefer! Give them chanceFlowers

whycantIthinkofadecentusername · 04/05/2018 10:10

I’ve very recently started taking ADs also and have started suffering with insomnia, although I was made aware that this from the GP. I kept thinking about withdrawal after and worrying about how I was going to cope without them, but two weeks in this had subsided a lot. I’m hoping it was a symptom of the anxiety.

DragonMummy1418 · 04/05/2018 10:13

The not sleeping could be just because of your pre existing conditions or because of your worry. I was very upset when I started ADs but I felt better after a few weeks and more like myself.
Like you, I never thought I'd need them and hated the idea of them but they did the job.

Handsfull13 · 04/05/2018 10:15

At only a week in your body is still getting used to them. Sleep might be a problem as you adjust or that your so anxious at taking them it's causing sleepless nights.

Doctors know how to handle coming off them and you will do it under directions and when your body is ready for it. I took AD for three years and came off them slowly.

It will all be ok but follow your doctors instructions don't just stop when you fancy it, maybe speak to your doctor about your concerns.

FindoGask · 04/05/2018 10:19

It probably is the process of adjusting to the ADs that is affecting your sleep if you haven't had a problem before, but that shouldn't last much longer - two weeks at the very most. You could try taking your tablet in the morning rather than the evening if you're not already.

dangermouseisace · 04/05/2018 10:20

I really wouldn’t worry about coming off it. I’ve been on many different ADs over the years, and the only time I had a hard time coming off one was when I was in hospital having a severe episode already, and they took me off one to switch to another so reduced as quick as they could. If I’d been mentally ok it would have been fine, as it would have been reduced slowly rather than max dose to nothing in 2 weeks or whatever it was.

It takes 4-6 weeks for ADs to start to work normally, so you haven’t really given it a go yet.

SpicedPearTree · 04/05/2018 10:30

Thank you so much for sharing your experiences and advice. I’m a bit of a worrier and the rheumatologist told me to stop looking at Dr Google! I’m most likely starting methotrexate soon also.

I remember in my twenties going for a check up with the doctor and he said I was ‘disgustingly healthy’, no issues, everything good. I look at how I am now at 38 with 2 incurable conditions and it makes me so, so sad.

Sorry for self pity

OP posts:
LuluMarie · 04/05/2018 12:50

Not sleeping well is a very common side effect with SSRIs unfortunately. It definitely is the case with me. I had to weigh up what was worse, as others have said. If things are sufficiently difficult, that outweighs the side effects.

For me, the insomnia didn’t go away as my body adjusted, for others it does. So I took on me vs insomnia with a vengeance and in fact the things I do to help sleep are fab for mood and life in general.

Firstly I exercise myself to exhaustion! Exercise can be anything from stretching, going for a walk to hours at full crazy effort in the gym. Do as much as your body allows, literally I sleep well and daily when I exhaust myself. Plus smoking hot body and endorphins from moving and feeling proud of myself helped no end.

Get outside every day. Every day! This can be a short walk, a trip to the shop or sit in the garden for a cup of tea. It makes the difference. At first I didn’t care if I looked like crap, I just dragged myself out, everything came after that. The cup of tea in the garden, so literally just sitting but outside, it helps!

Self care, simple things, make yourself herbal tea before bed, sit and enjoy it, face mask, sit and enjoy it, it’s a self care routine that’s important, tells your body when to relax.

Melatonin supplements, wow I was surprised these helped, but they really do! Herbal and it’s the natural substance your body creates to tell your body and mind to sleep. Any pharmacy has it, really this was a game changer for me.

Most of all routine, routine, routine! Your body needs to know what the heck is going on. Go to bed and get up at the same time every day, every single day! My friends laugh or say oh but it’s only once when I say no thank you to being out after nine or awake after ten because I’m young, but not sleeping is no joke and I need the routine! Routine included a walk in the day, tea before bed, things like this. Make it for you and stick to it. Reading before sleeping is a good one, or make time for yourself to read during the day. Stay away from too much technology and especially before bed. Phone out of the bedroom, do it girl!

If you are not too sore yoga is also a miracle worker, I swear by it for sleep and for recovering in general, so if you can I definitely recommend. You don’t need any previous fitness or flexibility, it’s for absolutely everyone!

I understand the perfect health to chronic battles, same happened to me and it does get me down if I think about it. So I try not to and instead I do things that I wouldn’t have done otherwise had life been as expected. Fill your life with what I call my hippy crap lol:) Now I’m a Yogi who takes a walk and appreciates how beautiful the view is. I’m also proud of myself for “small” things, because they aren’t small! Youre doing well, be kind to yourself

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