Alfie Evans 3 continuation

[sheddooropen]

Alfie Evans continuation thread as the other one has a lot of comments

Hope I'm posting on the right thread here, just typed out a response to User and it closed, I'm assuming because it was full, anyway here goes,

User I can well understand the bitter sweetness that you experienced. I haven't experienced being on a hdu, but my daughter was diagnosed with leukaemia many years ago and we spent lots of time on the ward where sadly children did pass away.

I think it can be much harder in some respects having a 'set time' to remove life support, and guilt is a normal reaction even if it is the best thing for the patient, letting them go can be the greatest act of love. Remember that is what you did for your brother, and if he could I think he'd thank you for that.

I wouldn't wish this situation on anyone, but people really need to look at the medical evidence and hear what the experts are saying as I think they are making things so much worse for the parents and alfie railing against the inevitable..

Fennel
Thank you.
just to add to all at Alder Hey today and anyone who had to experience this or will in the future.

Fennel that’s so sad to hear :(