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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To have fobbed-off DP?

33 replies

ChubbyGrape · 15/02/2018 13:45

Hi everyone,
I have a lovely DP of 5 years, and two children from a previous marriage.
The other night my eldest was being very ‘crazy’, not in a bad way, he makes me laugh all the time although a lot of the time I admit he’s too much. We had spent the entire day out in London where he was quiet as he always is in public, and then when we get back he just explodes - makes noises, repeats things, does weird dances etc.

Anyway my DP asked me if he thought my eldest may have autism. I was pretty angry at first and said no, he’s just different. DP actually has a lot of friends with high functioning autism and grew up with one, and he wasn’t being mean or anything but I couldn’t help be stand-offish about it.

His reasons are, that my son does things like:

-repeats things constantly, I mean all the time. Movie quotes, something he’s made up, something he’s heard... just whatever it is at the time.
-Commentates on absolutely everything, whatever he’s doing, whatever I’m doing, but ESPECIALLY what the dog is doing.
-he had a voice for our dog and very very often he’s talking in the dogs voice pretending the dog is doing stuff, having conversations, making up stories about what the dogs doing etc.

  • he constantly asks “what would you do if....” or “would you rather”. Doesn’t sound bad, but imagine this about once every ten seconds. Literally.
  • if there’s silence he will fill it with noises, strange accents, songs about random things he makes up
  • he’s always looking in the mirror making weird faces.
  • he interrupts conversations constantly, but it isn’t behavioural (he’s honestly well behaved despite his compulsions) but he doesn’t realise other people are talking.
  • he’s terrible socially. He’s a different person outside the house. If somebody asks him a question he goes silent and looks at me as if to rescue him. He just clams up.
  • he had pretty awful OCD, he has to be “even”. So if he brushes one hand against the door frame, the other has to be equal. If he’s cold on one side, the other side must also be cold. Sometimes it takes him awhile to equal out.
He also has to touch things fully at times. Sometimes he will brush past me and HAS to touch my shoulder, fully, with both hands, for example. Same with toys or whatever else. His OCD is more than this but that’s a quick idea.

He’s a very emotional child, very anxious (he was badly bullied in school for being different, and a teacher strongly disliked him. So he suffers because of this)... but when he’s happy he expresses it in a very bizarre way (ie making weird sounds and can’t control what he’s doing properly).
He’s a smart little guy, although he is lost in his own world a lot of the time when he’s not doing these things. He was in a school where he had the same teacher for years who disliked him so struggled with school, but he just learns differently - he’s actually very bright, but can’t learn in a classroom at all.

There’s a lot more things, but AIBU to just say this is down to him being different?
He’s hard work, he really is, but he’s also one of the coolest little people I know. He’s so funny and even though he isn’t cuddly like my youngest (he always tries to hug me, but kind of does it at arms length like he struggles with it) he’s still loving in his own ways.

I know nothing about autism but if I should be supporting him in a different way, maybe I should know? I don’t know. He’s very different to my youngest and other children, but it never crossed my mind that he had anything... if this makes sense?

Sorry it’s so long.

OP posts:
desertmum · 15/02/2018 17:50

A lot of what he does is similar to my son at 8 - the repeating stuff on TV and in movies, having to have things even - his issues were shoes, socks - it could take half an hour for his socks to feel right. And the noises and faces. He has Tourette Syndrome. The being fine when he was out and then exploding when he got home was very typical - he held in the tics in front of others and then had to let them out when he was at home.
He was seen by a neurologist and we managed it with meds. He is now a grown man and has no tics at all - apart from odd facial tics.
Might be worth considering this.

MadRainbow · 15/02/2018 18:09

Bless him I kinda want to give him a cuddle myself. It may take him a long time to come to terms with the "alien from outer space feeling" it didn't happen for me until I had my own family.

Try to focus on telling him that it's only their perception of the world - he isn't weird, they aren't ready for him is all. I'm lucky insofar as none of my family are especially NT so I have always been "normal" in my own family - can you help facilitate this? If he has somewhere more specific he feels he can belong it could help him feel more confident coming up to said Drs.

Worldsworstcook · 15/02/2018 21:36

DS (12) had 3 schools before he found one that fitted and supported him, he can leave the classroom and chill out away from stresses or strains. We considered home schooling him but moved him to a small school with just 7 in his class which settled him and coddled him - he's just started their feeder secondary in a tiny 180 pupil with 15 in each class and he has a full time classroom asst who is very supportive. Like your DS he had terrible bullies and no friends, he has one now but that's it. Only in school but not outside contact.

How we have explained this to him is like this. (He's computer mad, it's his special interest - so he relates to this). His brain runs iOS (Mac operating software) and other people's brains run Windows. This makes perfect sense to him.,

mikeyssister · 15/02/2018 21:36

My DS was so relieved to finally have a diagnosis. He googled it and said it made things so much clearer for him. When he's in a new social situation he explains to people he's on the spectrum, and lacks some social skills so they don't expect too much from him.

He thinks getting a diagnosis has made a huge difference to his mental state and wishes he could have had it years earlier.

PippyPop123 · 15/02/2018 23:20

Op, I have absolutely no experience in autism or anything of the sort but can I just say from reading your description of your son he sounds absolutely lovely. Life is too short to be normal Smile you sound like you're a great mum! Xx

Cagliostro · 15/02/2018 23:47

My two are home ed too. School was just horrific for them, and most of their home ed friends had similar experiences of their own ASD/ADHD being totally unmanaged. Some like mine only got diagnosed after leaving. All are blossoming outside school :)

Cagliostro · 16/02/2018 00:00

I totally get what you mean about being sad that the reason he’s so awesome may also be ‘something’.

My DS (8) has made me super proud today. He’s carried his periodic table book everywhere and wowed me with what he’s learning from it. He’s been wonderfully polite and chatty with new people. And that makes me really happy, but I’m also aware that for example the book thing is actually because he’s become obsessed with it (makes a change from Transformers and Bionicles though TBF) and he sometimes can’t stop himself from telling people facts because he can’t quite grasp that they’ve not actually asked him. He’s very affectionate which I adore but I also know it’s just as much about sensory seeking as actually showing love. Both my kids are wonderfully polite and have always been praised for this but again I know it’s definitely not about stellar parenting on my part :o they are just sticklers for rules and DD in particular is a great mimic.

That said. I wouldn’t change them. I would change the world for them though and I know how heartbreaking it is when they are bullied and ostracised.

I think it would be really useful to read up some more - even if he’s not diagnosable it could give you ideas on how to help him. Also there are some autism home ed Facebook groups which might be useful.

Chocolatehamper · 16/02/2018 01:46

My boy is 11, he was diagnosed with Aspergers when he was 5.
I could relate to everything you have said from the funny voices/noises, hugging 'from a distance', school situations - everything!
As anyone who knows someone with Autism will say, if you've met someone with Autism, you've met one person with Autism! No two 'normal' people are the same so why should two people with Autism be the same?!
There will be those that automatically jump up with the 'blame it on a label' but that's their problem. I'm not saying your boy is Autistic but he certainly shows traits.
It is worth speaking to your GP and ask for a referral - depending on where you are in the country, some areas are more pro-active than others.
As a PP said, there are various groups on Facebook and the like - they are all private groups so you can ask questions in the confidence that RL friends won't know if you don't want them to. If you search for ASD, you'll find them - they are full of like minded mums and dads who just want a hand hold, to share positive experiences and support on tough days!!
At the end of the day, your boy is an individual and will always be who he will be! No 'label' will change that but if you go down that route and get a diagnosis then you will be able to avail of all sorts of different support networks, home schooling networks, pretty much anything you have concerns about - someone will have an answer!!!
The most important thing in all of this is your boy and his smile... my lad never fails to make me smile, every day Wink

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