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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To take my hat off to anyone who had to go through this

36 replies

Chocolatesprinkledcrumpet · 29/01/2018 21:27

www.bbc.co.uk/news/uk-42862904

I have been reading and talking to people who went through PIP assessment and I have nothing but respect for you. How you cope/have coped with it is beyond me.

I hope this gives you at least a little bit of hope that your voices were heard.

And apologies if this is not exactly an AIBU but I felt the need to say this.

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bluemosquito · 29/01/2018 21:29

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FreudianSlurp · 29/01/2018 21:31

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LollipopViolet · 29/01/2018 21:32

I'm praying I don't have to go through it a 3rd time (had to have 2 due to first report not being sent to DWP).

Please, government, just leave me alone :(

Queenoftheblitz · 29/01/2018 21:34

I have been thru it and it was fine. Recently had a reassessment and awaiting results.
I have a physical illness which is easy to quantify.
It seems people with mh problems have been the target. As if they need even more stress!

FreudianSlurp · 29/01/2018 21:44

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Queenoftheblitz · 29/01/2018 23:37

Freudian of course i understand what you say. What i mean is a physical illness is more visible to the assessor.
Some assessors have twisted what the claimant said because it can be easy to do so with mh.
A recent poster detailed how the assessor seemed to be lying about her replies.
I, meanwhile have a visible bone deformity on my hand. This deformity cannot be misconstrued or denied.

FreudianSlurp · 30/01/2018 01:01

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Queenoftheblitz · 30/01/2018 02:09

Hi freudian i havent passed. I'm awaiting results.
Yes i understand that they assess how your illness affects you but they have their own agenda.
They try to catch you out at the face to face. They are watchinh how you move, how you take things out of your bag, how you sit, the list is endless.
They don't just take your word for it. They want to see if what you say tallies with your behaviour in the room.
They vowed to cut the pip payouts and picked on mental health because it is easier for them to minimise the symptoms or imply the patient is exaggerating.
My first assessment was straightforward and i received the daily living.
Now i'm awaiting a decision on the re assessment.
I've been looking online and reading accounts of peoples experiences and theres a worrying pattern of minimising mh patients and people with mobility problems not getting the mobility compnent.
So I'm not suggesting that it is an easy process. But my experience was not traumatic and its only fair i share that to people who haven't been through it.

Adarajames · 30/01/2018 02:41

Whenever i think about another reassessment coming up, I reconsider ways to kill myself first as would be far less degrading and horrific; any brown envelope that comes through the door sends me into an anxiety attack and I'm shaking with fear until I know it's not from those bastards. They just want us all dead or locked away in a workhouse, starving and unable to function or live independently anymore

BrendasUmbrella · 30/01/2018 03:02

DS has classic autism and a few associated conditions and gets PIP. I could have appealed for mobility for several reasons, but chose not to because I didn't want to put DS under further stress. The assessment was brutal for him and he barely left the house for months after. I hope he is not reassessed soon, I'd rather he get a smaller amount and just be left alone for a few more years. The Nasty Party indeed.

shouldnthavesaid · 30/01/2018 03:40

Also praying my mum doesn't have to be reassessed - just won her tribunal a fortnight ago with an apology from the judge who said previous assessment was ridiculous. She was said to have 'zero points' - judge has awarded (if that's the right term) enhanced DL and mobility plus 12 months back payments. Last year has been a living hell for poor mum and she's been delighted she can afford new underwear, food, toiletries etc.

numbereightyone · 30/01/2018 03:48

DP has never had any problem with his assessment except that he was really upset when the assessor said 'you're never going to get any better [from his disability] are you.'

sashh · 30/01/2018 04:44

I'm sending of the tribunal form today.

This was a switch from DLA to PIP.

They have found that I can walk and have ignored my risk of falls, time taken and pain. Assessor said she sam me walk 10 meres, it is 3 metres from front door to settee.

In my letter asking for a mandatory reconsideration included information about the hand controls I use to drive and the cost of them over several decades.

The reply said that driving requires leg power to get in and to safely operate the pedals.

BrendasUmbrella

A friend of a friend's son has turned 18 and lost all his PIP. They asked things about planning a journey, he said he didn't know, they asked him to guess, he said, 'maybe use the computer?' this has been translated as, 'can plan a journey'.

Even if I win at tribunal I will have to go through this again in 3 years.

sashh · 30/01/2018 04:47

Bloody hell, just seen this, 1.6 million claims to be looked at again.

www.bbc.co.uk/news/uk-42862904

Emerencealwayshopeful · 30/01/2018 05:01

I’m in Australia and about to deal with our new ndis system. All the above stories terrify me.

I have an OT report stating that I move around the house easily on auxiliary crutches. Which is both laughable and cry terrible. Because I lurch on those crutches on the days I go upstairs at bedtime (which I do as rarely as possible).

I’m scared about losing more body function and needing more mobility equipment but looking too competent at the wrong moment.

Not sure why I posted. Solidarity I think. I’m so sorry that others in other places are also having to prove disability related needs over and over again.

sashh · 30/01/2018 05:27

Solidarity is one thing we need, you are welcome.

Olicity17 · 30/01/2018 07:04

Mum has just gad her assesment and no longer gets any payment.

The report was full of lies. It said she had walked 150 meters from the car to the office, unaided. Its actually 70 meters and dad pushed her in a wheel chair. It claimed the medication she took was just over the counter. Its not. Its actually prescription only.

Loads of complete lies in it. Its absolutely disgraceful.

sashh · 30/01/2018 08:08

My latest post has gone missing

Olicity17 Is she going to appeal?

expatinscotland · 30/01/2018 08:14

The assessors lie. PIP is shite.

italiancortado · 30/01/2018 08:23

This is horrendous. My DH lost his job through disability and had a 3 year fight to get standard rate PIP. The initial assessor did lie, she also used things against him like 'until recently you worked so you can do xyz'. The whole point of the claim was that he could no longer work and therefore wasn't able to do xyz! There was no common sense or consideration that this was a man who had worked for 30+ years and was genuinely struggling to come to terms with becoming disabled. He was treated like a fraudster the whole way through. After 2 separate claims, a reconsideration and an appeal he finally got PIP. I think the acceptance from them helped mentally because after what they put him through he thought everyone thought he was making it up!

Chocolatesprinkledcrumpet · 30/01/2018 08:26

Have you all ever considered piling together as much of these evidence as could be mustered together without "outing yourselves" and staging a sort of a protest? I'm thinking a petition with a documentation of what they are doing to you, the lies they are telling, etc. "Reporters" are always on the lookout for documentary material like that.

Disclaimer: I am not a reporter, I am not in any way connected with them, I will not be approaching anyone for their story. I am simply finding the way they treat you disgraceful an on par with Victorian era.

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FreudianSlurp · 30/01/2018 08:33

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FreudianSlurp · 30/01/2018 08:38

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FreudianSlurp · 30/01/2018 08:42

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barefoofdoctor · 30/01/2018 08:47

My PIP assessment was a positive experience with a positive outcome (i realise I'm in the minority here and my assessor even said how dire some assessors are and what a fucked up need the system is. However the form filling took me a good month and I was in agony from filling it in (i was determined to do it myself in my awful handwriting letting them know I had completed it a question a day. My physical health took a massive blow (agony as nerve damage to my hands) and my depression and (clinically diagnosed) anxiety massively flared up. I had to go through how 4 Drs misdiagnosed me, basically left me to die, the fuck ups at the hospital which have caused long term damage and the aftermath of my illness (i did a moonlight flit from husband of 10 years and ended up living in my van and cutting off family, getting into an appalling DV relationship the result of which is DD4 (so not all bad). The forms and assessment made me rake back through all the horrors of the past 5 years and made me realise how I'll I am and have been thus hugely exacerbating my depression and anxiety and causing me to feel suicidal on a daily basis. And I have to go through this again in 2019 when my award runs out. But I will have to rake through 2 more years of chronic illness, futile appointments, feeling like shit and a waster who the majority of this country would happily see on the scrap heap or in the work house or better still dead.