Early this year I developed cluster headaches, they are otherwise sometimes called suicide headaches as although they are brief they are insanely painful. I’m lucky I’ve had episodes, rather than chronic, and my GP very early on diagnosed and gave me injections to manage it. A neurologist also has since ensured I have access to high flow oxygen in bouts. They can abort it in five min and I’ve been pretty lucky to be diagnosed and access it.
However, I’ve not found it as easy as I thought at first. The headaches are so intense I became scared of going out and being seen in a toddler like crying mess should one come on. I’m quite private and the idea of being seen at a point where I was beyond controlling myself is awful, I find them worse than any of my births in that sense. I developed anxiety around waiting for the daily headache(s) and going out.
6 months on its become more generalised, with a bit of a problem with remembering. I don’t go out as much and it’s reached the point where I’m anxious the longer I stay out. I started with the over checking windows off/ gas Off etc but now I’m checking multiple times and coming up with elaborate little routines (like singing aloud and tapping the knobs in order to know I’ve turned the gas off). I’ll still sometimes be late as I’ve gone back to check as well after driving a bit with the kids. When I’m out after an hour or so I lose focus on whatever we’re doing and I want to go back to check the house, I end up not joining in chat etc. I used to go out a lot, and work, but I can stay in all day a lot. I’ve also left work to Care for a dc with Sen which has enabled me to be like this a lot more. I can find it hard to do much at times, so much is a worry like appearance etc.
During episodes I can get really down, which I think is reasonable,but it’s extending beyond them now.
I’ve tried to eat better, exercise more which has helped with feeling down a fair bit, but I’ve been more and more anxious.
On the flip side, I don’t have anything like panic attacks. I was also previously in a job where you have to ‘put a front on’ and I can still appear confident and assured in bursts.
Total ramble, but genuine question as I’ve been lucky enough not to ask it before- what is the point where you say I need a little help? What could it be? Or is this more a self help point...?