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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to think I'll have to have a hysterectomy

12 replies

CarrieBradshaw85 · 17/12/2017 07:25

So as not to drip feed, I had clots in my leg back in June and am on apixaban. Now forgive my ignorance here but I don't know the correct terms for the rest. I had a scan of my vagina with a dildo shaped camera which picked up that I have fibroids. I went back to the hospital Friday and have been given the lower dose of apixaban until the risk outweighs the benefits. THey couldn't give me a definite cause for my clots as I was very depressed, sleeping all day,sat all night watching tv, was on the contraceptive pill, was smoking more because I was depressed and of course have fibroids. Now again forgive my ignorance but the nurse again recommended that she would refer me to a gynaecologist for the fibroids and told me there could be a less invasive treatment to treat them other than a hysterectomy. After a quick google it seems that the less invasive treatment isn't that effective. AIBU to think the hysterectomy is the only way? I've voiced my concerns to my partner (he is 5 years younger than me) that I may have to and we would end up not having kids and he was fine. But still.... sorry for the wall of text it's early and I'm too lazy right now for correct grammar what not. Thank you for any replies etc.

OP posts:
lasttimeround · 17/12/2017 07:33

Fibroids are very common. What you do about them depends on a number of factors. What symptoms they are giving you and where you are in terms of having children etc. I lived with mine for 12 years post thfm being spotted on an mri. They were probably there for about 15 years. In that time I had a daughter, I had a couple of years of struggling with heavy bleeding. Then controlled by pills. And about a year of being knackered before my hysterectomy. I'm 5 months post hysterectomy and feel great. I never has any other surgical intervention for thfm as they were not well placed for that. You'll get your head round it in a while. And you'll get specialist advice on your options. But it's not awful x

lasttimeround · 17/12/2017 07:34

I have no idea how fibroids relate to clots tho

CarrieBradshaw85 · 17/12/2017 07:46

Thank you for your reply, I'm almost 32 and had heavy periods and god awful period pain which would last for three days beforehand. Now I'm on apixaban i get no period pain at all. Hopefully they will shrink overtime.

OP posts:
eurochick · 17/12/2017 07:58

That seems pretty drastic. I'd be surprised if a gynae would even be willing to do it at your age.

50ShadesOfEarlGrey · 17/12/2017 07:59

It is unlikely that you will be offered a hysterectomy so quickly, particularly at your age. Most women (myself included) that need one have to beg, after years of treatment that hasn’t worked. I understand why, it is major surgery, and can have a massive impact on your health, although your other health issues may have some bearing on the decision?
Surely your question should be ‘do we want children?’ The answer to this will show what treatment options are best for you.

HakunaStigmata · 17/12/2017 08:00

Do you want to have a child, OP?

user1472333009 · 17/12/2017 08:03

What do the fibroid have to do with the blood clots?

CarrieBradshaw85 · 17/12/2017 08:12

I was told by the doctors that fibroids could cause clots. I'm terrified of pregnancy but I would like a baby.

OP posts:
NurseButtercup · 17/12/2017 08:17

Lot's of useful information here whilst your waiting to see the gynaecologic consultant:

www.britishfibroidtrust.org.uk/index.php

Good luck x

user1472333009 · 17/12/2017 12:55

How did they say the fibroid caused the blood clots? I would think they'll try to shrink them first or maybe try to remove them without a hysterectomy.

Blackteadrinker77 · 17/12/2017 13:00

What size is the fibroid?

Were you offered esmya?

ScreamingValenta · 17/12/2017 13:11

Fibroids do cause horrendous clots. I was glad to go down the hysterectomy route, but I had adenomyosis and endo as well, and was 10 years older than you. Fibroids alone can be treated by laser - I can't imagine a doctor would go straight down the hysterectomy route without trying other options first, especially if you tell them you want to have children. Even at 42, as a childfree person, I had to be quizzed so they could satisfy themselves I was OK with not being able to have children before they went ahead.

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