I've posted before under different usernames about my DD, who's 2. She has a global developmental delay which causes a physical delay, a speech delay and also a learning delay, she's generally delayed (between 2 and 4 months depending on the area of the EYFS being spken about) in all areas, but physically could be 12-+16 months behind (finally seeing the paediatrician next week for the first time!), and her speech is delayed by 6-10 months. She also has a hip dysplasia in both hips (which I have been told 1080 times is not causing her physical delay
), is asthmatic, has a squinted eye and also very bad glue ear (we think she'll end up with grommets when ENT pull their finger out and sort her an appointment!)
I love her with all my heart, she's an amazing little girl who every single days proves that her conditions don't and never will define her, she's constantly smiling when we're out, adores other children and is the most loving child in the world. I am super proud of her, and am forever grateful to her amazing private (mainstream) nursery and it's staff who all embrace her "differentness" and absolutely involve her in everything she can do, and never ever tell her she can't do something. The Nursery enable me to work and to enjoy being someone other than a mother, as DD has at least 1 appointment a week at a clinic or hospital for something.
I am also part of a mums group on Facebook. They are great, offer me loads of support and I find it amazing to have other people to talk to who "get it". My husband also has a number of health problems and he has also struggled being a parent - I don't really want to elaborate but he did end up having to go on a parenting course to help him learn how to manage a child with extra needs.
The mums group keep saying I'm fantastic and I cope with loads. And have just nominated me for an award with a national company who celebrate hardworking mums or those that go through difficult things everyday.
But I'm actually embarrassed and feel a bit guilty. I'm just doing what every mum in my circumstances would do for their child - looking after them and making sure they get the medical treatment they need. I am very lucky that DD is fairly well behaved, and we have no problems with her at Nursery despite her issues. I go without for my DD but doesn't every parent? (when I had very little money a few weeks ago I prioritized DD getting to her hospital appointment over a new coat for myself, I got the coat a few weeks later).
I just feel like there are far more deserving mums out there. Like the mums that leave everything to get away from an abusive partner/husband, or the mums using the food bank day in day out because they've lost their benefits and have to choose between paying the gas bill or eating. Or the woman who is a single mum and struggles with Endometriosis with no family support so can't take pain meds as it will mean she can't look after her children.
I don't want to upset these women, but this is honestly how I feel. I don't want a certificate or an extra Christmas present just for being a mum and a wife. I do what I expect many hundreds of other parents do every single day.