Dd is hfa, diagnosed at 3. Also HI, epilepsy. Local services have been crap beyond belief, the CDC have NEVER followed the recommendations in their reports, eg the last report said the slt would email me diet help sheets, we’d be invited to a sensory feeding group, have observations, group therapy and advice. I’ve chased until I was blue leaving various messages but still none of this happened. Even refused a referral back to dietician as the foods she eats (strawberries, chicken nuggets, milk, brioche and plain pasta) cover all the food groups so it’s an acceptable complete diet. (I’ve made a bit of progress since to a few more foods).
The 6 month review appt has come up again (after 14 months this time) and we’ve had yet again no contact in between appts despite efforts. Dd is also Home educated so there are now no services to access. I’m thinking of just cancelling and refusing to engage anymore at all (epilepsy is monitored elsewhere). It’s depressing and futile and has served no purpose beyond winding me up. Dd unbelievably has still NEVER even been given a speech therapist appointment (luckily she is now verbal).
I feel weird not taking her in a way, I was a senco/ teacher and always used to go in about the importance of them, but it’s had zero benefit. I am fed up of sitting in a room with a paed who’s never met her, telling them lots of info, watching them write it all down and then do recommendations that never happen. It’s depressing and otherwise we are happy and progressing