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AIBU?

To think there should be more advice about this?

30 replies

Neverwasapancakegi7l · 09/10/2017 15:51

I'm a type 1 diabetic. My dad is a type 1 diabetic. Now my daughter is a type 1 diabetic.
When planning a pregnancy I asked my consultant about the risks of passing the condition on and she told me it was less than 1% as I was the mother (more risk with a diabetic father), over 11 at diagnosis and older than 25 when having my children. That drops the risk to almost the same as the general population.

However this was not true. With it already in two generations the risk is more like 50% for each child I had. If I'd known I absolutely would not have been so selfish as to have had the children. My daughter now has the same life sentence that I've endured, realistically my quality of life has been reduced by at least 50% and if I develop complications it will only get worse.

Aibu to think there should be more advice around potenatially genetic conditions and how they may be inherited by future children? Less than 1% risk I can justify but if I'd known it was more like 50% there would have been absolutely no way I would have had any children.

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Neverwasapancakegi7l · 09/10/2017 17:33

Yes I can well believe it. If it was a case of inject x amount of insulin and off you go it would be fine but it isn't because absolutely everything affects your sugars. You are having to do a 24/7 job for your body that 'normal' people take for granted and you have to self manage it pretty much all the time.

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steff13 · 09/10/2017 17:37

Have you tried an insulin pump? My friend's son was diagnosed at age 3 or 4, and it's made a world of difference for him.

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CourtneyLoveIsMySpiritAnimal · 09/10/2017 17:40

Are you the poster who was giving her daughter fingerprick blood tests because you were scared she was going to develop T1? When was she diagnosed?

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PurpleDaisies · 09/10/2017 17:45

Has your daughter had a formal diagnosis op? I remember your posts before and you were just very anxious that she might have diabetes.

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MatildaTheCat · 09/10/2017 18:15

Medical science is making huge strides in T1 diabetes. There could be real hope for your dd to even be cured in the future. Certainly better managed.

You've had a very tough time but many, many people have this horrible condition and still lead busy, active lives. BIL has a very unstable case but is a busy QC. And no matter what your views on Theresa May you can't say her diabetes has held her back...