I'm fat because I'm bed bound except on rare occasions, and can't prepare proper food. Not enough carer time means I have one meal a day, in bed, on a good day. I have to take anti-nausea tablets in plenty of time and can easily feel too ill to eat.
I eat crap because I can keep it next to my bed, and because I'm bloody miserable.
I cannot use buses because people make it too difficult (and upsetting). I cannot use the tube even if there was an accessible station nearby.
I have to be accompanied by a carer when making journeys where I need to book assistance on trains, because I cannot rely on assistance happening, due to the individuals on at the specific stations.
I can't even rely on being able to get to local stuff as people park over dropped kerbs and stop me.
Can you imagine what it feels like to have other people's (needless) behaviour stop me from going out on my own?
It's humiliating. A grown woman can't go out without a carer, because of the way others behave.
And the way people treat me as a mother... does not compute. I cannot be disabled AND a parent. A disabled person IS the dependent, therefore I cannot possibly have a child who is dependent on me.
You can see people literally twisting their faces up with the cognitive dissonance it creates. And doing everything to work out a way that my son can't possibly be my son.
On a good day, I point this out in a polite but firm way. Educating the world one by one, whilst dealing with everything else at the same time of course. On a bad way, it really fucking hurts. And no, it's not just random people on the street who behave like this. I've had a (quite junior) doctor refuse to believe I had parental responsibility. She asked me repeatedly, then went and asked my carer to sign because SHE must have parental responsibility for my son?!?!? The carer was extremely young and sitting out of earshot of the hosp appointment with the bags. The doc did reluctantly accept my signature but then wrote on the notes that DS other parent must be there on the day of surgery otherwise DS couldn't have the op. The abusive twat who we haven't seen for years and I don't even know his contact details... but he was regarded as the 'proper parent' as the cripple couldn't possibly be a proper mother.
Just one story out of so many.
The abusive carer who laughed and pointed at my body whilst I was naked. The way other parents push in front of me when I try to collect my child from school. The way an he director asked if I was mentally retarded because of my physical disability (using the hand gesture of circling a finger next to their temple as they asked). The van driver who shouted at me to 'do one' as his taxes were paying for me and I was benefit scum (I was still just managing to do my job at the time and was paying higher rate of tax, but a fat bitch in a wheelchair = benefit scum to him). The way a theatre manager tried to forced me into 'the disabled persons corner' for 2hrs before the open air performance... which was a bit of decking outside in the pouring rain! I wasn't allowed to go to the bar or order food for my child and me, just like all the other normal people could. I was a h&s risk to others ('I might run over their feet' apparently). The parents who refused to move their buggy so I could get on a train (for my sons one and only holiday), even though there was plenty of room to share. The hosp receptionist who accused me of trying to queue jump when I said I couldn't sit upright and stay conscious any longer & could she help / get help. She got angry, and told me that she ignored 'people like me' because we're always whining. I'd explained I needed to lie down rather urgently & what would happen if I couldn't, no idea why she was then surprised (& cross, of course), when I then fainted, vomited & lost control of my bowels on her nice clean floor. Bloody queue jumpers eh? Because of course that helped me see the doctor quicker (err, no it really didn't, as a queue jumping strategy it stinks!) Etc etc etc...
When you have stuff like that happen, then the casual prejudice of others on here or experienced in real life isn't just a bit upsetting.
These people can derail my whole life.
No matter that their actions are illegal, they can still do it and it takes a completely fit and healthy person to have the resources to battle this kind of thing effectively.