Sore tongue after seizure but hungry

[IdaBiscuit]

Not AIBU but posting for traffic

DS had a seizure on Friday night, no idea why yet, awaiting tests.

He's bitten his tongue very badly and it's very sore. He's having paracetamol etc but problem is that he's very hungry but eating is pretty unbearable.

He doesn't like soup but has managed pasta so far. Scrambled eggs are hurting too much this morning.

Any wise mums out there with ideas of what I can feed him? He's 17 and not only very worried about what caused the seizure but feeling hungry and sad.

Thank you

Diabetic, many many hypo's. I often bite my tongue and it really can be the worst bit. Bonjella and ibuprofen.
Hope he's better by now.

Thank you everyone.

We are going to the first seizure clinic next week and will see where we go from there

My son has food texture issues sometimes, so I make a lot of smoothies. I put cooked porridge in so that it's thick and filling. At 17 I can imagine he's ravenous! My son has mostly lassis and sweet smoothies. His favourite is porridge/banana/honey yogurt/splash of full fat milk. Simple yet very filling and effective. Bongela for his poor sore tongue.

Hi OP, I came on to post some suggestions but they've all been covered! On the seizure issue, the same thing happened to me (I was alone in a supermarket - all completely normal) in March last year. Never had one before and I subsequently had MRI plus neurology clinic plus epilepsy tests which all proved inconclusive. My niece is a doctor and she told me that in every A&E department she's ever worked in, one person per day is brought in having suffered such a seizure and that it's most commonly unexplained and not repeated. I've suffered no lasting ill effects and not had another one. Hope that all goes well for your son.

Thank you Lobster, I'm trying not to google but do find that very reassuring x

Just to echo lobster - I think 1 in 20 people will have a seizure for no known reason and then never have another so do take comfort in that.

I had my first seizure when I was 16 and collapsed in school whilst waiting in a queue to have an injection of some sort.

I had an MRI at the hospital but was told no other testing would be done as epilepsy is only considered if more than one seizure occurs.

Unfortunately I had another one about 5 months later and further testing (and further seizures) led to a diagnosis of epilepsy. Even though I was 16 when I had my first convulsive seizure there were indications (in hindsight) that I'd been having other forms of seizures since I was about 10.

However, my diagnosis happened over 17 years ago, I've been to Uni, I have a professional job, I'm married with children, I drive and with medication I've now been seizure free for 11 years. I guess what I'm trying to say is that even if your son does turn out to be epilepsy it doesn't have to be as frightening as it sounds and although life may be tougher he can still live a life which is as 'normal' as everyone else's is.

I hope he's feeling a little better today

How is he today?

Thanks Writer. I'm trying not to google but am hearing lots of stories from people who have epilepsy and are able to drive etc and who live 'normal' lives which is really reassuring

Thanks for asking, Don't. He said he's never known pain like his tongue before and he's very sad and grumpy.

He's eating now thanks to the ideas posters on here gave us, but even with co codamol said it's agony all the time.

I'm hoping he sleeps well tonight and it's a bit better tomorrow.

Take him to the gp and get a short course if stronger painkillers. There is no need to be in pain. It can be managed. I'd also be concerned that if the pain is not decreasing at all, it may be infected.

Good luck. Xxx

I'd recommend anbusol liquid - we used it when my son was teething and I now have a bottle in case of seizures. The pain after my first seizure was worse than labour so I can empathise. Fortunately it's a v quick healing part of the body. Hope he's on the mend soon.

Something icy or cold might be soothing. Ice cream maybe? I lived off it when I last had tonsillitis.

Or supernoodles without the flavour packet?

Tepid food is the way to go. Too cold or freezing food can be damaging to the injury. He needs decent pain meds.

The doctor said to give co codamol, his tongue looks like it has ulcers on now which is not helping. The doctor said it might be hurting more as it's healing and the skin is tighter due to that?

He's got bongela. He's eating much better now but is still in pain.

I might take him to the other gp in the practice tomorrow to see what she says.

I think a second opinion is a good idea. I wonder if a dentist would be better about oral analgesia? You could really do with an ENT opinion. There are two strengths of co-codomal and 8mg and 30mg. They both come in soluble form. I got the stronger one for severe tonsillitis. It was very effective.

Ulcers would suggest he is very run down. Are they sure it isn't infected? The tightening sounds a little odd. I know wounds can itch and feel sore when healing but I am surprised it is beginning to feel tight. Have they examined it thoroughly?

I would suggest difflam mouthwash from the pharmacy prior to eating
Hope he feels better soon x

He didn't really examine it at all, just a brief look.

He's got the 8mg tablets. I'll definitely take him back tomorrow. I'll ask about mouthwash.

Thanks again for the advice.

Hi OP, I do recall that my tongue was really painful and that the pain seemed to be worse several days after my seizure - I didn't bite through my tongue but kind of clamped my teeth down on it. Nobody mentioned tightening that I can recall; they just said that's where the blood on my top came from (that worried me as I had no cuts) and that as the tongue is almost all muscle, it does take time to subside. I drank thick milkshakes through a straw for several days to avoid moving my tongue - I tried to keep it completely still and not let my teeth bump into it.

Hope that your DS feels better very soon.

My tongue ulcers after seizures from where it's been bitten. I think it's quite common.

He's much better today.

Thank you all for your help, just waiting to hear from the first seizure clinic now.

My 24 year old daughter had a second seizure last week. Even now a week later she is using a straw as her mouth is so sore. She can no longer drive and we live in the countryside with no public transport. We are waiting for an emergency appointment with neurology and the earliest they can manage is July! I feel frightened for my daughters future

My mouth was very sore after my last seizure, I recommend using medicated mouthwash