To be a cheeky fucker and post twice for more advice

[Ps4widow]

Ps4widow

A bit of background first Ds was born with larngomalsia and a laryngeal cleft which has got better.
He has always been a difficult baby screaming all the time. He has no speech apart from da and won't follow simple commands like where's shoe. He can't point and the sounds he does make are very loud ( we have been asked to leave places due to it ) anyway he has been referred for a hearing test but am not sure sometimes when he's called he looks but not always and likewise with noise. Does he sound OK ? Or is there something new wrong ?
Side note we are Edinburgh so any recommended places so we don't have to wait long?
Thanks

How old is he? (I have no real advice but hopefully this will help bump for you) my only thought would be his hearing to be honest, but could also be just slightly slower than average in terms of communication for his age

18 months

How old is he?
Do you mean laryngomalacia?

Ok, at 18 months the milestone chart says he should be doing a bit more than that. The health visitor would be a good first point of call

Yes I did mean that the HV is has referred him for his hearing test and he's getting a formal development assessment on Wednesday

With hearing loss you can lose some sounds and not others, so you could have 80% hearing loss on high sounds but only 20% loss on low or deep sounds which is why people with certain hearing loss can hear you call them but then not understand what you say as the speech is loud, enough but some parts are unclear. Likewise someone could understand a conversation but be unable to hear a fire alarm.

Hearing aids are digital now and extremely clever so if he does have any hearing loss they will be able to help him.

Good luck

That does sound quite behind. I hope they get to the bottom of it at his assessments.

there's always some thing wrong with him

Dd2 was born with a cleft of the soft palate so I have some experience have you spoken to your cleft team? Which hospital are you with as I've found some can be better than others

Ive been told by my cleft nurse that Cleft babies are often behind to begin with bit catch up later dd2 is almost one and very behind where she should be as well, she's due a second assessment for hearing aids in a few weeks and been referred for speech therapy

When I say cleft its s hole beside his voice box. Ent wants to wait and see

Have you been given a team to contact other than ent?

Not really. He is seen by medical for reflux.

If it's classed as a cleft push your hv or Dr for a referral to the cleft team for your area there's a lot of support and help ours has managed to get dd2 in for speech therapy already