Charlie Gard 9

[muckypup73]

Hi guys new thread.

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

Painter and decorator.

Isn't one of the issues that the parents have pinned everything on an MRI from January? A lot of people on CA keep referring to it and posting links. Of course none of them will acknowledge that there will have been serious decline since then.

Thanks Cavemum. It breaks my heart to see Obamacare dismantled, because the ones who lose out are the poor and those with long term health issues. I dread to think what would happen to my DD, who has MS, in America. I have seen MS patients saying no insurance company will touch them. We couldn't afford to pay for her main MS drug, let alone the other drugs she takes for spasm, nerve pain etc.
Our NHS is not perfect, but it's pretty good.

why has he now changed his mind based on nothing?

I don't think he has necessarily changed his mind. What came out in his evidence to the court was that he still doesn't know how extensive Charlie's brain damage is. And he was quite clear that in cases he has treated where there has been some improvement, the improvement is often small. Only one patient in ten was able to come off a ventilator completely. That's where the ten per cent comes from, I think.

I think C&C had unrealistic expectations of what he could say in court. But I think that's due to their wishful thinking, not anything he ever said or claimed.

Nina I suggest if you do not like we are saying then please feel free to remove yourself from the thread, or any you of the veiwpoint that only charlies army can discuss this and nobody else? We are all adults having a conversation about something that is currently happening in the news, to a poor little baby.

Honestly this whole thing should have been over weeks ago. The "extra time" GOSH have the family has turned the situation into a complete palava of a media circus.

I hope it is solved soon. And I hope poor Charlie finds peace.

My dad have never quite trusted doctors. It stems from a lot in his past. For example a well Known doctor pronounced my aunt has having a day to live but she managed to recover and lived another 14 years.

At the original hearing there was doubt whether the drug would cross the blood/brain barrier. When the American doctor saw Charlie's medical records he realised he was much worse than he had originally been led to believe, so then said the treatment was unlikely to help although he said they could try it and see.

The recent new evidence is apparently now saying the treatment will cross the BBB barrier and again the American doctor is saying it's worth trying. But this is now 3 months later and the American doc has yet to see Charlie and the latest medical evidence.

maryz i do undrstand he must have ha several discussions with charlies parnts but as he knows Gosh is he really buying into this liars diatrib they keep spouting

im worred about why he wants to give hi this treatment will it raise his profile will it just make him more money-indirectly

its still the same treatment as before though so why the 50/50 chanc of crossing bbb all of a sudden

I would worry the American doctor would want to experiment on Charlie not because he genuinely thinks it will help but because he needs a guinea pig and it will further his research.

Mind you, even if that were the case I bet C&C would still allow the experiment to go ahead.

CA certainly seem to have lost sight that there is a sick child at the centre of this
They remind me if the woman who befriended Shannon Matthews mother. Was it Julie?
She threw herself into it at the expense of her own children and it seemed to give her purpose in life. She seems unable to let it go still
The, mainly, women in CA seem similar. I've seen some have had their children removed by SS. For others it gives a sense of belonging and a common enemy to unite them

I think scans will reveal his brain has deteriorated so much since November when they first blocked him from having treatment that even if the medication can help him it will be futile.

I'm on the fence with regards the rights and wrongs of it all.......I do think they should have been allowed to try the therapy back when they asked, if they had he'd have probably been put to rest by now and his parents would have the closure they need.

Surely Nina can have her opinion. If those with different views are silenced aren't we going down the same route as CA?

Mind you, even if that were the case I bet C&C would still allow the experiment to go ahead
Yes they would and if they were in America this would have happened by now, but that would be putting their interests first and not Charlie's.

The judge will apply the law as it is in the UK and put Charlie's interest first.

Lightlovelife it wasn't an opinion though it was criticising the choice of greeting used for the opening post and pretty much saying that it shouldn't be discussed anymore

Skint - GOSH where lining up to get the ethics in place to begin looking at the treatment as an option. Sadly soon after he started having seizures and his conditions deteriorated to a point it was decided it was no longer a suitable course of treatment

thats what bothrs me their ethic code is different

he needs a subjct he hasnt got anyone else to test it on with this strain

I know ellie - the point I was making was that the American may overinflate what his treatment can do in order to convince the Judge to allow the treatment to go ahead, not because he actually thinks he can help Charlie but because he wants a human guibea pig.

I.e he will give false claims to try and convince the doctors/judge that the treatment is in Charlie's best interests by when in reality it's his own interests that matter.

I would really, really hope a doctor wouldn't be so unethical but you just never know.

I do think they should have been allowed to try the therapy back when they asked
But GOSH did try. And the legal system in this country wouldn't allow it unless passed by the Ethics Committee. During that time, Charlie's condition deteriorated.

Sorry, took too long to post that so has already been said.