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AIBU?

That an urgent referral should be sent sooner then 2 weeks

72 replies

lmer · 12/07/2017 10:58

My sons pead was asked to do an urgent referral for some testing by another department- I had to ring today about some unrelated stuff and asked about the wait times for the testing while I was on the phone. Aibu to think that an urgent referral should not take 2 weeks to be sent??

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GoonBridge · 12/07/2017 11:35

Of course you can have a private swallow study. Why couldn't you?

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GoonBridge · 12/07/2017 11:36

We had a private swallow study done (it was 14 years ago but still)

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DaddyPigsLoveSlave · 12/07/2017 11:36

OP, that doesn't sound right. My DD has had two videofluoroscopies, requested by a feeding speech and language therapist. She phoned her counterpart at the hospital and arranged the appointment that way. We still had to wait for the appointment but at least no time was wasted waiting for letters to be typed, etc. Could you ask for something similar to be done?

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e1y1 · 12/07/2017 11:38

2 weeks to be seen is brilliant IMO. 2 weeks to be sent - is that right and if so did they say why?

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GoonBridge · 12/07/2017 11:38

Ask for private paeds recommendations on your area or find out if the paws that would be doing the study on the NHS also practices privately and phone their secretary to get s price list.

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lmer · 12/07/2017 11:38

@GoonBridge we were told nobody offers them?

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GoonBridge · 12/07/2017 11:39

That's not true. The demand for private paediatrics is high. Where are you?

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Groupie123 · 12/07/2017 11:41

Call BMI. Can see they have a pediatrician called Michael Kuo who might know.

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Groupie123 · 12/07/2017 11:42

BMI healthcare

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grannytomine · 12/07/2017 11:47

For example, an urgent referall in dermatology (for example) may not be as serious as an urgent referall in gastroenterology. As someone who has been waiting 4 months for a dermatology appointment for what my GP suspects is skin cancer I can't agree. I watch the lesion grow, I get driven mad by the itching and I want to see the skin specialist now but still don't have an appointment.

Sorry OP not your issue.

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GoonBridge · 12/07/2017 11:48

grannytomine
If your GP suspects cancer he should have done a 2ww referral. All suspected cancer is 2 week rule.

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lmer · 12/07/2017 11:48

@GoonBridge we can get a private pead no problem but there's none that do swallow study's apparently! I'm in Cheshire but willing to travel

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grannytomine · 12/07/2017 11:51

GoonBridge he did. I got a call from the hospital to say it would be delayed and I should get an appointment for July but still haven't heard anything. I suppose I should chase it but I am my husband's carer and look after GC after school and I just don't feel like I have the energy to deal with me. Pathetic I know.

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ExConstance · 12/07/2017 11:51

Why are they still dictating and typing in the NHS - out of the ark.

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lmer · 12/07/2017 11:51

@Groupie123 thankyou will try them x

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GoonBridge · 12/07/2017 11:51

Oh you could definitely find one that does a swallow study in London.

We had a recommendation of a swallow study and within 24 hours had the study done. We didn't want to wait at all. The paed that would do it in Cheshire doesn't also practice privately?

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clairethewitch70 · 12/07/2017 11:53

The Portland Hospital sees private Paediatric patients for Fluroscopy.

www.theportlandhospital.com/children/specialties/gastroenterology/

I have Dysphagia and the SALT team gave me advice. GP gave me thickening powder for drinks and diorylate for days when I am extra dehydrated.

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lmer · 12/07/2017 11:55

@GoonBridge we have to go to alder hey for it as nobody near us does peadiatric swallow study's- if he was a teenager we'd have easily got him a private one but apparently because he's a baby nobody wants to touch him

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GoonBridge · 12/07/2017 11:56

Just please try to use a paediatrician who also works for the NHS.

Great Ormond Street Hospital also has private patient treatment. They have an excellent unit for swallowing, etc.

Remember that many many wealthy people from the Middle East come to the UK for private medical care - especially specialist paediatrics.

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GoonBridge · 12/07/2017 11:57

I don't remember how old mine was - he was under the age of 1 year - I can't remember which hospital it was done in here in London as we have spent a lot of time in various hospitals.

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Sidge · 12/07/2017 12:04

Why are they still dictating and typing in the NHS - out of the ark.

What do you suggest as an alternative ExConstance? Consultants type up their own letters? Email? Carrier pigeon?

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GoonBridge · 12/07/2017 12:13

They dictate and type on private as well!

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user1499282478 · 12/07/2017 12:59

Hi my little chunky monkey had a swallow study done like within 5 minutes of it being booked he was an inpatient just after an op for a cleft palate so if he's admitted then he will have it done straight away could you travel to gosh they will be happy to help if you tell them it's urgent

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Bugsylugs · 12/07/2017 20:09

Grannytomine sorry to hear that, if they are thinking SCC or MM types of skin cancer then the trust will be being fined for you being seen so late. Unless they have seen you and are now awaiting removal. If BCC does not meet same criteria. There is a desperate shortage of dermatologists suggest talking to PALs or contacting the CCG as they commission the service.

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grannytomine · 12/07/2017 20:20

Bugsylug thanks. I have a feeling I've just got lost in the system and I keep thinking I must chase it and somehow I just don't. I know it is mad. My GP seemed pretty sure it was skin cancer, he said it might be BCC but he thought it might be something else but I can't remember what it was. He said it was 50/50. I feel a bit of a fool as I can't find the booking letter but I suppose if I phone the hospital they will find my details. My GP said they should definitely see me in 4 weeks, should be 2 but he knew they were under pressure.

I need to do something don't I?

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