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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU - ADHD medication worries

61 replies

ZanyMobster · 26/06/2017 14:14

DS2 (9) has started ADHD medication this week, I know it is the best thing for him to try it but I have this awful feeling inside, I am worrying it will change him and every time I think about his funny 'quirks' eg saying random things in the middle of a totally unrelated conversation, bursting into song randomly when trying to concentrate I just feel sad.

I know deep down I am being daft but can anyone give me any advice/share experiences to help me.

I feel totally selfish worrying about these things but he has the most lovely, funny personality and I am so inexperienced in all this. Diagnosis for ASD and ADHD have happened very quickly so it's all a bit of a whirlwind. Disclaimer - I do know IABU and completely irrational but I feel very alone as in RL everyone just says how positive etc it is, even DH doesn't get why I am out of sorts over it.

Thanks all!

OP posts:
ZanyMobster · 26/06/2017 22:26

Sweatyfeet not once have I suggested that I wouldn't allow him to take the meds, as I have said he has started them already, I ordered them straight from our appointment to ensure he could start as soon as possible, I only want the best for him. I expect it's fairly normal for parents to feel apprehensive but I totally agree it is unfair to withhold if the consultant feels it would help. I really appreciate you sharing your experience, it is good to view it from another angle.

Cant part of my worry is that DS can cope in mainstream currently but I think it's because of the school he is at (only 13 in his class) so it feels extreme to medicate him right now but I imagine at seniors he will be constantly unorganised, distracted and never quite keeping up. His teachers are definitely concerned about that and are hoping they can help him how he needs by year 7.

In just 2 days we have noticed a difference during the hours the meds are working but the evenings have been a little bit tricky, the consultant said once it builds up we should see a difference for longer periods of the day.

OP posts:
ZanyMobster · 26/06/2017 22:27

Sweatyfeet have you seen the documentary with Rory Bremnar? I just wondered what you thought of it and if it's worth watching?

OP posts:
notanevilstepmother · 26/06/2017 22:42

I started the meds as an adult, and was worried about exactly the same thing.

I'm still me on meds, but I can get things done, I can concentrate.

I wouldn't be without them now. It took a bit of fiddling with doses but now I'm settled and they really help.

colourdilemma · 26/06/2017 22:45

I was diagnosed with ADHD aged 41 a couple of years ago and my worries, even at my age, about how meds would affect me were similar. For all the disadvantages of ADHD, I can see that I have a quirky way of seeing things and in the Rory Bremner documentary I so related to him and how he thought (sadly I am not consistently as funny as Rory!).

Meds haven't changed that. They have made me able to attempt tasks like marking and tidying without it being actually mentally painful. I am not dramatically different but it is noticeably easier to focus. My brain feels calmer.
I hope that helps. Your son may we'll get even more benefit than I do because his habits are less entrenched than mine. Good luck.

ZanyMobster · 26/06/2017 22:49

Yes I guess that will be the next worry, trying to figure out the right dosage etc.

Thank you for taking the time to respond, I am glad I am not the only one who felt this way, so many positive experiences for you all!

OP posts:
User4354657687980 · 26/06/2017 22:58

Sorry OP, and others, if I made you feel bad. It wasn't my intention. Deciding on meds is a really hard decision, and of course all parents want what is best for their children. I am just offering an alternative perspective, having read the following (which I found moving):

saltcentre.wordpress.com/2011/10/11/the-story-of-gillian-lynne/

I admit I am not a medication fan, but reading the posts in this thread is making me think differently. Ultimately, OP, you know your child. It sounded from your original post, that you weren't too keen on meds - so I was hoping to point out therefore that you don't HAVE to go down that route. If you want to though - fair play, it sounds from other posters, like you may find this beneficial. Does your DS have an opinion on it? Does he want the meds? If he does, then worth a shot.

(Katee and Hatties .. I do have both personal and professional experience of 'ADHD', but see it through a less medical lens than others might. Sorry if I offended or you feel I put people off seeking help. Again, this wasn't my intention).

notanevilstepmother · 26/06/2017 22:59

My life might have been so different if I'd had the right help at 9 instead of in my 30s. I'm sure it will be ok.

ZanyMobster · 26/06/2017 23:08

User- I wasn't offended and it's good to hear different views. I am not sure I have an opinion one way or another from a personal perspective yet but DS is actually quite keen as he says he wants to feel calmer and to be able to concentrate better. He was quite excited and has even told a few people about his new tablets.

OP posts:
User4354657687980 · 26/06/2017 23:11

ahhh! Awesome :) well if he's not worried, you needn't be either 🙂

ZanyMobster · 26/06/2017 23:11

Told you I was being daft Blush

OP posts:
User4354657687980 · 26/06/2017 23:16

;) !! Not daft - caring and a great mum!

Catgotyourbrain · 26/06/2017 23:24

I won't add much OP but my DS and DP have gone on the meds in the last 18 months, so I've learnt a lot about them.

They don't hang about in your system, there's no building up of the effect over days and weeks... this means you really can 'suck it and see'. Effects wear off over hours. Both the 11year old and 46 year old now know their dose and sometimes add or remove amount to suit day (driving test, meeting, SATS).

If it helps see it as a day by day experiment rather than a big lifestyle decision.

It really really changed DSs life (and that's why DO got diagnosed) to go on meds. He finds he can 'think about what he wants to think about' now. Not to be sniffed at...,

LionsTigersBeers · 27/06/2017 01:01

Not much to add OP. My son was in a small class of 7 boys when we started the meds and he was also coping without medication. But the medication (Ritalin and now Medikinet) have helped his behaviour so much - he no longer interrupts, can wait his turn, can sit for longer intervals and just get on with his work - that he's since been moved to mainstream and is coping in a class of 22 (albeit with a shadow teacher).

He is much calmer with more orderly thoughts on the meds. Still himself and not zombified. We started on very low dose and gradually built it up. He still sees his doctor (paediatric psychiatrist) every six months to check dosage given increased height and weight.

He takes Melatonin at night to get to sleep.

My thoughts too is that the meds are not necessarily forever. I am slowly building up an adult 'village' of role models with ADHD for my son- successful men who have ADHD. One friend is an engineer who is able to manage his ADHD mostly by exercise (but lots of it - like 2 hours of running each day) and my son's swimming coach has ADHD and runs his own business. He doesn't need the meds when teaching but does take them when he needs to get through a day of admin for his business.

My point being, as someone else said above, that the meds are a useful aid for your son to get through the day and as he gets older and more aware of his behaviour, moods etc., he'll be able to balance all this himself.

All the best, sounds like you have a delightful boy on your hands.

QuickGetTheEggplants · 27/06/2017 01:50

I take Ritalin after a diagnosis in my 20s. I don't have much to add that hasn't been covered, except on the issue of coping in mainstream school. Superficially I coped very well - top of the class, didn't get in trouble, had friends.

But I was also constantly the target of bullying, because I didn't quite follow some of the subtleties of social interaction, and could lose my temper and say the wrong thing on impulse. This in turn would make me absolutely terrified of social interaction out of fear of saying the wrong thing.

Teachers let a lot of low level poor behaviour slide because I did well academically, I was a girl, and they knew I'd never escalate beyond minor infractions.

I coasted by academically because I have a very good memory and high IQ. In a structured school environment I did very well, even though some days I wouldn't do a single bit of work all day. I also figured out my own coping strategies very early on, eg keeping my hands busy when listening to lectures.

Out of school I struggled. My university lecturers did not take kindly to my seeming inattention in class, or talking out of turn, it was seen as arrogant and rude. I gave up my post-graduate studies because I could no longer keep up academically, I physically could not complete all the reading, I couldn't plan or structure my study time, and the bullying continued even in that environment.

But for me the worst parts of being undiagnosed and unmedicated were the things no one saw. The anxiety that felt like my insides were frozen, the constant insomnia, ocd symptoms, and above all the feeling that deep in my core there was something wrong with me, that I was not as good as other people. That my difficulties were not due to a diagnosed disability, but rather that I was fundamentally broken.

You sound like you are a fantastic and caring Mum, and I thank you for taking the time to seriously consider what's best for your child.

LionsTigersBeers · 27/06/2017 05:41

Quickget, may I please ask how you're getting along now? Has having the diagnosis helped? Do you use ADHD medication now?

We are thinking of moving our son with ADHD and ASD to a special school for the reasons you mention re bullying, trouble with social interaction, anxiety etc. Though he is 'coping' in mainstream, I think he would be happier in a special school of students more like him.

Apologies for the thread hi-jack Wink

erinaceus · 27/06/2017 05:54

ZanyMobster - you are not being irrational. Your concerns sound rational to me.

If your fears are realised and the cons of the medication outweigh the pros you can always discuss this with your DS and his doctor and consider alternatives: change the dose, change the medication, try behavioral strategies again...just because your DS has started medication this week does not mean he will be irreversibly changed on a large scale. It's not a frontal lobotomy, for example.

I hope that your DS and you find the medication helpful.

KeepFuckingGoing · 27/06/2017 06:10

User - are you shitting us??? Mindfulness????
You clearly have selective experience of ADHD if you are all about mindfulness and exercise for ADHD. They may help traits or the mildest of mild symptoms but I can assures you a preteen or teen with proper diagnosed ADHD will not be able to cope by just using mindfulness.
How will that help them focus and learn? It won't.
Mindfulness may be far more effective used by parents.

Most of us in the UK are not immediately offered meds. I would hazard a guess that most of us have tried for years to help their dc using dust/exercise/parenting strategies. Diagnosis so often comes late at crisis point.

Not medicating would endure my child ended up in a PRU or drugs or prison. The sheer misery inflicted upon them by bot grubg able to focus or learn. They are a highly intelligent and able pupil. Without meds they are at the bottom of the class and disruptive. With them they can just about learn and are a contributing member of the class. Getting one of the top scores in the SATs. Meds aren't a magic pill. They have lots of side effects and I think are only 70% effective. We have been through them all

You say you have professional experience of ADHD. That horrified me. I hope you aren't suggesting the kids just need to be mindful.

QuickGetTheEggplants · 27/06/2017 06:51

Lions I do take medication now, and the immediate effects feel subtle to me, but are quite noticable to my DH, and in terms of the state of my house! It's also the most effective thing for my anxiety.

For me, I think the diagnosis in itself was very useful, just because it meant I could stop being so hard on myself. For example, if you belive you're a careless, disorganised person there's no point trying to do something about it to be more careful and organised. You just feel bad about yourself. Having the diagnosis means I'm not just a bad person, but it isn't an excuse. It actually makes me put more effort into being organised and careful to compensate.

Good luck with your son, I don't think I can comment on what would be best for him, but having you in his corner will mean a lot.

SweatyFeet67 · 27/06/2017 10:44

Wasn't saying you were thinking of withholding meds, just showing the reality if the other perspective. People can get their knickers in a twist about adhd Meds yet would have a fit if a parent of a kid with diabetes didn't medicate after drs told them to. It puts it in perspective imo.

ZanyMobster · 27/06/2017 11:22

Yes agreed Sweaty, when put like that it seems illogical not to do as the consultants suggest. We have been open to his diagnosis for both ASD and ADHD as it's clear he needs some extra help even it is just a few allowances and more understanding. All positive things IMO.

OP posts:
ZanyMobster · 27/06/2017 11:25

The social side is the big issue at the moment, he loses his temper at tiny things and it's really affecting him at school with friends, he is a real target as he reacts so much. I am hoping a calmer head will make a big difference to him. The concentration side is obviously an issue too but not so drastic for him at this stage.

OP posts:
Catgotyourbrain · 27/06/2017 12:30

Op you may find meds help with temper and vulnerability - although stimulant meds don't help directly with DS they allowed him to spend less emotional energy keeping it together and trying to focus, so that we went from four or five massive meltdowns in a week and a very wound up child after school every night - to nearly no meltdowns and more able to function after school. I call it 'less emotionally drained'.

He still needs emotional help and is vulnerable to bullying, but at least now is able to concentrate on some of the mindfulness and emotional intelligence training that Camhs have offered alongside the meds.

Have a look online for the 'mind-up' programme.

Stressedout10 · 27/06/2017 13:52

Hi zany my ds also has both these diagnosis he's 8 and has been on meds for 2 years I was also very concerned about the side effects of giving such a young child such powerful drugs.
However he couldn't even sit through a story a school so after a lot of talking to his Dr, school and consultant we desided to only give them to him when he was at school to start with,. He's now in p3 he can read and type ok he still can't write his name but it's progress.
In the end it's your child and you know them some times its a compromise

LionsTigersBeers · 27/06/2017 14:07

QuickGetTheEggplants - really appreciate the reply, thank you. One of my step-sisters was also diagnosed recently (aged mid-30s) and said similar things to you. She found the diagnosis a big relief as she always felt she was weird/different. She is finding the medication a help too.

Thanks for your kind words. All the best to you.

SweatyFeet67 · 27/06/2017 15:00

Most of us report mild but noticeable improvement with social side, impulse control, sensory issues & coordination issues as a side result of finding the right Meds. Probably a combination of increased dopamine & the 'extra' emotional energy left from not having to work 100times harder just to do the basics.

They start with ritilin, but if it's not right keep persevering as there's lots of other options.

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