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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to ask?

31 replies

Butterscotch1989 · 17/06/2017 21:33

About diets for CFS/ME, please?
Sorry, I know not strictly AIBU, but I would really appreciate some advice for my husband who suffers from CFS for a good few years now.

He wants to know of a diet to try to help to reduce the tiredness he feels each day. If you suffer from CFS which foods do you avoid, or must have to help you get through the day?

Thank you for your help.

OP posts:
Butterscotch1989 · 18/06/2017 15:50

Like others, I think my husband has been told in the past to avoid potatoes and tomatoes.

It is him driving this now, he said he wants to feel better for by the time the baby comes.

What does a general day of meals look like for you? If you can't have bread, potatoes, white rice, cereals, pasta? I guess meat vegetables, but what do you put to bulk it out?

OP posts:
PurpleDaisies · 18/06/2017 16:18

Who has told him to avoid to tomatoes and potatoes?

It's madness to give up all those carbs. Carbs are good sources of energy. Just swap white carbs for brown ones (i.e. Wholemeal pasta etc). There's a lot of utter crap being peddled by non scientific sites on the internet.

Schroedingerscatagain · 18/06/2017 16:36

Ok here's my story

M.E progressively worsening for 10 years until I couldn't walk and was in a wheelchair, specialists stated nothing more could be done for me

Referrred to a private physio who specialises in m.e fibro etc and is also a qualified nutritionist

Removed nightshade family, additives etc and finally gluten

1 week later I could walk without a stick! 3 months later it was confirmed by a gastroenterologist that I was a 'missed coeliac' I don't have antibodies due to immune fault

I had developed pernicious anaemia and multi vitamin mineral deficiencies

With all of my deficiencies corrected and following a coeliac diet I have stayed massively improved for almost 6 years

Apparently it's really quite common especially if you have any Irish heritage

Butterscotch1989 · 18/06/2017 18:45

He also says he gets really down at the weekend, when he doesn't feel well. Does anyone know why this is/what could help? Especially worse on grey rainy days. Thanks.

OP posts:
PurpleDaisies · 18/06/2017 19:08

Er, do you feel down when you're not well?

It's really miserable to push through all week so you don't have to call in sick to work and then feel exhausted on your day off when you'd like to do nice things. Everyone feels more down on grey, rainy days. That's not specific to CFS.

PurpleDaisies · 18/06/2017 19:11

Sorry, didn't answer your question about what helps.

For me, pacing better through the week so I'm not too tired when the weekend comes. How would he feel about cutting his hours?

If I am really tired it's hard not to feel down about it but being in a nice tidy room helps a little. Also having something low energy to do so I feel like I've achieved something and not just had to rest all day.

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