Alzheimers:
My grandma got a bit forgetful at 70(ish)
At 75ish she was very forgetful and quite obstreperous (out of character)
By 77 she could not make a cup of tea, might have burnt the house down, occasionally smeared poo up the walls, ran away and was brought home naked on a couple of occasions.
A first she went to a care home for a couple of days a week, then they had respite care, two weeks at a geriatric MH care unit and five weeks at home.
At that stage she did not know her name, our names, wouldn't have eaten, dressed herself.
At 81 she went to a geriatric mh unit. She was completely unsafe and did not know us. She was also irrational. She needed specialist nursing. Grandad couldn't do it, nobody can do that 24/7 - not even qualified nurses.
She was at the home for four years. In that time she forgot how to eat, how to drink, how to walk, how to talk, she had to be turned in bed, she was fed from a sippy cup (my mother and granddad visited daily to help care for her). They bought her a special vibrating bed to help with the bed sores, she had several TIAs in the final years.
When she died she was 4 stone.
She was fit and healthy in body you see when this started, so the alzheimers ran its full course - not many people suffer that.
She was nearly 85 when she died. She was extremely well cared for and lived as long as she did because her family continued to care for her in the home.
Alzheimers is a clinical disease. When it advances patients need proper clinical MH care not social care.
Grandma worked until she was 70, she and granddad had to pay IHT in the 1970s. They never had a benefit. They employed and housed tens of people on their farm. Grandma lost two brothers in WW2.
Care resulting from a clinical disease should be funded by the NHS and funded for all. Anything else is discrimination. Alzheimers is a clinical MH issue and falls under the definition of a disability.
It is discriminatory to fund care for a physical illness not for a mental illness. It contravenes the Equality Act (2010).
I joined the Conservative Party in 1979. I shall be ceasing my membership tomorrow. I have already told my MP I will not vote for him because he will not openly campaign for better MH care. My dd has been unwell for the last few years. We have had to fund her care privately to keep her life chances open for her. Our MP went to uni with DH. This is not a decision I have taken lightly.