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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to want a third medical opinion?

32 replies

EmeraldScorn · 12/03/2017 16:34

I've posted once before RE a health issue and I'm now wanting opinions on something related but I'll give you a condensed background first;

I'm early 30's, I've not had children yet and for the last number of months I have been "out of sorts".... Fatigue, severe bone pain (both hands/arms, left knee, left collarbone, chest area, upper back), wheezing (from my throat), a relentless cough, intense pain on the bone behind my left ear and a growing firm lump, tingling sensations etc. I've also been bleeding between periods mostly without pain and recently I've had a few nosebleeds and the top knuckle on my middle finger (left hand) has been swollen for 5-6 weeks and there is a hard lump growing under the skin on the palm side. I have broken blood vessels appearing all over my skin, upper arms, stomach, thighs etc and I had a number of tiny red blood dots on my chest and face but they have since cleared.

Anyway I'd been seeing my GP; Initially she diagnosed me as asthmatic (I don't agree), she put me on an inhaler and ordered blood tests. The tests mostly came back clear other than my white cell count, it was slightly higher than normal.

She put me on antibiotics which didn't help, so she then put me on a different antibiotic and a course of steroids. None of this helped! I was booked in to have a smear test (twice) both of which were cancelled by the nurse because she understandably couldn't do it when I was bleeding. (I am now bleeding from my bum too on and off).

My GP then tested for thyroid issues and for diabetes (I was tested for diabetes over a year ago as I have a family history and it was fine).... This time the results came back as "borderline" for an underactive thyroid and a "slight concern" with blood glucose so I was told to do a fasting blood test and that result came back as 7.4, I then had to do another fasting test which came back at 9.8 - I got frustrated with the GP never making eye contact with me when I was talking to her, she literally spent every consultation staring at her phone/computer so I went to a different doctor.

The new GP wanted to retest for diabetes but using a different test (HbA1c test), thyroid and a number of other things (This was quite recent). I also had a urine test. The GP phoned me on Thursday to say the HbA1c was "consistent with diabetes" and my thyroid is "definitely low, not borderline" but my urine sample didn't have glucose/ketones in it. We had a brief conversation and he asked me to book an appointment to come back to see him.

The thing is I'm not overweight and there's no sign of glucose etc in my urine but my doctor seemed on the phone to be leaning towards a type 2 diagnosis - Other than my grandmother and aunt having had diabetes I don't really have any of the other risk factors seemingly associated and they were type 1. I'm not ignorant or judgemental, I know that diabetes does not only affect people with weight issues.

Still I'm uncomfortable with the diagnosis and after hours spent researching on Google there's a lot of conflicting information; Granted most of my symptoms fit perfectly with both diabetes/thyroid problems but I can't find anything about bone pain being prevalent with either (and it's this pain that worries me the most).

I think my concern is that diabetes/thyroid is what has been latched onto because it's the most obvious given the blood results. Would I be unreasonable to ask the doctor to be referred for an MRI? He did look at the swelling on my hand and the lump behind my ear and said at the time he would wait for the blood results before deciding what course of action to take but I'm worried he will casually gloss over it now that it looks like I'm diabetic.

Would I be rude to ask him to do a third test to definitely be certain of a diabetic status? I don't want to be pushy but I can't stop thinking what if something is missed and I don't have "health anxiety" before someone kindly suggests it (Lol).

OP posts:
sabi333 · 13/03/2017 00:02

Type1 can come on slower later in life so her fasting level doesn't necessarily need to be that high initially . Someone already mentioned Latent autoimmune diabetes of adults (LADA) as a possibility.

My advice is to insist on seeing a endocrinologist. They will be able to provide specialist advice on diabetes and maybe do a GAD antibody test which will tell you for sure if it's t1 or t2. They will be able to comment on your thyroid as well

annandale · 13/03/2017 00:06

I'd want an ENT review for that one-sided pain.

EmeraldScorn · 13/03/2017 01:07

User That makes sense actually now that you say it and yes I will ask for the cpeptide test, thanks for all of your help.

Caroian The course of steroids was shortly after the time that I first posted on here (I think maybe 8 weeks ago?) and the HbA1c was only done in the last week. I can't remember what dose the steroids were but it was only a short 7 day course, I can't remember the name but I think it started with the letter P.

Wolpertinger The reason I am dubious about the asthma diagnosis is because I'm not wheezing from my lungs. It's quite hard to explain but I wheeze all day long and it's from my throat; I feel like I am trying to breathe over the top of something, almost as if there's something in the way. I also don't have any sort of trigger, it literally is continuous wheezing, although it increases at night (or maybe I just notice it more in the silence) but "at rest" or "on the go" I wheeze on inhale and exhale. I did tell my GP (the original one) about my bleeding between periods and she suggested that I should book a smear but I'm going to make more of a point about it with my new GP.

Etymology To be honest I seem to be bleeding from a lot of places (the nose bleeds are frightening) but I will definitely ask for it to be thoroughly investigated.

Wicks Oh I don't want to be type 1, I don't want to be any type but I just meant that I wouldn't say I necessarily fit the "criteria" for type 2.

Lapin Thank you. 4men Thank you.

Way The most senior doctor at my practice retired a while ago; There's 2 partners left now (male and female) I was with the lady doctor but I felt she wasn't paying attention so I opted to see the male (and he has been lovely and willing to listen), there is also a junior doctor and a locum.

Pink Thank you.

Sabi Thank you for that, I will ask about seeing an endocrinologist although I imagine the waiting list will be very lengthy and I could be dead by then. (Hopefully not).

Anna Thanks, I think I need/want a referral for peace of mind because it's been going on for months and I'm not getting better.

Thank you everyone!

OP posts:
sycamore54321 · 13/03/2017 01:59

You are being wildly unreasonable not to tell your doctor ALL of your symptoms, however embarrassing.

EmeraldScorn · 13/03/2017 02:32

Sycamore I wasn't intentionally being "wildly unreasonable", my original GP was pretty abrupt and spent more time on her mobile than interacting with me, to the point that she never bothered with things like a urine sample, none of the basics, so in those circumstances I felt it was best just to divulge the things that were causing the most interruption to my daily life (fatigue, pain etc). I did tell her during the third appointment though and she advised me to book in for a smear but she didn't examine me.

I will tell my new GP, that's the best that I can do.

OP posts:
Rubies12345 · 13/03/2017 03:01

OP do you have bleeding/swollen gums as well?

EmeraldScorn · 13/03/2017 03:26

Rubies I had a problem with a wisdom tooth a while back (Maybe January time) but I got it sorted (Thankfully); My gums were painful/swollen then but not now.

OP posts:
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