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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

to want to know whats wrong with my baby son?

37 replies

thecatsarecrazy · 07/02/2017 10:29

I'm currently in Bristol children's hospital, approximately 2hours away from home. I was sent here by our local hospital because they thought d.s might have a floppy larynx and our hospital doesn't have an e.n.t department.
We have been here since Saturday night, he was looked at yesterday with a camera up his nose but they said its all normal. So back to square one. Since we have been here he's been fed through a tube and slept. While he's sleeping he's fine but when I give him a bottle or cuddle he struggles for breath. I hate seeing him like this. They keep referring to his problem as reflux but I don't think its that, the nurse last night kept saying things like perhaps he has a cold coming Hmm. I'm going out of my mind stuck here wanting my 11 day old baby home and well, I'm missing d.h and my 2 other sons. There's a whole family in bay opposite and the dad is using it as an office making calls and on his laptop. Sad

OP posts:
Theyhaveallbeenused2 · 19/02/2017 21:07

Didn't want to read and run. Hope little one gets well soon.

OopsDearyMe · 19/02/2017 21:07

At that age there can be numerous reasons and because baby can't tell you what's going on, it can be a case of eliminating the obvious first. I will say first off, take a breath and remember that they have not sent you home with a diagnosis of reflux, they are working on it as the most obvious and watching, that's a good thing. Keep communicating with them when you feel that they may be a bit off track, paeds drs unless very very new or on rotation and inexperienced, are well aware that especially at this age , Mum knows the child the best and they will take on board what you say, they also however has a wealth of knowledge behind them at might make sense to them and not you. Yet.

Its worrying I know, but baby is doing OK and you are meant to worry.. All good ones do... Be strong.

Notanotherpawpatrol · 19/02/2017 21:22

I'm so sorry to read this. I wish I had seen it earlier, I was at the maternity hospital earlier, I would have popped in to see you and made sure you had everything you needed :(
I hope you are looking after yourself too FlowersCakeBrew

Original poster
thecatsarecrazy · 19/02/2017 21:24

Thank you every one. They suspected in our local hospital that he had swelling that had made the breathing worse. They had him in intensive care and fitted a breathing tube using a camera and could see there was.

OP posts:
PumpkinPie2016 · 19/02/2017 21:37

Couldn't read and run - sending you and your little one good wishes Flowers

I hope you get some answers soon and your little boy is well enough to go home x

Cheekychops73 · 19/02/2017 21:41

Didn't want to read and run. I hope that they get to bottom of what's going on and you and your wee one get to go home soon. Take care of yourself too. Flowers

BToperator · 19/02/2017 21:45

It sounds like you've had a horrendous time of it. I hope they work out what the problem is soon, and your DS is back home where he belongs.

greathat · 19/02/2017 21:47

Sounds very scary. Hope you are both ok

heartisshattered · 19/02/2017 21:52

Sorry to hear that cat

Will keep you in my thoughts and pray the little one is given a diagnosis and improves

Flowers
MadisonAvenue · 20/02/2017 00:45

Hope you get answers soon and that he's soon well enough to go home Flowers

Sukitakeitoff · 20/02/2017 06:40

Thinking of you - hope your little boy improves soon Flowers

SleepFreeZone · 20/02/2017 07:14

Thinking of you too OP💐

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