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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think the GP should have done a urine test

44 replies

Mimicat44 · 12/01/2017 21:45

My six month old dd had what we now know to be a febrile convulsion on Monday morning. I called 999 who sent a paramedic crew. It was terrifying, especially as the ambulance had to come from far away and so took a long time to get there. I thought she was going to die. I'm a single parent and she's my only child so was by myself and it was additionally stressful not to have anyone to go downstairs to meet the crew and show them where the flat is (it's top floor and not easy to find the door) so I had to watch helplessly out of the window while they tried to find us (they couldn't hear me banging on it to show them where we were)

They stayed about an hour doing various tests, monitoring her etc and trying to get her high temp down which it eventually did a bit until they were willing to leave and advised me to see my gp asap which I did, a couple of hours later.

Gp checked ears, throat, lymph nodes, temp and all were normal so she said it was probably a virus and no treatment was necessary. I was relieved and thought it was over as she seemed well again, and remained so all day until at 6pm it happened again. I called 999 again, had to go through all the questions all over again and again the ambulance was miles away so took ages to arrive. Had same situation where I could see them not being able to find us, going into wrong gate etc, it was like a nightmare.

They took us to a&e where we waited 7 hours until finally after seeing a&e doctor and paediatric doctors she was admitted to children's ward. They took a urine sample (which took me 5 hours of trying to get a wee from stark naked baby into plastic bowl in a&e finally managing to get one solitary drop after three wees and a poo landing on me) and dipstick showed possible UTI. They wanted to do lab test to confirm but not enough urine at that point.

Spent night on ward, poor baby connected to monitor that sounded an alarm every time her heart rate went over 170, which was every 5 mins, she was very hot and crying all night. In the morning managed to get a bigger urine sample and a few hours later they confirmed kidney infection and prescribed antibiotics and let us go.

AIBU to think that treatment was unnecessarily delayed by a urine test not being done sooner? If we hadn't gone to hospital then it wouldn't have been done and diagnosed at all and there could have been serious complications, even kidney failure.

I'm struggling to deal with it to be honest. Even though the worst is over and the outcome was good in the end (as long as the antibiotics work as expected) I still feel absolutely terrified, as though it's still happening. I can't relax and have to check her every five mins and I'm setting my alarm through the night to check her also. I feel so scared that something might happen again. Not necessarily this again but just something! And worse things happen, children get more ill than this! I don't know how people cope. I don't know what to do about how I'm feeling - do you think I should talk to the gp about this? Not necessarily in an accusatory way but maybe it will help somehow? Please be kind in your responses, I'm really feeling dreadful, just can't shake off this terrified feeling and keep crying.. of course I'm relieved that dd seems better but I still can't seem to feel better myself.

Tldr - dd got ill, could have been diagnosed and treated quicker, seems better now, I'm really not.

OP posts:
YoHoHoandabottleofTequila · 12/01/2017 22:41

It's now thought it's the speed the temperature goes up by rather than having a high temperature that causes a febrile convulsion. Unfortunately it does mean it may happen again. I'm very surprised you didn't get taken into a&e the first time. Paramedics sending a young baby to the GP after a seizure is very odd.

FrankiesKnuckle · 12/01/2017 22:45

In my trust the under 2 rule still stands. If I attended to a febrile child I would certainly insist hospital.
As an aside, you say you struggled to get the ambulances attention, why did you not carry your 6month old down stairs with you?

Anyhoo, hope the wee one is feeling bettter.

FurryLittleTwerp · 12/01/2017 22:45

First febrile fit in a child under 18 months ought to be admitted ASAP, whatever the cause. Ambulance crew handled this incorrectly.

Yes, GP ought to have thought about UTI have you any idea how over-stretched they are? & given you a baby-wee-collecting-pad or -bag - this would still have meant no diagnosis of suspected UTI for a while in the surgery or after going home & dropping off the sample.

FurryLittleTwerp · 12/01/2017 22:46

& GP ought to have at least discussed with the on-call Paediatricians the history of a fit.

opinionatedfreak · 12/01/2017 22:48

I don't think a first febrile convulsion which self terminates necessarily needs a&e provided the GP found a focus.

However IME paramedics mostly take them in to a&e.

If your gp felt there was a focus then not checking urine is totally understandable. As per PP if no focus found should have gone in for urine/blood cultures +-LP.

Stick on urine bags/nappy pads are really controversial, I wouldn't use one if I was looking for infection. The rate of contamination with skin commensals is massive and makes the results practically impossible to interpret. They are fine for other kinds of urine tests eg hormone/electrolyte assays though.

BalloonSlayer · 12/01/2017 22:49

Poor you Flowers

My advise FWIW would be to use the adrenaline to pretty strongly demand that your DD gets referred to a paediatrician.

opinionatedfreak · 12/01/2017 22:54

NHS info on febrile convulsions

www.nhs.uk/conditions/febrile-convulsions/pages/introduction.aspx

Want2bSupermum · 12/01/2017 22:55

You should have been seen by a paediatrician. Here in the US you would be taken to a paediatric ER unit by the ambulance if you couldn't drive yourself. Also, there is a special little bag they stick to the baby's bum. DD had it to collect urine over 2 hours (because she wouldn't take a bottle so no pee) as they wanted to rule out a UTI with a persistently high temp.

Pour yourself a large glass of warm lemon brandy to help steady your nerves. You can't unsee what your saw. Thank goodness I only saw it once and that was enough. Seeing it twice would result in my nerves being shot forever more.

Mimicat44 · 12/01/2017 22:55

Thank you nocoolnamesleft for your comprehensive reply, much appreciated. It's scary to think that possibly things weren't dealt with as they should have been, it makes me worry should anything else happen.. although I've had some great advice here! And thank you for your kind words.

Yohoho yes, they said in the hospital that it is fast changes in temperature that causes the seizures

Frankiesknuckle, believe me I wanted to! I kept telling the nurse on the phone that I was going to meet them downstairs but she says I had to stay there on the phone with her so that she could tell me what to do

OP posts:
opinionatedfreak · 12/01/2017 22:55

Child is in hospital on a paediatric ward.

Out of interest who do you think is looking after them if not a paediatrician?

Petal02 · 12/01/2017 22:57

I''m so sorry you've had such a horrible experience xx

Mimicat44 · 12/01/2017 22:58

*she said

OP posts:
Graceymac · 12/01/2017 23:11

When my dd had her first seizure I was told by her team during that admission that the CT scan and subsequent MRI had identified a mass deep in her brain that without specialist intervention would be life limiting. It took a cerebral angiogram in Great Ormond street three weeks later to determine that this was a misdiagnosis and she was actually fine a variation of normal anatomy. During that time I told myself that I would take febrile seizures very happily over what I was told might be wrong with her.

The first night she had one I felt couldn't cope with another seizure ever again but being faced with something else it didn't seem so bad. I often think of that time and it really helps me keep perspective in the days after another seizure.

Mimicat44 · 12/01/2017 23:27

Graceymac that sounds terrible, and yes, I think one of the things that has frightened me the most and is preventing me from being able to relax is that actually what happened was relatively not serious, things could have been much much worse yet I'm still struggling to deal with this! So I'm wondering how I would cope with something worse?!

OP posts:
Graceymac · 12/01/2017 23:44

It took me potentially facing something much worse though to feel that I could manage.
I wasn't right for a long time after the first ones and even now it takes a couple of weeks to feel I can breathe easily again. I slept with my dd or my dh did for months after my dds first seizure and still do when she is sick.
You did everything as a good mum that you should have, you did cope and you got your ds the care that he needed and you will do again if you need to even if it is really difficult for you. Don't underestimate how well you have coped.
None of us know what might happen in the future and it is only natural that your are fearful at the moment that your ds might become unwell again but this feeling will reduce in intensity in time.

NeedsAsockamnesty · 12/01/2017 23:58

Graceymac

Our local hospital does catching the pee as they say the bags can introduce stuff Like ecoli into the sample

lolalament · 13/01/2017 01:05

Can you get a better system for people to find you? You might need better house number visible from outside, or maybe an entry buzzer where you can talk to the visitors and give them instructions. But you don't want to be in a situation where nobody can find you and you really need immediate help.

Want2bSupermum · 13/01/2017 01:34

opinionatedfreak If you were referring to me please note that I was referencing the GP who put it down to a virus. We experienced the same type of seizure and we were sent to ER (we live in the US so no A&E) and a paediatric team examined the toddler, finding a cause before we went home. The GP made a mistake and should have sent the OP and baby back to the hospital if they couldn't find a cause. The poor OPs nerves must be shot after two seizures.

opinionatedfreak · 13/01/2017 13:48

want2be nope not aimed at you but the poster who said "strongly demand you get referred to a paediatrician".

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