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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be terrified about coil fitting on Wednesday?

101 replies

user1483284537 · 01/01/2017 15:37

Long term MN lurker here but first time poster, so um hi

I'm going to start taking medication soon which requires the use of contraception because it causes birth defects. My doctor won't prescribe it to me unless I have a coil fitted so I have an appointment on Wednesday to have it fitted.

Bit embarrassing at my age (22!) but I've never had sex and can't use tampons because I find them too sore.

AIBU to be terrified that this is going to hurt but also be wondering htf it is even going to be fitted in the first place?

Someone please tell me it won't be that bad....

OP posts:
Marynary · 01/01/2017 20:56

The more I think about it the more I think it is outrageous to insist that you use a certain form of contraception in case you are lying. I wonder if this GP would also insist that post-menopausal women have the coil fitted too in case they are lying about that.

MunchyMunchkin · 01/01/2017 21:01

Fruit cider - I said in my first post that I'm a family planning doctor. Always best to state your interest when these topics come up.
Can't choose is correct gps only had to ask 'would you think about a larc' to tick the box for payment. Not actually do it.

Around 80% of the sexually active, reproductive age women who work within my service have some form of LARC, mostly mirena.
It's not a conspiracy.

I will repeat for at least the third time that I don't feel this may be the best option for OP and that the GP/derm is being unreasonable.

Musicaltheatremum · 01/01/2017 21:03

No QOF in Scotland now so no payments for promoting larc. I hated it I just used to offer leaflet and discuss if wanted. But this isn't additional money for GPs it is money that has been taken away and we have to do this to get the money back. There are appropriate ways of doing it though. We get paid for inserting IUDs and implants but that's because they want us to do more so it is taken away from the hospitals and it takes time away from normal consulting to do this.

Back to the OP I wonder if the drug liscencing says you have to be on a particular form of contraception. I know with roaccutane you could sign an opt out.

Frazzled2207 · 01/01/2017 21:04

Completely unacceptable to insist on a coil in your circumstances. Implant is a good alternative, if one is needed at all.

But I's be flabbergasted if doctor still insisted on it having understood your situation.

I've been given stuff in the past and just told "now you absolutely must not get pregnant while taking this because it can cause problems for the baby" and that was fair enough.

PaddlingFuriously · 01/01/2017 21:07

I have two dc, both via c-section & other medication means only the injection or coil would actually work - everything else would be rendered useless when I have to take this medication. Had to educate the doctor on this during my 6 week post-natal review, but I digress. I opted for the coil and maybe it's because I've never given birth vaginally, but it was horrible. Doctor inserting it commented laughingly that once it was over was the first time my bum cheeks had hit the bed!

Can't tell you emphatically enough that you need to query this with your doctor and ask for an alternative if they insist on birth control. Although their insistence sounds ridiculous as well IMO.

Owllady · 01/01/2017 21:08

Tell them you don't want it. It's your body, you don't have to have it!
Can you not insist on a federal to a dermatologist to get the treatment you need?

Musicaltheatremum · 01/01/2017 21:09

From the medical web re the drug

Pregnancy prevention programme
This medicinal product is TERATOGENIC.

Toctino is contraindicated in women of childbearing potential unless all of the following conditions of the Pregnancy Prevention Program are met:

• She understands the teratogenic risk.

• She understands the need for rigorous follow-up, on a monthly basis.

• She understands and accepts the need for effective contraception, without interruption, 1 month before starting treatment, throughout the duration of treatment and 1 month after the end of treatment. At least one and preferably two complementary forms of contraception including a barrier method should be used.

• Even if she has amenorrhea she must follow all of the advice on effective contraception.

• She should be capable of complying with effective contraceptive measures.

• She is informed and understands the potential consequences of pregnancy and the need to rapidly consult if there is a risk of pregnancy.

• She understands the need and accepts to undergo pregnancy testing before, during and 5 weeks after the end of treatment.

• She has acknowledged that she has understood the hazards and necessary precautions associated with the use of Toctino.

These conditions also concern women who are not currently sexually active unless the prescriber considers that there are compelling reasons to indicate that there is no risk of pregnancy.

The prescriber must ensure that:

• The patient complies with the conditions for pregnancy prevention as listed above, including confirmation that she has an adequate level of understanding.

• The patient has acknowledged the aforementioned conditions.

• The patient has used at least one and preferably two methods of effective contraception including a barrier method for at least 1 month prior to starting treatment and is continuing to use effective contraception throughout the treatment period and for at least 1 month after cessation of treatment.

• Negative pregnancy test results have been obtained before, during and 5 weeks after the end of treatment. The dates and results of pregnancy tests should be documented.

Contraception

Female patients must be provided with comprehensive information on pregnancy prevention and should be referred for contraceptive advice if they are not using effective contraception.

As a minimum requirement, female patients at potential risk of pregnancy must use at least one effective method of contraception. Preferably the patient should use two complementary forms of contraception including a barrier method. Contraception should be continued for at least 1 month after stopping treatment with Toctino, even in patients with amenorrhea.

Pregnancy testing

According to local practice, medically supervised pregnancy tests with a minimum sensitivity of 25 mIU/mL are recommended to be performed in the first 3 days of the menstrual cycle, as follows:

One Month prior to starting therapy

In order to exclude the possibility of pregnancy prior to starting contraception, it is recommended that an initial medically supervised pregnancy test should be performed and its date and result recorded. In patients without regular menses, the timing of this pregnancy test should reflect the sexual activity of the patient and should be undertaken approximately 3 weeks after the patient last had unprotected sexual intercourse. The prescriber should educate the patient about contraception.

At the start of therapy

A medically supervised pregnancy test should also be performed during the consultation when Toctino is prescribed or in the 3 days prior to the visit to the prescriber, and should have been delayed until the patient had been using effective contraception for at least 1 month. This test should ensure the patient is not pregnant when she starts treatment with Toctino.

Follow-up visits

Follow-up visits should be arranged at 28 day intervals. The need for repeated medically supervised pregnancy tests every month should be determined in consideration amongst other of the patient's sexual activity and recent menstrual history (abnormal menses, missed periods or amenorrhea). Where indicated, follow-up pregnancy tests should be performed on the day of the prescribing visit or in the 3 days prior to the visit to the prescriber.

End of treatment

Five weeks after stopping treatment, women should undergo a final pregnancy test to exclude pregnancy.

Prescribing and dispensing restrictions

Prescriptions of alitretinoin for women of childbearing potential should be limited to 30 days of treatment and continuation of treatment requires a new prescription. Ideally, pregnancy testing, issuing a prescription and dispensing of alitretinoin should occur on the same day. Dispensing of alitretinoin should be completed within a maximum of 7 days of the prescription.

Owllady · 01/01/2017 21:09

A referral not a federal :o

Marynary · 01/01/2017 21:13

Back to the OP I wonder if the drug liscencing says you have to be on a particular form of contraception. I know with roaccutane you could sign an opt out.

No, the license just specifies that at least one effective form of contraception must be used and preferably also barrier contraception.

Fluffy24 · 01/01/2017 21:17

There seems to be alot of 'I've heard/my friend heard you can't have a coil if you haven't given birth'.

Nonsense, I've never given birth/been in labour and I have one it's great, insertion wasn't exactly fun but was over within seconds and haven't known anything about it since.

Honestly, they'll need to go slowly and I'd want to go to a family planning clinic who do them frequently, but it's just as likely it'll be fine.

Musicaltheatremum · 01/01/2017 21:18

Marynary. Yes I looked it up and copied it above. It does as you say mention barrier methods too. I do think we have to give patients a say though. OPs GP sounds awful.

sleepachu · 01/01/2017 21:43

I have a Mirena coil and I haven't given birth and find sex and tampons painful. It was put in during a GA though. The thing with contraception is it's so individual, there's no universal experience- I couldn't reliably remember the pill, I despised injections (a couple of types, I think it was I tried) and the implant made me bleed for six months straight culminating in emergency hospitalisation. The coil has negative effects, but the positives outweigh them for me; not so for plenty of friends. I would certainly undergo ten minutes or less of pain for five years worry-free if that was what I wanted.

Marynary · 01/01/2017 21:50

There seems to be alot of 'I've heard/my friend heard you can't have a coil if you haven't given birth'.

I think people just mean that it could be a lot more painful if you haven't given birth although there are obviously other factors e.g. skill of the person inserting the coil. I had the coil fitted after birth when my period was heavy and I didn't feel any pain or discomfort at all whereas my friend who hadn't given birth said it was agony.

BiddyBooBiddy · 01/01/2017 21:51

I'm on my 4th copper coil. This last one I got 9 weeks after having DS2 was the least uncomfortable of them all. Brilliant doctor.

Fluffy24 · 01/01/2017 21:59

mary I see where you're coming from but it feels a bit like scaremongering without any real grounds. Everyone is different.

100milesanhour · 01/01/2017 22:01

Are you starting roaccutaine (spelt badly, sorry)

You don't need a coil for that, any form of contraception is acceptable. X

Iizzyb · 01/01/2017 22:04

I had roaccutane and had to have regular pregnancy tests despite at the time not being in a relationship & going nowhere near any man! It was explained to me that it was protocol & I just accepted it. I just had to sign to say I would terminate any pregnancy because the side effects of the drug on a pregnancy were severe.

I now have a Mirena coil. It wasn't too bad having it fitted but I have a child.

I have to be completely honest & say I'd rethink this. The NHS cannot possibly insist that you only have an eczema treatment if you agree to have a coil fitted when you are at zero risk of a pregnancy.

Please speak up and don't have this fitted if you don't really want it (which you clearly don't) - and for very valid reasons.

You are as entitled as the next person to receive treatment for eczema. You really don't have to have a coil fitted. I think this is just another example of treating everyone by the lowest common denominator which may be convenient for them but it's your body and you are not obliged to go along with this rule - but you do need to speak up. Good luck ps if you are in West Yorkshire pm me & I'll come & speak up for you xx

BuggersMuddle · 01/01/2017 22:21

The thing about protocol is, it's just that. It's 'protocol' in my area to give every inpatient a heparin injection daily unless contraindicated. I have been hospitalised several times. I have had precisely 1 heparin injection, prior to discovering that you can refuse it. By god you need to be robust, but you can refuse it.

Now, obviously getting someone to prescribe something is a bit different as you have a bit less leverage. Can you see someone else? Or tell him you're a virgin?

A teenager lying about sex (particularly if parents still involved in medical discussions) I could completely understand. A 22 year old? I mean, if you've made it to 22 without inadvertently falling on a penis, you really should be treated like the adult you are tbh. I don't understand why long-acting contraception is the only thing that's acceptable. I was prescribed drugs where pregnancy was really not recommended (albeit not as much so as the drugs mentioned upthread) and I am on the mini-pill. My consultant treated me like the adult I am.

Marynary · 01/01/2017 22:26

mary I see where you're coming from but it feels a bit like scaremongering without any real grounds. Everyone is different.

I don't think it is scaremongering to state that it could be very painful for a woman who hasn't given birth, is a virgin and can't use tampons. I think it is extremely unacceptable to insist on a procedure which will be very invasive for the OP when there are alternative methods of contraception available.

RedJellyBabies · 04/01/2017 22:09

Hello, OP here Smile

Not really sure what to say except that today was a bit of a disaster and I am so embarrassed.

The doctor couldn't get the speculum in Blush. He kept trying but it was so bloody painful every time he tried and I was screaming out in pain because it hurt so much. He tried a smaller speculum but that didn't work either so after numerous attempts we gave up.

He wants to try and fit it again but I don't want another try! He said if the next time fails we will have to discuss alternatives.

I was nearly crying that's how sore it was Sad

Lovelybangers · 04/01/2017 22:14

I would decline 'another try'

KanyeWesticle · 04/01/2017 22:15

Does he know you're not sexually active and don't need it?

Causing you unnecessary pain and giving you drugs you don't need or want doesn't seem ethical.

AVirginLitTheCandle · 04/01/2017 22:16

Did you tell them you have never had sex?

I would make it clear that you don't want to attempt another fitting.

Musicaltheatremum · 04/01/2017 22:26

As a GP I am shocked at what you have gone through today. Do not let him have another go. I'm not sure how many IUDs he fits but we gave up doing them as we didn't get enough demand which meant we became de skilled.
Some GPs do do a lot though.
Who is prescribing your drug? It is a similar drug to roaccutane and where I am it is only hospital based prescribing. I am sure in the literature my children received with roaccutane there was a disclaimer you could sign.
Please please see someone else.

Musicaltheatremum · 04/01/2017 22:35

hcp.gsk.co.uk/content/dam/global/hcpportal/en_GB/products/toctino/documents/Toctino-Guidance-for-HCPs-August-2016.pdf

OP see point 4.1 and also read through the website. Point 4.1 says if you are not at risk of pregnancy then you just need to acknowledge this and sign the form. Most Drs probably be happier with you on contraception but you do NOT need the IUD.

can you take someone else with you to the consuktation? Also the drug company info seems to say it should be prescribed by hospital doctors with experience in its use.

Good luck

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