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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Struggling to accept DDs asd diagnosis

52 replies

RocketBaba · 15/12/2016 09:46

Please hear me out and don't presume I'm evilly forcing her to do things or not accepting her for who she is.

Just before 4 dd was diagnosed as hfa, pretty quick at the initial appt. She had a long history of development assessment at the CDC prior to the social comm team. At 2/3 she presented as so autistic in all ways. However she had a massive leap forward in language, now a few quirks but largely age appropriate. She copes better with everything, can be quite social. Handling routine changes, better with noise.

Newer friends would think her diagnosis very odd. To be honest the reason I don't tell people is because of the disbelief, she doesn't present much at all. I wonder if it should have waited ( it's not really getting support anyway, just a list of offers of parenting groups or classses for me). I can accept her easily if she is, but I'm just not sure she is. Frankly she is similar to me as a child, I've grown up and had a good family, job and happiness. I struggle to see the line as to what is just her personality and family habit.

I guess I almost feel silly to say it considering where she is now, a bright little girl, she's so so far from the image people have or really a need for suppory

OP posts:
TheKrakenSmith · 17/12/2016 00:17

Sorry, I didn't mean to infer I was worried, just trying to provide an alternate perspective. I'm glad she's so lucky. My husband is an absolute gem and my best friends asd too so I have support! Good luck with it all!

BusyBodd · 17/12/2016 13:24

I always knew my DC was 'different' but only fought for diagnosis in their teens when teachers were struggling with disruptive and avoidant behaviour, and one particular one was insisting that they "look me in the eye when I'm talking to you" [eyeroll] We encouraged and resourced one of their obsessions and they got a degree in it (with Disabled Student Allowance and support) and now work very happily and successfully in that field. If we hadn't got the diagnosis they might well have dropped out of school as a disruptive and failing student, but with it were able to take the support they wanted and end up where they have.

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