To ask MNHQ to create a board for all thyroid issues?

[pinkpostitnote]

There can be so much confusion, heresay on the internet, worry, difficulty getting treatment or the correct dose levels. There are so many posts I feel if they were collected together in one place it would be helpful.

There is ongoing research on thyroid issues which could be shared.

E.g. TEVA (which was withdrawn in 2011/12 due to production issues and strength issues) are now back in the market with a 12.5 strength which could be the dose tweak you need to feel better. They also have different fillers too. Brands have the potential to be slightly different, though monitoring is supposed to be more rigorous since the TEVA issue. ^
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I know hypothyroidism is supposed to be a 'mn cliche' but I think this detracts from genuine advice and so many illnesses are a diagnosis of exclusion, of which it is a valid thing to exclude given it's more common in post partum women and menopausal women.

There's also a MH aspect; I have mild trauma as I developed the condition when young and was frequently dismissed/ struggled to get levels right for many years and my social experiences and education were affected by something no one else had, pre internet.

What do people think?

This is interesting stuff. Thanks for the references. I read something about an iodine protocol that I meant to read up on, any views on that?
I'm newly diagnosed and struggling with all sorts. Waiting for blood test results.

Absolutely shattered all the time, and non stop periods. One week off between them. Draining.

I would be great to have a board for thyroid conditions, there is a board for diabetes, so why not thyroid?

I used to be on a thyroid forum in the UK but it shut down, there are times when support and knowledge would be useful from others with similar.

The general health doesn't really give this

YANBU I've had an underactive thyroid for 12 years diagnosed. I only recently started b12 and ferritin because the docs told me my levels were fine but I've discovered they are the low end of fine. I didn't know about different brands of levothyroxine affecting in different ways. I also know my aunt in the States takes Syntonol? Is that even available here?!

I don't think it is necessary

There is lots of advice on the NHS website and other dedicated websites and because it impacts people in such different ways it's always best to get professional advice and this isn't a medical website

I think it would be helpful, I'm hypothyroid and recently had a miscarriage which is likely to have been caused by my disease. My GP, midwife and basically every medical professional I was in contact roundly dismissed my concerns. I've since paid for a private endocrinologist to review my case and I've been tested for thyroid antibodies. There is so much confusion about this stuff. I say a board for support would be a great addition.

There is plenty of websites and advise about diabetes, but MN has a dedicated board - so why not other autoimmune diseases?

I would be in support of this!