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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Has anyone joined the anthony nolan register?

48 replies

Amy214 · 01/07/2016 16:46

I've just applied and i live in scotland. I have never donated blood and i have registered for that aswell (need to wait until august as you need to wait 12 months after a tattoo) do you need to go to london if you are a match? (im a bit worried about dd can i take her with me?) it did say if you were sent to london or sheffield all expenses are paid including food which i was bit surprised at..
I'm looking forward to doing something good for someone in need.
Has anyone donated before?
What's the chances of them finding a match so soon?

OP posts:
FunkyChunk · 01/07/2016 18:40

I'm on the register, not been contacted yet either. I did only sign up a year ago though, following my cousin's death from Leukaemia. Sad

Just5minswithDacre · 01/07/2016 18:49

A lot of MNers registered when biscuitsandbandages was ill and a lot more when little Margot needed a match.

There's bound to be someone around who was called to donate as a result, which is a fabulous legacy of their threads.

RIP Theresa & Margot x

FlowersFlowers

mypropertea · 01/07/2016 18:51

On it for 12 years, never got the call.

TheFirie · 01/07/2016 18:55

I would love to but I can't because I have a genetic disorder. I want to say a massive thank you to all of you who are enrolled.

Rinoachicken · 01/07/2016 18:55

Been on the register for over ten years - never been called

Amy214 · 01/07/2016 18:56

I will be able to get to sheffield or london if i need to. If i can get further tests or donate somewhere closer to home then thats perfect. Glasgow and edinburgh are not far from me (there is a local hospital here but thats very basic)
I have done loads of research and i feel that the positives outweigh the negatives and if i can help someone in need then i will Smile

I was just worried about dd but if i really needed someone to look after her theres plenty of family members that i trust to watch over her for a few days.

OP posts:
HopperBusTicket · 01/07/2016 18:58

A friend of mine's dad has recently been matched with a potential donor in Sweden. It's a wonderful thing to do.

GooodMythicalMorning · 01/07/2016 18:58

Would love to be but as I have an autoimmune disease I can't.

notamummy10 · 01/07/2016 19:00

You have to wait 12 months from having a tattoo to donate blood? In England it's 4 months between tattoos and donating blood!!

I've signed up for the bone marrow register through the NHS B&T people but not Anthony Nolan because don't you have to be a certain BMI in order to be on the register?

EmpressOfTheSevenOceans · 01/07/2016 19:01

I signed up with Delete Blood Cancer (as mentioned upthread) because they take donors up to 55.

GypsyFl0ss · 01/07/2016 19:09

I've been registered for 26 years and was called to the Royal Free in London shortly after joining. My blood was sent by Concorde to New York and on to Philadelphia but wasn't a close enough match at that stage. I've never been called since.
A good friend's DC is now enjoying a wonderful life at uni thanks to a bone marrow transplant during their teens. It's an amazing resource.

Amy214 · 01/07/2016 19:13

notamummy10 yeah 12 months after a tattoo or piercing is what it says on scotblood website, something about hepatitis b being passed through unsterilised needles. It asked for my weight and height on anthony nolan.

OP posts:
Beth2511 · 01/07/2016 19:25

Im om lost but not been contacted.

Have to admit its something very close to me as my aunty had her life prolonged 3 years past her initial 12 month diagnosis thanks to AN trust which meant she could see her teenage sons fi ish gcses and a levels and get into uni etc. She would never have done that without bone marrow donors

Amy214 · 01/07/2016 19:38

Its lovely to hear how it helps people

OP posts:
FoxyLoxy123 · 01/07/2016 20:12

I believe that men or people over 11st are preferred if there are multiple matches. I too have been registered with AN for about a decade and have never been contacted.

Pibplob · 04/11/2018 22:01

I know this is an old thread but well done everyone for signing up! I’m going to see if I can do it too.

lynzpynz · 04/11/2018 22:04

Anthony nolan has an age limit (they have limited funds so fair enough!) so posters who are too old for anthony nolan can register with DKMS instead (i have) xx

www.dkms.org.uk/en

SpookyTeaBag · 04/11/2018 22:06

I've been on the register for about 18 years! Never been called Smile

Pibplob · 04/11/2018 22:08

Thanks lynxpynz. Will check it out. Such a lovely thing to do.

BriennetheBeauty · 04/11/2018 22:15

Been in Antony Nolan list for 21 years (as soon as I was 18 I joined) - went on because my brother died of leukaemia and my parents were too old to join. I also give blood.
Only been contacted once for further blood tests about 18 years ago but wasn’t a close enough match.

stressedbeyond123 · 05/11/2018 13:56

Hi,
i'm on the DKMS regsiter (which runs alongside this one but is for people over a certain age).

Bizarrely, i was on the list for about 3 months and got a phone call saying that i was a potential match for someone. Went through all the testing etc and i was match - i donated bone marrow a year ago last week.

you don't get much information about the recipient, all i was told was that it was a child under 15.

When i went in to do my donation i was given a pack and in that was some stationery. i penned a short letter saying i hope this helps and i wish you all the luck and best wishes in getting well again.

You are very well looked after throughout the whole process, all travel expenses, hotel (i had to go to London to have it done) were paid for, and i had regular phone calls afterwards checking on my wellbeing.

I had a phone call about 6 months from the Agency asking how i am feeling etc and i was told that early indications appear to be the bone marrow transplant has worked - a very nice feeling indeed i can tell you.

For whatever reason you wish to do so, i would definitely urge people i had a phone call about 6 months from the Agency asking how i am feeling etc and i was told that early indications appear to be the bone marrow transplant has worked - a very nice feeling indeed i can tell you.
I would definitely urge people to sign up - you may never be a match for someone, but you never know Smile

DuckofDoom · 06/11/2018 00:16

That’s incredible stressed Well done you! What an amazing thing to have done!

I signed up to DKMS about 6 months ago. I started giving blood in January (I’ve got my fourth donation in December) and decided I wanted the opportunity to donate as much of me as possible, so looked into bone marrow donations.

SomethingOnce · 06/11/2018 00:51

Another here who’s been on the list for a decade or so.

Donating marrow doesn’t seem a big deal to me, especially not when you consider what would be going on in the life of the person needing it.

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