Long term poster, NC as it's quite outing but didn't quite know where to put it! Sorry if this is long trying to squeeze a lot into short as possible post!
I have quite a rare disease where basically the CSF around my brain sometimes just builds up and doesn't drain properly. It can result in extreme pain (think your brain being squashed by a vice), blindness, needing surgery ect.
Earlier this year I felt the symptoms build up and visited my GP. She didn't want to deal with it and wanted me to wait two days which in itself is ridiculous considering what happened and how quick it all came about (I was fine on the Monday, in hospital on the Wednesday) In the end I went to A&E, where I spent all day and was admitted. The next day the moved me to ambulatory care where they continuously forgot to give me medicine, sick bowls, pain relief and generally treat me. I saw a neurologist who wanted a LP done and a eye test done as a matter of urgency. Now due to previous experience's LP's where extremely traumatic and had to be done under general instead of local.
They eye test was never done because they forgot! Keeping in mind I could go blind and was in extreme pain. I had to fight to be kept in the hospital as they wanted to just discharge me, they told me to take my own cannula out and go home, (I took my cannula out as I was told and blood went everywhere! despite no treatment, I asked to speak to a manager and I even had the manager tell me "you're not worth the ambulance!" when I asked to be transferred to the neurological hospital in the next town. He belittled me, refused to treat me and told me he would ensure nobody would ever touch me if I carried on. So much so I had a panic attack whilst he stood there and stared at me and called me a drama queen. I ended up refusing to leave so they had me transferred to a different department as they wanted to close.
From there it got worse, they lost my medication every day. They even let it run out and me go without, they didn't administer pain relief because they forgot, they didn't do the eye test to days later to which point I couldn't' even read the first letter on an eye chart!
They transferred me to three different places within an hour as they didn't know where to put me (in the end they settled with the dementia ward as that's where I was most suited) When I got there due to not being able to stand light or sound (all part of the condition) they then put me in a cupboard. No lock on the outside but one on the inside, no bed just a little window. I had to call the matron from my phone whilst lying on the floor to try and get it sorted. I didn't eat or drink for a week at no point was I given fluids for being dehydrated (which I was) I was there over about 10 days and only on the 8/9th day I had the LP I desperately needed pressure was sky high and in the end I needed brain surgery and have had to have a permanent device implanted in my head to ensure it doesn't happen again and I had to be transferred hospitals (the one I asked to go to on day 1).
I put in a complaint but nearly 3 months later it is still delayed. DP thinks they're trying to cover there tracks because they were negligence and I'm being U for not seeing someone about it. However I'm not even sure if it falls under that! so aIbu by thinking it's not and extremely naïve or is he in thinking it is?