DM making me feel guilty

[bellbottomedtear]

if your child was diagnosed with ME and someone offered to pay to see a "specialist" who without testing would talk to you and child then give them things like vitamins to take that may make the child "better" would you? this person is an osteopath and dietetics and although has a website and lots on youtube but I'm unsure. how can someone give vitamins and things like that if they don't know what the child is lacking? I'm not happy with just giving random stuff but feel guilty when DM says she would do anything if child was hers she also keeps saying that hospital might have it wrong. I know they don't and don't need to hear that we have come to terms with it and finding ways to help and support our child. wwyd? and aibu in saying no to seeing this supposed specialist? or should I be giving everything a go? I have researched all sorts and looked into everything over the last 3 months to make sure I know and understand what is going on with my child but now feel guilty for saying no to something I don't feel comfortable with.
Not sure this make sense but if you have got this far thanks

I think you should only do it if you can be sure that the treatment wont interfere with any of the other medical treatment your child is receiving as sometimes the herbal stuff can do that. Otherwise its really up to you. I think the main benefit would obviously be that it might calm your DM down about things.... it might also have a positive psychological effect on your child which may help their illness. Of course its up to how you feel about it. I doubt very much it will magically 'cure' your child and a negative side effect could be that they try and re diagnose your child or convince you against other medical treatment they are receiving. I think you just need to weigh up what sort of impact its likely to have. I certainly wouldn't think you weren't making all the effort you could if you decided against it, because it could legitimately have a negative impact, but then it may well have a positive impact. Id just go and talk to the specialist she is offering to pay for and see how you feel about what he says.x

I won't let anyone tell me to stop medical treatment. Maybe it's worth seeing him and then decide about whether we will let her take the stuff. I will make sure it will be fine with her asthma stuff that's a good point

That is really helpful, thank you Janecc

Janecc would you mind telling me which toxicologist you went to?

OP I'm up for alternative, doing the same for Ds1 with Asd with good results!! However as others said you definitely need at least a blood test for key vitamins check as he might give you a vitamin that she has excess off so not helping
Also not sure if it's been mentioned before but you can't test for the active forms of key vitamins like B12 but if the serum levels comes too high it means it's not converted to methyl in the body so giving this to her could be good option
Also a good blood test checks for underlying infections as well like Lyme or strep, some of which need medical intervention. So it's good to do osteopathy as I'm sure it helps, but just that with some vitamins and no tests at all could be harmful!!
I also assume from what you're saying that your dd has still a possibly silenced virus in her and right antivirals can do magic! It's bit difficult to test for viruses but someone with experience will come to a conclusion based on your history!
If I were you I'd go to someone what can do at least a blood test I think some PPs have mentioned some and then you can go to the osteopath to compliment what you're doing

Good luck!

Anothertime. I see Fi Dann. naturaldetoxsolutions.co.uk she lives in Devon but does travel a bit in the country. Her preparations are made abroad - I think in Switzerland as she sells too much to manufacture herself these days. She used to be a Chiropracter but no longer treats. She now diagnoses using kinesiology and has treated for a variety of conditions including autism. Don't know how you feel about kinesiology. I'm atuned to the stuff but I've had other people diss what she can do as woo.

anothertimemaybe that is my concern the not testing but giving her stuff. I don't mind alternative as long as tests of some sort are done to make sure it is the right stuff

I used to work for an osteopath and one of the partners had done a lot of very expensive courses in relation to the treatment of ME. At the time this type of treatment was a fairly new thing but during the time she was at the surgery she treated quite a number of patients with ME.

Each patient was told the cost in advance - it was more expensive than regular osteopathy - and advised how the treatment would progress and that the treatment would likely take many months before any improvement might or might not be seen.

Occasionally, a patient would seemingly respond to treatment and have a period of slightly better health, but I understand this can happen spontaneously with ME anyway.

There were a lot of people desperate enough to travel quite some distance - at the time there weren't many osteopaths around able to give this treatment - and pay a great deal of money in the hope of relief from what is a very debilitating condition.

Unfortunately, the treatment was not successful for any of these patients. Ultimately none of the patients were helped by what they hoped would be be a miracle cure. In the end the osteopath decided to stop treating people with ME as it became obvious that the only people who seemed to be benefiting from the whole thing were the people who were charging ridiculous prices to teach this form of 'treatment'.

Tell your DM not to waste her money.

Thanks pigsdofly that's handy to know.

I'm not sure what I would do in your shoes. I can say that I had a mystery condition that I got passed from GP to specialist to hospital and no further forward. A colleague kept telling me to see a chiropractor and I kept saying no. Eventually as everything else failed I saw the chiropractor and was amazed at the difference. The chiropractor told me it wasn't a miracle and that over the next 24 hrs I would develop the symptoms again and she was right. I had daily treatment for a week, then 3 times a week then once a week and eventually once a month. I was cured and cursed my stubbornness and wished I had gone sooner.

Maybe worth seeing this person and then judge on how they present to you?

janecc what detox stuff did she give you if you don't mind? Thanks a lot for the info very helpful, yes I'm up for kinesiology but not sure who's good and who's a fraud will definitely check her out

OP if DM is paying you do have the option to find a good specialist and go for it - I'd definitely get some of the other PPs recommendations - I already got a name myself from a PP here although in using another one as well. These days testing and supplementation can really do magic for ME! Good luck

Anothertime she makes her own detox preparations using fresh natural ingredients - chlorella, cloves, ginger, turmeric and loads of stuff besides. Frankly I have no idea what else but I know she uses many other ingredients with some high proof vodka to stabilise, so no synthetic stuff - my kitchen looks like a 16th century apothecary as they all come in brown glass bottles. I have anti Lyme preparations for example and most have wierd names, some will have more of an effect on the body in general, others such as Liverlife are specifically to get a sluggish liver moving and this preparation is very spicy. She knows about drug interaction so will tell me not to use chlorella for example if I'm on antibiotics. She's the one, who advises me on nutrition and nutrients, ways to heal gut dysbiosis, makes her own molasses probiotics (efficient microorganisms)
and has given me a bunch of recipes to make my own preparations eg tumeric milk. She uses very specialist preparations from other practitioners some of which lay people cannot buy such as from www.allergy.co.uk - not much info on that website btw as it needs to be bought via a practitioner. She also recommends stuff like SOS Advance. The preparations, vitamins and nutrients she tells you to use vary depending on the state and responses of your body so it would t be a simple as getting a list to read off and give to me as a one size fits all. She's got me from almost bedridden and very very ill to being semi normal. Her preparations are expensive because they're not mass produced and use expensive high quality ingredients, which are filtered and pressed and purified and goodness only knows what else. Her consultations are the cheapest I pay out of any practitioner. She sells any product that she doesn't manufacture such as sos advance without a mark up on what I could get it direct. So she's not out to rip you off either.

Who do you see btw Anothertime? Always good to have recommended names.

Janecc going to dr Lorene Amet who although not a medical doctor herself she's working with doctors and focuses more on infections, yeast etc
Will definitely try yours especially as you said you had good progress- million thanks!!

You are welcome. Thx for the info. Fi focuses on heavy metal detox as well. I hope you get the answers you need for your son.