To ask for your silent reflux experiences??

[Onthedowns]

Posting here for traffic!? My DS who is 6 weeks old -5 weeks premature. Is suffering the above plus slightly colicky. My 4 yr old dd had it but was managed with ranitidine, domperidone and comfort milk. DS is bad! We started on one milk then gaviscon terrible, referred to paed and started ranitidine and nutramigren milk worse than ever after 2 days, swapped to comfort milk is slightly more settled but tummy issues gurglings, bad wind and poohs! We aren't sleeping maybe 4 hours a night each. DS won't lie on his back and we are at wits end! I was thinking nutramigren ok for tummy issues but reflux terrible as so thin , no mucas or snotty nose. Comfort milk and the wheezy and snotty nose back! Next step stay down milk ! Don't want to keep messing about with milks! We are thinking private referral but don't know if it will help! Anyone any ideas or what worked for you??!

^neocate. That was it!

Ranitidine did take a while to work, but it once it started working it was great. I've blanked out how long it took - it was agony waiting.

Please please go private, bupa cover it. We had neocate and oneprazole which saved us. It was awful

Neocate milk is better than nutramigen

Ranitidine should be fairly quick-5-7 days, I think. DS went from 50m stretches of sleep and screaming all day through hunger/pain to sleeping 3h Andreas grumpy during the day within 3 nights. I cried when it stopped working but the omeprazole was really the thing that made the difference. That got me 4h 30 stretches.

Omeprazole worked very quickly and for us, the Puramino (this has replaced nutramigen aa)made the difference between holding a teat in her mouth and necking whole bottles for the first time ever. If you have been on nutramigen apparently Puramino tastes more similar to this whereas Neocate is foul and fish tasting.

Definitely go and see someone who knows their stuff. So worth it. The not sleeping is a killer.

Neocate, Carobel and omeprazole worked for us. You can buy Carobel on Amazon or get your chemist to order it in if they won't give you a prescription.

I have had 3 kids like this the best option is nutramigen and omeprazole wirjed for my boys . Then stayed off diary strickly for a year and since then have had no probs. We used the omeprazole tablets the granules get stuck In syringe. Snap tablet in half and disobey in warm water for 5 mins and then give the dose required via syringe good luck

omeprazole for my dd worked very quickly. She did grow out of it and we were able to stop giving to her at around 22 weeks.

We had a terrible time with reflux but anti reflux milk worked for us. The only issue was the milk gave him constipation. Luckily he's old enough to wean now so he's on anti reflux milk and solids which has sorted out his poo!
If the milk hadn't worked we would of tried omeprazole, I have to take it for severe reflux and it's great.

*have tried - Soz for the bad grammar

My daughter was so bad she was refluxing/vomiting blood, she had the barium swallow test and it showed she had a rolling sliding hiatus hernia which needed operating on. Whilst we were waiting the few months for the op, she was on omeprazole. She also slept on her front, (we borrowed a sleep monitor from the hv that would alarm if she stopped breathing - cot death risk from sleeping on her front). I kept her as upright as i could after feeds, which were pretty much constant breastfeeds, i found carrying her upright in a sling meant i could at least make myself a cup of tea! Hope you find something that works for you, don,t let them fob you off, they tried to with me until they found out what was wrong with her.

Thank you this is what I am also concerned about in case there is something esle going on especially as he was premature, we are calling bupa in morning to find out about an appt

My son had this very badly. He used to choke and stop breathing. I had to call 999 when he was 4 weeks old. He was in and out of hospital and I had to learn CPR. He was gaining weight but screamed all day long and the most he slept Was 20 mins. It was shattering. He was our 5th child and we knew it wasn't normal.

We tried everything, special milks, thickeners, meds. LOSEC muPPs was ok, I tried dairy free etx. Nothing worked totally. LoSEC improved the screaming by about 40%. But he didn't grow out of it until about 2. However it was easier to deal with when he was older as could distract him. The LoSEC helped the pain but he choked the whole time and it was terrifying. He also had long lasting food aversion and ate baby food till was past 18 months. Now he is 7 and still extremely fussy and vomits very easily.

I really hope things get better soon it is so difficult. Most babies luckily grow out of it much sooner.

Meant to say that we bought him an amby hammock and he slept 5 hours a night right away. We bought a nappy monitor to be safe. The hammocks were on a recall though and not sure what happened. There was also a baby nest with an incline which helped and we even resorted to car seat at times but had the monitor on.

If he's 6 weeks old and 5 premature then it's not surprising he won't sleep for four hours. My DD was 4 weeks premature and usually only manages 3 and she's now 15 weeks.
The prematurity will be a part of it. My DD struggled a lot in the first couple of months as her digestive system was immature.

We had a terrible experience with this. My son was 5 months before finally being diagnosed. He cried for 15 hours of the day and I have never been so stressed in my life. I remember sitting up with him with the hoover or hair dryer on for ages as white noise was the only thing that would stop him from crying. Gaviscon did nothing to help him. He was finally given Ranitidine which did nothing at first but then after 2-3 weeks, It suddenly worked like a miracle and all the crying stopped. Hope baby starts to get better soon.

Please try the milk thickener. I can't recommend it enough. Ours was prescription. I see there are over the counter ones now but in 2006 it was hard to track down so i recommend asking hospital to prescribe.

The thickener worked immediately. Just re read that they won't prescribe it to you so as others have said Carobel online. You won't look back. I wish we had found it sooner as we went through 7 months of hell with it all and I Still had to basically tell the hospital that we needed to try thickener. It's so frustrating.

Thanks it's all really helpful. No doubt the immaturity and prematurity won't help, however he was in special care for nearly 3 weeks and was in 4 hourly feeds sleeping brilliantly. I suspected reflux whilst he was in hospital but was poo pooed. If he has a good eve he will go 4-5 hours at night without wanting s feed but will writhe instead all night. It's very tricky working out what works as I don't want to keep messing his tummy round but the coughing , screaming, writhing , wanting to eat everything , not laying flat, going red in face, swallowing, chewing, fussiness, back arching etc I know it's reflux but his tummy is gassy, he keeps his legs up all the time wriggled so I think his tummy is sensitive also!

We have a private appointment Saturday fingers crossed specialist gastric paed! Last night no sleep for him at all on his back!

Onthedowns those symptoms could have described my boy.

How did your private appointment go?