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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel a bit neglected and taken for granted

32 replies

HardtoKoKo · 19/03/2016 22:03

Name changed as facts are very identifying. Also a bit long to avoid drip feeding.

I have MS. Married. Work full time in a demanding and fairly senior job. Two DC, 14 and 12. On Monday I'm going into hospital for five days of a fairly aggressive treatment. I've had to fight to get the treatment and, although I'm sure it's right long-term, it's likely to make me worse for at least a few weeks. I expect to be off work until the end of April. It's also pretty standard to have a tough time during the treatment with various reactions ranging from severe headaches, itchy rash, nausea, fever etc, etc.

DH has already said that, when I get home, if domestic / kids stuff HAS to be done and I REALLY CAN'T do it, then he will. But with most things I'll have to accept that, if I can't do it, it won't get done!

Hospital is almost two hours travel from home (London so either train or crawling traffic). My dsis is taking me in on Monday so DH can go to work. DC are covered for care, feeding etc by folks and friends (including sleeping over) until Thursday evening.

DH is going to pop in before he goes home on Monday - it's about 45 minutes to get to me from work then near.y two hours home so I realise it's not easy. He then has a (optional) work drinks thing he's going to on Tuesday. Wednesday he chose to make a medical appointment of his own that he's been putting off for weeks and Thursday he needs to come home as he's needed for DC - first time he's needed for them all week. Friday (bank holiday so he's not working) he says he'll get to me mid-afternoon in time to bring me home. He's not planning on taking any time off work in case he needs it later in the year - he has 5 days more than me.

Dsis will stay to get me settled on Monday but would like to be home for lunchtime. DC will probably visit on Wednesday as my folks can bring them. A friend will try and pop in one day but it's unlikely. So, that's it. Most people having this treatment have someone there most of the time but I'll be a Norma No Mates. Was dreading the actual treatment already, now feel even worse.

So, aibu to think DH should be stepping up and being a bit more supportive? And wwyd?

OP posts:
redannie118 · 22/03/2016 18:14

This reply has been withdrawn

The OP has privacy concerns, and so we've agreed to take this down now.

SylviaWrath · 22/03/2016 18:17

He really doesn't care much about you and your needs, does he?

AnUtterIdiot · 22/03/2016 18:26

This reply has been deleted

Message withdrawn at poster's request.

HardtoKoKo · 23/03/2016 18:03

Sorry I haven't been on for a couple of days.

Fig that's so kind but friends have got me covered with at least a quick visit every day.

Redannie yes, that's the one lemtrada / alemtuzumab

Day three done now. I'mso stuffed with drugs, IV and oral and I look like a pin cushion! Steroids keep me awake, antihistamine makes me sleepy! Overall doing surprisingly well but I suspect that's because I'm not actually doing anything! Concentration isn't great. I'm going to to shower and wash and dry my hair after supper. I have the ward to myself as everyone else is discharged for Easter. I'm here until Friday afternoon.

Thanks mumsnet

OP posts:
VegasIsBest · 23/03/2016 23:26

Glad to hear that you're doing ok overall, if a bit rough at the moment. How much longer till you can go home? And have you heard from your kids?

HardtoKoKo · 24/03/2016 12:56

Kids came in yesterday.

Today has been harder - there were some complications and they weren't sure if I could go ahead. All the lovely day ladies have someone with them and I felt a bit sorry for myself.

But I finally got the go ahead so the good stuff is flowing again and I'm listening to Adele

And there is good news. My lymphocytes are all gone! And my mum is at my house clearing out my fridge Smile

OP posts:
VegasIsBest · 24/03/2016 20:47

Glad the treatment is going well in the end. Are you still expected to go home tomorrow?

Are you planning to explain to your husband how hurt you've been by his behaviour and neglect?

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