Medical records

[Teenagecrisisagain]

I had an appointment with a doctor at the hospital
Notes were written and everything spoken about was recorded in front of me.

I have since requested a full set of my notes and this consultation is missing. Nobody can find it
It was suggested that I did not see a doctor that day and I replied that I did and saw the notes
I ha e other paperwork from my medical records referring to this appt but still Iam being told there is nothing recorded for this day

AIBU to take this further ? Iam very frustrated and need my full set of notes.

[ayria]

This is so unfortunate, I'm so sorry
This is not the first time I have heard of notes going missing either.
Did the doctor you had the consultation with file the notes in your folder? Would they have been taken out for any reason for someone else to go over? And maybe haven't been replaced... Do you know the consultants name? Have you spoken directly to them? Would anything that was discussed in your consultation be mentioned in a debrief? Or was it for further action?

I understand how much it would mean to you as I also have birth related PTSD and also in therapy.

[Scarydinosaurs]

for the purpose of your therapy- can you create a sheet of notes that records what you remember happening that day?

I know it's not a true solution, but for the purpose of what you want to do, it fills the gap?

[Teenagecrisisagain]

Yes it was written in the fold out section of my notes so was always in there and attached to the rest

I do not know the name of the doctor but think it is in the other notes I have
The only thing I can assume is that it's been removed for a reason. At that appointment I was very clear about an aspect of my medical care
Two weeks later as an inpatient the procedure I had not wanted was performed. My recollection of that is hazy as I had a uti at the time and other problems but at the appointment previous (that is like the notes for) I was of sound mind

I assume they looked at them after the event and panicked as it was clear errors had been made and informed consent not given as I was unwell, the request did not come from me and I was provided with no info to read prior to procedure. I didn't even remember signing consent but there was a form in the notes I received

[Teenagecrisisagain]

I have explained to them why I want my notes and that its for PTSD therapy not any sort of complaint

[Teenagecrisisagain]

I've gone through all the extensive notes I do have and found the appointment for which I want my notes referred to many times

I've highlighted other relevant info and a really sad letter from 18months after the incident where I'd had to attend hospital and had asked exactly what had been done (method of procedure) as even that had not been disclosed to me. Makes me realise just how awful the situation was
I will take what I have to my therapy appointments and try to work with what I've got
I will still be going in to view the actual file as the gap from the missing notes will be quite obvious

I just feel so down about it all. I just wanted to work through it all and seems I can't even do that easily

[Pseudonym99]

freedom of information act which says you can have your notes

That will be the Data Protection Act, not the FoI Act.

[Pseudonym99]

Had you opted out of the Summary Care Record

This will be nothing to do with the Summary Care Record, or opting out of it. If you have a medical consultation, they are legally required to keep a record. The only way you can opt out of having medical records is by not having medical appointments and consultations.

You can refuse to share information between different organisations, but to do this you need to know records are going to be shared, and pro-actively tell them you do not want information shared. This information is not volunteered by Healthcare staff.

It sounds to me that they do not want you to see this particular piece of information. They could be withholding it to 'protect you from harm'. I think before you tell Healthcare staff anything, you should receive something akin to a police caution - that information will be recorded and possibly could be detrimental to you. I am always very careful about what I tell them.

[Pseudonym99]

I already requested from medical records and paid the fee for everything

I was under the impression that the NHS are supposed to provide information for free these days. Unless it is something particularly onerous for them to do.

[Teenagecrisisagain]

You have to pay for medical records. I wanted to view and pay just for what I needed but they said no I had to pay for all

I asked was anything being withheld and they said no (was advised to actually ask the question as they ha e to answer honestly) so i know it's not that

[Threesquids]

You have to pay for medical records, they all set their own fees.