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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to ask why so many people are gluten free?

126 replies

waitingforsomething · 12/11/2015 11:00

I am getting married in a few weeks and 7 of the 70 adult guests are gluten free. 10%. One of these is a coeliac the rest just don't eat it. Aibu to ask why gluten is so bad and why so many people are avoiding it? Is there evidence other than in coeliac disease that cutting it out is helpful in some way?
I don't mind from a catering point of view but I am curious as to where this is coming from.

OP posts:
soupmaker · 12/11/2015 12:02

I'm not gluten free but have gone wheat free. I've had IBS for years and giving up wheat has made a massive difference to it, seems to have cured the itchy eczema patches on my legs and made me a lot less sluggish too. I may very well have "jumped on a band wagon" but I feel so much better.

LabradorMama · 12/11/2015 12:02

My stepmother has coeliac disease and has been gluten free for years. Personally, I cannot understand why ANYONE would eat gluten free by choice. I find GF baked goods highly unpalatable (even my dogs won't eat them)

JonSnowKnowsNowt · 12/11/2015 12:08

Well since only 25% of coeliacs in the UK are diagnosed, the other 75% are either eating gluten and getting very ill, or have decided to avoid gluten since they've worked out it doesn't suit them. And getting criticised for it.

On top of that, a lot of people just don't get on with gluten for non-coeliac reasons. I am not coeliac (been tested and don't have any symptoms) but two of my DC are, so we are gf at home. I lost about a stone over the several months after going gf, which has stayed off, so I'm happy with it! I often choose to eat gf when out now (not at people's houses but in restaurants) for several reasons (solidarity with my DC when with them & encouraging restaurants to keep providing gf food). But also I have just developed a preference for naturally gf dishes. I think I had an unhealthy bread/pasta habit before.

BarbarianMum · 12/11/2015 12:09

Well I'm genuinely gf and I love lots of things about 'the bandwagon' - gf food is widely available and taken quite seriously in the UK compared to, say, France, where I was considered eccentric and fussy.

MrFMercury · 12/11/2015 12:10

I have gluten ataxia. If I eat gluten it directly damages the balance centre of my brain and causes me pain (on top of other chronic pains and I am disabled) and I swell so much I look pregnant. The pain in my hands is so severe I can't write. I hate with a passion feeling I am being fussy. I'm a vegetarian too but often had felt forced to eat fish because otherwise I'd be sat with a plain green salad. The food is expensive and most of it is nowhere near as nice as the proper stuff. So my food costs a lot more even taking into account what I get on prescription and I'm miserable. I hate feeling like I am fussy or on a band wagon when I actually get no enjoyment from food and don't necessarily want to explain to all and sundry why I can't eat gluten or the many things that happen to me when I do.

Poledra · 12/11/2015 12:13

PrimalLass are you feeding my DD? Has she got like the cats and gone to wherever will feed her? Ciabatta and nutella all the way here too Grin

Pootles2010 · 12/11/2015 12:14

I think a lot of folk try it, to cure stuff like IBS, and it seems to work - whether that's because they're eating more healthily because they can't have junk food etc, I'm not sure.

My mum's coeliac, and as others have said it's a useful bandwagon - means she can eat out a lot more. I hope all the gluten free food doesn't just disappear when the next trend comes - we shall see.

gladisgood · 12/11/2015 12:16

( Not coeliacs or bandwaggoners obviously !) but a lot of people are actually intolerant to the Yeast in bread - but diagnose themselves as being Gluten Intolerant

I have a friend like that who could easily eat cakes and biscuits, but had horrible stomach cramps/IBS symptoms when she ate bread. Took her months (and a lot of tolerating sneering and raised eyebrows) before she finally discovered she can't eat yeast.

She can eat sourdough ( yeast less bread) quite happily.

bettyberry · 12/11/2015 12:18

I follow quite a restrictive FODMAP diet due to IBS and it has helped with my psoriasis too although I am not recommending it to treat it btw . I've reintroduced foods slowly and I'm learning what triggers it. Fat is a big issue for me, I can't handle large quantities so no fried foods, cheesy sauces or pizza :( Pasta and wholemeal bread is another big trigger for me. So when I go out its easier for me to say 'Gluten Free' and not eat the other foods on the plate - broccoli, green beans, cabbage for example - and to hold the sauce if its cream based.

People just do not know or understand what a FODMAP diet is so I revert to the easiest.

I do think quite a lot of people blame problems on gluten/dairy/other foods when there is no real allergy or intolerance there (the statistics back this up) I see it a lot with people aiming to lose weight and those who have disordered eating use juicing/GF/dairy free/vegan/veggie/paleo as a way of controlling their food. If you say you don't want something you are often asked why. Say you are juicing/GF/dairy free/vegan/veggie/paleo no one questions it. Its seen as acceptable and many of them are praised for their positive attitude to their health. This is just my experience here in my circle.

It does infuriate me though because my OH has a nut allergy as well and when we question foods and their ingredients people think we are being a pain in the arse and faddy :( nope. Just trying to prevent pain, illness and death.

WindyBlows · 12/11/2015 12:18

Because there's nothing like a bandwagon and some people are utterly pathetic and will do anything to make themselves seem 'special' in some way.

allwornout0 · 12/11/2015 12:18

A couple I know having had a quick test in the local chemist like to make a big song and dance about how they now cannot eat gluten.
Neither has ever had any problem with eating gluten and have never had any improvements in anything if they don't eat it.
For them it is more that they enjoy the attention that they get from people asking them all about being gluten free.
What many don't see is that in the privacy of their own home they happily stuff a big mac and fish and chips down their mouths.

marmiteandcheeseplease · 12/11/2015 12:19

Some need to feel in control and the placebo effect means they feel loads better eating a different diet and the nocebo effect means they feel bad if they knowingly eat gluten.

^^ this. I think for many people it's a placebo/nocebo effect.

For some people, it's a faddy health/gym bunny thing. I know a couple of people who are 'gluten free' and neither of them are celiac, and both of them, despite saying that gluten upset them, do 'cheat' from time to time. Both of them are slightly weight obsessed and love to exercise, and have lost weight since going gluten free. My SIL for example went gluten free after it being suggested to her by her personal trainer. She made a big fuss on holiday about not eating pasta and having a separate meal when pasta was cooked (once in two weeks), but was happily munching on french baguette for two weeks Hmm. Recently we went to visit and we all had sandwiches at lunch, and she ate rice cakes... but after lunch had two chocolate digestives Hmm. My friend who has been gluten free for a few years cheats less but she will for e.g. drink beer (not gluten free). She only went gluten free after she went to Australia for 18 months and got really into running in Sydney. So there are definitely some people who do do it to lose weight.

Yes there are some people who genuinely have celiac disease and for whom any contact with gluten is really serious. There is also some limited evidence that a small % of the population has a milder auto-immune reaction to it, but the very limited studies that have been carried out on this suggests that, whilst some people may have sensitivity to gluten, most people who think they have an intolerance to gluten actually don't.

However, it doesn't do any harm and as people with celiac disease have commented on this thread, the gluten free bandwagon has made it easier for them to have nice things to eat when out, which is no bad thing!

AnnPerkins · 12/11/2015 12:23

DH was ill for years, suffering terrible bloating and diarrhoea after every meal. He lost so much weight some friends actually asked if he had cancer Hmm. GP just kept saying it was IBS. He took medication, cut out foods that were supposed to exacerbate IBS, did everything GP recommended, and it never made an ounce of difference.

Finally, through his own research and process of elimination, he concluded he was intolerant to gluten. He stopped eating it and his health transformed overnight. Almost a year later he's back to a healthy weight and feels well again for the first time in probably a decade.

DH's sister was diagnosed with coeliac disease a couple of months later. She has osteoporosis as a result of suffering for so many years without diagnosis.

I suspect IBS covers such a broad spectrum of symptoms and causes that GPs can't see past it. They immediately jump to that conclusion and ignore the possibility of adverse reactions to gluten.

I also acknowledge that some people see it as a fad diet. I saw on TV some people being interviewed at a gluten-free food fair in London. One bloke who followed a GF diet, when asked what he thought gluten was, scratched his head and said 'I'm not sure exactly, but I know it's some kind of fat'.

I personally can't understand why anyone would willingly limit their diet. We're used to making adjustments for DH at home now, but he feels awkward at friends' houses, like he's putting them to extra trouble and expense. And he's still extremely cautious eating in restaurants. Why would anyone voluntarily inconvenience themselves and others for the hell of it?

StealthPolarBear · 12/11/2015 12:25

Betty why can't you eat the brocolli and cabbage?

bettyberry · 12/11/2015 12:25

gladisgood sourdough is a godsend. I agree yeast is a problem for people far more than gluten is.

MrFMercury have you experimented with chickpea/gram flour. It can make wonderful sweet pancakes if you mash a banana in with the batter. I know it doesn't help with eating out but if you can eat great food at home it makes the horrendous food eating out more bearable.

I've been experimenting a lot here with different foods because my diet is so restrictive and trying to find tasty alternatives when some of your favourites leave you in pain is horrible :(

JonSnowKnowsNowt · 12/11/2015 12:27

NICE guidelines say that a doctors should never make an IBS diagnosis without first excluding coeliac disease. Unfortunately that often doesn't happen.

fascicle · 12/11/2015 12:28

Some people seem to only accept coeliac disease as a legitimate reason for not eating gluten. Clearly there are other conditions where avoiding gluten is important, but because they can be hard to diagnose, and may be self-diagnosed, some people remain cynical.

I avoid wheat because experience (and physiological evidence Wink) has told me I'm intolerant to it in anything but small quantities. I'm fine with rye and oats that may be cross-contaminated. But if I'm eating out, I will go for a gluten-free option to avoid confusion.

vulgarbunting · 12/11/2015 12:31

Since I have become gluten free I feel so much better. I bloat (and fart) less, my stomach is flatter. I use the calories that would have once gone on bread to eat something much more nutritious.

Having said that, I would never impose my fussiness on a wedding. Also, anyone who is substituting bread for 'free from' is just taking one evil and replacing it with another (sugar laden) evil. I don't get why people have to have bread in their lives.

Schrodingersmum · 12/11/2015 12:38

Personally I am very pleased about gf being the latest fad!

Much more choice in the shops make our life much happier, the gf profiteroles from Tesco's are to die for and the new products at the allergy show last weekend were yum! Kids had fresh donuts for the first time in years

We are a family of 3 coeliacs, until I was finally found 4 years ago by accident family members had been dying for generations of what we now know was coeliac disease, I was close to death myself at that point

In our family we have an immunological fault which prevents us showing antibodies to gluten, typically 1 in 8 coeliacs have this fault

Although some may cheat on the diet, there are those who become so ill with a crumb contamination they need hospital care. So if this fad raises the profile and improves service in restaurants I for one am very happy

bettyberry · 12/11/2015 12:38

StealthPolarBear I have no idea why they cause me grief, they just do. They are low fodmap and supposed to be ok. I have noticed certain symptoms without tmi that leave me in pain/discomfort/unable to do some things. Eating the same meal and leaving those out I had no problems at all. It really is all guess work because there is no test for these things at all. I will try them again in the future just to make sure it is those causing the problem but I have things on a manageable level right now.

I know I am not a coeliac/lactose inolerant, I have had extensive allergy testing but this seems to have worked for me.

It was my GP who suggested the fodmap diet and is working with me through it.

StrictlyMumDancing · 12/11/2015 12:41

I'm fairly new to being gluten free. It's not for lifestyle reasons but because I was left floundering with auto-immune conditions that the NHS tried to deny I even had and will barely treat, and eventually someone tipped me off onto the auto immune protocol. I've known for a long time I'm lactose inotlerant, which is far easier to live with. But I'm also gluten intolerant as well as some other things. If I don't eat those things my conditions are manageable.

Cheating is not an option. The few times I've found I'm suffering from flare ups I usually discover I've accidentally eaten something that antagonises me. I went to a party where they catered indian food, we were told no gluten containing ingredients. A few days later, in full flare up mode with that the only place I could think of, I contacted them. Turns out they used a small amount of flour (which in fairness is very untraditional) in a dish.

Having said that I am largely convinced that this increase is partly to do with the large increase and reliance nowadays on convenience and processed foods.

StealthPolarBear · 12/11/2015 12:43

Thabks. I just couldn't see what you were actually eating! Must be very difficult

StrictlyMumDancing · 12/11/2015 12:43

betty I'm similar to you, some low fodmap stuff antagonises me like crazy but I'm fine with some high fodmap ones. Perhaps we're all just a bit different Grin

Pootles2010 · 12/11/2015 12:44

Vulgar thats a bit of an odd thing to say - plenty of people have no issues with bread. Free from bread is a god send to my mum - and plenty like her.

SoupDragon · 12/11/2015 12:46

I feel undefinably better and certainly less bloated if I don't eat gluten. Thankfully, whatever intolerance I have is not so severe that I have to avoid it at all costs - even just steering clear of it is a PITA.